Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for October 2017

Q re levels after loading

I had a loading dose each week for one month, ending 2 months ago (the standard at our practice. The GP retested my B12 last week and it's sitting at 500....

I had a loading dose each week for one month, ending 2 months ago (the standard ...

ajw1205

•7 years ago

2 Replies

My previous good news post

Sorry I meant I get my injections every six weeks now. note by admin see this post...

Sorry I meant I get my injections every six weeks now. note by admin see this po...

Maadkins

•7 years ago

There is still hope out there

Just thought I might post a good news story. A couple of years ago my gp, who allowed me to have my B12 injections every three weeks, retired. The next gp I...

Just thought I might post a good news story. A couple of years ago my gp, who al...

Maadkins

•7 years ago

5 Replies

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Gastritis, are B12 injection going to treat it?

I have PA and started B12 injections. I have just done gastroscopy. I have symptoms of gastritis (I have to wait for the results of 4 biopsies in 3 weeks...

I have PA and started B12 injections. I have just done gastroscopy. I have sympt...

Kosakosia

•7 years ago

4 Replies

Below range b12 - advice needed

Hello all, I'm posting on behalf of my brother who had some private blood tests done to look at his thyroid function and all came back normal apart from his...

Hello all, I'm posting on behalf of my brother who had some private blood tests...

foxrabbit

•7 years ago

10 Replies

Feeling "woozy" all the time, anyone else get this from low B12?

Hi, Looking for insight from people who have experience with the symptoms of low B12. I do not have PA, but I've had low B12 for at least a year (and...

Hi, Looking for insight from people who have experience with the symptoms of lo...

matt344

•7 years ago

17 Replies

What next? Test results are normal....

Hi all, after many months of lurking, have finally signed up as I'm at my wits end as to what to do. Back in May 2017, after many years of prevaricating for...

Hi all, after many months of lurking, have finally signed up as I'm at my wits ...

Hidden

•7 years ago

9 Replies

Bp and low b12

Hi , I'm on 3 monthly b12 with Gp . Only well for the middle month. It takes a few weeks for the injected 1mg to kick in , and the month before it's due again...

Hi , I'm on 3 monthly b12 with Gp . Only well for the middle month. It takes a ...

Bobonuts

•7 years ago

5 Replies

B12 results

Hi everyone, I'm a newbie! I've had M.E. for 8 years and seem to get slightly worse and more tired every year. I've recently heard of Pernicious Anemia and...

Hi everyone, I'm a newbie! I've had M.E. for 8 years and seem to get slightly w...

_Jen_

•7 years ago

17 Replies

not improving

I was experiencing mild neurological symptoms that kept getting worse. After months of testing my b12 was checked in April 180 (scale 141-489) then my folic...

I was experiencing mild neurological symptoms that kept getting worse. After mo...

lunez22

•7 years ago

10 Replies

B12 folate ferritin

Hi what do I need to ask GP on Monday about these. They were done a month ago thanks Ferritin 15 (30 - 400) Folate 2.2 (4.6 - 18.7) Vitamin B12 157 (180 - 900)

Hi what do I need to ask GP on Monday about these. They were done a month ago th...

Firefly3

•7 years ago

2 Replies

Folate

Hi my B12 is 320 been on injections for 6 years now My results last time were 400 To me obviously I am not maintaining it at all Not according to my GP it's...

Hi my B12 is 320 been on injections for 6 years now My results last time were 4...

lilly60

•7 years ago

5 Replies

Sourcing Hydroxocobalamin

Could anyone advise on where you can source 1ml ampules of Hydroxocobalamin? After seeking second opinions I found a very clued up & sympathetic nurse...

Could anyone advise on where you can source 1ml ampules of Hydroxocobalamin? Aft...

1998cd

•7 years ago

6 Replies

constant yawning...

Hi everyone, Do constant yawning is a symptom of b12 deficiency? and do they go away after supplementation? Thanks

Hi everyone, Do constant yawning is a symptom of b12 deficiency? and do they go ...

hlth

•7 years ago

14 Replies

B12 Tingling and Numbness

If you experience tingling and numbness after starting B12 you may want to try a children's chewable aspirin or two and see if that helps. I have blurred...

If you experience tingling and numbness after starting B12 you may want to try a...

Hidden

•7 years ago

21 Replies

B12 and folate

Hi I am new, I have been asked to post here from the thyroid UK people. Just wondering if B12 and folate are ok and that the folic acid 5mg is sufficient? I...

Hi I am new, I have been asked to post here from the thyroid UK people. Just won...

Abik

•7 years ago

1 Reply

Ferritin level

Hi there just had a blood test back my ferritin level is 64mcg I have no idea if this is normal range or low does anybody know

Hi there just had a blood test back my ferritin level is 64mcg I have no idea if...

Newberryk

•7 years ago

1 Reply

Vitamin C intramuscular injection with B12?

Hi All, Has anybody any knowledge or experience of IM injections of vitamin C? I have sourced Vit C ampoules and would like to add it to my bi weekly B12 for...

Hi All, Has anybody any knowledge or experience of IM injections of vitamin C? I...

0SK780

•7 years ago

2 Replies

Pa and immune system

Hi everyone. I am suffering with my first cold in over 5 years. I have noticed my normal seasonal allergies were worse since I was diagnosed with PA and now a...

Hi everyone. I am suffering with my first cold in over 5 years. I have noticed m...

CH52

•7 years ago

13 Replies

Exercise

Hi everyone, After numerous trips to my GP and my B12 being a constant 132 and folate 2 my doctor has finally advised hyroxocaobalamin injections which will...

Hi everyone, After numerous trips to my GP and my B12 being a constant 132 and...

Mrs_

•7 years ago

19 Replies

Low Ferritin with normal Folate & Iron?

Confused about results. Grateful for any clarification. *Ferritin result 25 ug/l Range: <15 - Iron deficiency likely 15-30 - Iron deficiency anemia with or...

Confused about results. Grateful for any clarification. *Ferritin result 25 ug/...

Jaxbeav

•7 years ago

8 Replies

B12

Anybody taking Singular 10mg , wondering does it effect your b12 levels or effect having injections of b12

Anybody taking Singular 10mg , wondering does it effect your b12 levels or effec...

Rocco44

•7 years ago

12 Replies

B12 sublingual

Hi have been mostly vegan for about 10 years, so thought I needed b12 because I was very fatigued and loss of interest in anything. Started the b12 6 days ago...

Hi have been mostly vegan for about 10 years, so thought I needed b12 because I ...

Hidden

•7 years ago

11 Replies

Candida?

Hi all I've been thinking a lot recently what Is wrong with me, whether it's pernicous anemia or b12 deficiency etc. I've had many many tests done and each...

Hi all I've been thinking a lot recently what Is wrong with me, whether it's per...

mdoh1918

•7 years ago

11 Replies

Neurology letter and advice on plan of action please to get some B12 treatment or a diagnosis

Hi Everyone, Hope you are all well today. I've just recently had a neurology appointment that the GP referred me to about my B12 deficiency diagnosis. The...

Hi Everyone, Hope you are all well today. I've just recently had a neurology ap...

Cn13

•7 years ago

16 Replies

Will have to avoid blood tests in future

Went back to have my three monthly Wednesday and was expecting to feel pretty rough but all good although was violently sick on and off last night but have put...

Went back to have my three monthly Wednesday and was expecting to feel pretty ro...

Av42

•7 years ago

6 Replies

Too much folic acid?

Hiya, After I got my blood tests done on Monday I started to take the folic acid tablets I bought, 5mg ones, one per day. My plasma folate level was just in...

Hiya, After I got my blood tests done on Monday I started to take the folic acid...

Hidden

•7 years ago

23 Replies

Thyroxine wow

In the mad excitement over B12 and self-injecting every other day, I was a bit upset that my condition hadn't budged after 6 weeks. My very good GP looked at...

In the mad excitement over B12 and self-injecting every other day, I was a bit u...

Pingo

•7 years ago

7 Replies

Could I have pernicious anaemia?

Hi folks, So I'm wondering if I fit the bill. I will ask to be tested but in the meantime.... My vitamin b 12 levels are 285 And ferritin is 43 I have...

Hi folks, So I'm wondering if I fit the bill. I will ask to be tested but in t...

wowserclo

•7 years ago

1 Reply

Could this be PA?

My serum B12 was 206 ng/L (180-900) I have Hashimoto's which I'm only just starting to get under control some 25 years post diagnosis! I still have many...

My serum B12 was 206 ng/L (180-900) I have Hashimoto's which I'm only just start...

Ordinary39

•7 years ago

1 Reply

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2017

Q re levels after loading

My previous good news post

There is still hope out there

Gastritis, are B12 injection going to treat it?

Below range b12 - advice needed

Feeling "woozy" all the time, anyone else get this from low B12?

What next? Test results are normal....

Bp and low b12

B12 results

not improving

B12 folate ferritin

Folate

Sourcing Hydroxocobalamin

constant yawning...

B12 Tingling and Numbness

B12 and folate

Ferritin level

Vitamin C intramuscular injection with B12?

Pa and immune system

Exercise

Low Ferritin with normal Folate & Iron?

B12

B12 sublingual

Candida?

Neurology letter and advice on plan of action please to get some B12 treatment or a diagnosis

Will have to avoid blood tests in future

Too much folic acid?

Thyroxine wow

Could I have pernicious anaemia?

Could this be PA?

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