Looking for insight from people who have experience with the symptoms of low B12.
I do not have PA, but I've had low B12 for at least a year (and probably well before that). Recently, I've also been having increasing problems with wooziness / dizziness for which my doctors (Primary, ENT, Neurologist) don't yet have any answers. I'm wondering if low B12 could be to blame and if anyone can relate to my symptoms.
First, on the B12 front, about a year and a half ago I went to the doc for general malaise and slight wooziness all the time. They ran a bunch of tests and the only abnormal one was my B12, which was 150pg/mL. My blood count and iron were ok though, so no sign of anemia. They gave me a B12 shot and told me to follow up with daily supplements thereafter.
Long story short, the B12 shot was great, my malaise symptoms all went away within a week and I felt great for 2 more weeks... but I also found I couldn't tolerate the B12 supplements, they gave me hellish anxiety and once I realized it I had to stop taking them. I had also switched off of a PPI drug thought to be causing the low B12, so I hoped that + diet would suffice.
Fast-forward to a few months ago, I started feeling woozy again and found my B12 was back at 189pg/mL (highest it got with shot + supplements was ~330). Meanwhile, after seeing an ENT for my dizziness, they did some VNG testing that SEVERELY aggravated my symptoms, and I have not really recovered back to normal. The dizziness I get is not classic vertigo... the room doesn't spin... it's rather indescribable... My eyes feel out of sync with my brain somehow and at its worst I feel like I'm below-deck on a rocking ship. I sometimes sense motion in my vision, esp over a distance, so I cannot wear my contact lenses without getting motion sick now. Similarly, walking in grocery store aisles or other narrow corridors with lots of visual movement as I walk cause me to feel sick. At my worst, loud sounds can be intolerable too, but not usually. I also have much louder than normal tinnitus in my ears (but no hearing loss) and get bad tension headaches.
When my symptoms got severely aggravated, I started B12 shots to try to rule out low B12 out as a cause. I've received 2 1,000mg cyanocobalamin IM injections a month apart now, and while my symptoms have very slightly improved over time, there's not been a large "bounce-back" like the very first time I got a B12 shot a year ago, and most days I can't function normally still.
I'm not totally convinced my low B12 is causing my wooziness feelings, but since nothing else is making sense and my doctors seem stumped, I'm wondering more and more... I have seen other improvements I think are B12-related (I sleep better, less fog & fatigue, less heart palpitations, decreased inflammation / redness in gums, etc), so I know that was causing me other symptoms.
Can anyone relate to these kinds of symptoms when their B12 was low? If so, how did your recovery progress (fast or slow etc)?