Hope you are all well today. I've just recently had a neurology appointment that the GP referred me to about my B12 deficiency diagnosis. The letter says I have cognitive decline of uncertain cause. The physical exam says I have brisk but symmetrical reflexes but also some upper limb dyspraxia. They are repeating a B12 serum test and intrinsic factor again which already came back negative before. To me this letter is further proof I have neurological symptoms but they just want to see me again in 10 weeks.
I recently also had a GP appointment where I tried to bring up the subject of a B12 deficiency this GP at the moment just wants to concentrate on treating my Hypothyroidism and is leaving the B12 diagnosis up to the neurologist. I was told by the neurologist they only diagnose a B12 deficiency by using the serum B12 or IF test.
I even wrote back to her and outlined my improvement that I had in April after some B12 loading injections which the GP stopped as he couldn't find supporting evidence from my blood tests. I've already given this GP practice an update for health professionals from the PAS which I am now a member of.
I think the GP and neurologist is getting me nowhere they are not taking notice of what I'm saying and now I am seriously worried about permanent neurological damage. I am thinking of getting an active B12 and MMA test at St thomas's hospital myself as this seems to be the cheapest option and also being NHS the GP should take notice if the results do show a deficiency.
I just don't want to be waiting around and getting worse. Would anyone have any further advice or am I doing the right thing. I would appreciate any input please. Thanks.