Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

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All posts for July 2017

Are these neurological symptoms?

Hi, this is my first post. I recently got diagnosed with B12 deficiency, I went to the GP with lightheadedness, dizziness and breathlessness plus rapid...

Hi, this is my first post. I recently got diagnosed with B12 deficiency, I went ...

Curlygal

•7 years ago

14 Replies

I'm concerned because I sleep so much!

I'm self injecting evert other day, take b6, b complex, magnesium, folate and APT fuel and all I do is sleep. Anyone else? My main complaint is an inability...

I'm self injecting evert other day, take b6, b complex, magnesium, folate and AP...

Blinkysmom

•7 years ago

4 Replies

When I walk, I feel like someone must feel who has palsy; my legs and torso and sometimes arms feel twisted.

Anyone else? I just started b12 injections every other day, folate, magnesium, b compiles, b6. I don't know how else to articulate how it feels. After a...

Anyone else? I just started b12 injections every other day, folate, magnesium, ...

Blinkysmom

•7 years ago

12 Replies

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I've got PA and wonder if I need any other supplements other than B12 shots.

Hi everyone. I'm a 49y.o. paediatrician recently diagnosed with PA (B12 of 79, homocysteine of 69, atrophic gastritis with metaplasia). This is my 5th week of...

Hi everyone. I'm a 49y.o. paediatrician recently diagnosed with PA (B12 of 79, h...

cquadros

•7 years ago

20 Replies

Folic acid

My gp says my level for folic acid is normal so I've never taken it. Pa diagnosed 4y ago I self inject every other day . My question is would I feel better...

My gp says my level for folic acid is normal so I've never taken it. Pa diagnos...

catherinejordan

•7 years ago

1 Reply

Does your body become tolerant to B12 Injections?

Hi I've been SI B12 now for roughly 6 months.(weekly at first and now every 2 weeks). I decided to cut down the frequency. I wanted to know if your body...

Hi I've been SI B12 now for roughly 6 months.(weekly at first and now every 2 we...

Ryaan

•7 years ago

10 Replies

Can taking folic acid supplements cause side effects?

I started taking 5mg on Thursday (so 4th day coming up). Doc prescribed on deficiency after blood tests. Iv been feeling exhausted and had tailbone pain. Had...

I started taking 5mg on Thursday (so 4th day coming up). Doc prescribed on defic...

Kimple123

•7 years ago

7 Replies

Effect of Iron suppliment

Hi, my 2.8 years old son was having low hb. Thelesemia was rulled out and iron was started. After 3 months hb is increased but some other parameters are...

Hi, my 2.8 years old son was having low hb. Thelesemia was rulled out and iron w...

Hidden

•7 years ago

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Hit bottom with exhaustion at end of week when B12 cyanocobalam injection is due, wondering if it in my head, old age (59) or reality?

I have had my injections weekly now for nearly a year and have improved in so many ways, but by the time the week ends I am exhausted. I get my shot and seem...

I have had my injections weekly now for nearly a year and have improved in so ma...

xyz011

•7 years ago

15 Replies

Overdosing with Vit B12 is it possible?

Hi I am sorry bt I cannot get my head round a lot of this about VitB 12 deficiency and pernicious anaemia. I amtaking10000 mcg s/l B12 daily and have neuro...

Hi I am sorry bt I cannot get my head round a lot of this about VitB 12 deficien...

avocadopeardrops

•7 years ago

8 Replies

Hypothyroid with low vitamins B12 and D

Hello everyone, I have been advised by people on the Thyroid Forum to ask on here if anyone can give me advice. I was suffering from extreme fatigue and...

Hello everyone, I have been advised by people on the Thyroid Forum to ask on her...

SheNew

•7 years ago

2 Replies

Late diagnosis of B12 deficiency

Hi my name is Margaret and I'm new here. Around 4-5 years ago (memory problems) I was diagnosed with B12 deficiency.this came after around 10 years of health...

Hi my name is Margaret and I'm new here. Around 4-5 years ago (memory problems) ...

Magaret111

•7 years ago

6 Replies

During the beginning of treatment, does anyone sleep a lot?

I'm self-injecting for a month now and am always vey sleepy. I take magnesium, folate b-complex and b6. Thanks! Zzzzzzzzzzzzzz

I'm self-injecting for a month now and am always vey sleepy. I take magnesium, ...

Blinkysmom

•7 years ago

8 Replies

New 'Disease Primer' on B12 deficiency in Nature

Nature Reviews run occasional Disease Primers. This month their subject is Vitamin B12 deficiency. http://www.nature.com/articles/nrdp201740 This is the sort...

Nature Reviews run occasional Disease Primers. This month their subject is Vitam...

fbirder

•7 years ago

5 Replies

Help please - B12 deficiency?

Hi all, First of all I want to say thank you for all that I already learned from this forum. I am not diagnosed with PA, but I have hypothyroidism and on...

Hi all, First of all I want to say thank you for all that I already learned fro...

moniacho

•7 years ago

5 Replies

Functional B12 deficiency/NutrEval results

Hello, I am new here. Can anyone pls help me? I seem to have a functional B12 deficiency despite normal (now ) or super elevated (previously) serum B12. When...

Hello, I am new here. Can anyone pls help me? I seem to have a functional B12 ...

Natalija1

•7 years ago

3 Replies

Are my levels OK

I've just had a full blood test as my hair is thinning and I'm constantly tired. My GP says that everything's normal and that's it. My B12 was 269, Ferritin...

I've just had a full blood test as my hair is thinning and I'm constantly tired....

Msposh

•7 years ago

2 Replies

Hippocratic oath

I think we, the many whose GPs do not take us seriously, do not treat us adequately, do not understand the struggle to keep going, should remind the GPs and...

I think we, the many whose GPs do not take us seriously, do not treat us adequat...

stumpnme1

•7 years ago

8 Replies

Private blood tests

I saw a recent comment on here explaining about private blood tests, costing £200 which, despite not giving a commentary on the results, nevertheless gave...

I saw a recent comment on here explaining about private blood tests, costing £20...

RosalindB

•7 years ago

6 Replies

Injections and supplements?

Did/does anyone do injections and B12 supplements? I am getting weekly injections, but it only helps me feel better for a day or two. Neurologist I see (for...

Did/does anyone do injections and B12 supplements? I am getting weekly injectio...

Lorilee60

•7 years ago

6 Replies

Urinary MMA testing methods and values

Hi all, I paid to have a Urinary MMA testing done but now I'm wondering if it was done correctly/using the right figures. Some testing methods describe fasting...

Hi all, I paid to have a Urinary MMA testing done but now I'm wondering if it wa...

Kasty

•7 years ago

1 Reply

Do I have Pernicious Anaemia or not, conflicting results confusing Drs

Hi all, I had a positive IFA and PCA blood result last November. GP gave me a leaflet about PA and told me I had PA and would nd treatment for life, although...

Hi all, I had a positive IFA and PCA blood result last November. GP gave me a le...

Barry1955

•7 years ago

7 Replies

Where do I go from here?

After a battle GP finally agreed I could request B12 injection every 2 months instead 3 if my symptoms returned. Just had annual blood test and B12 level...

After a battle GP finally agreed I could request B12 injection every 2 months in...

Beattie-75

•7 years ago

5 Replies

B12 loading doses

My b12 has finally arrived from Germany! There seem to be conflicting information on loading doses. Would people mind telling me what worked for them? Thanks!

My b12 has finally arrived from Germany! There seem to be conflicting informati...

jrb85

•7 years ago

4 Replies

High b12

My b12 has been around the 1400 mark for the last three years. Everything else in full blood test is great. Should I be worried and test further?

My b12 has been around the 1400 mark for the last three years. Everything else ...

Moni54

•7 years ago

5 Replies

B12 loading doses no difference

Hi, two weeks ago I was told I had b12 deficiency and have since had the six loading doses. I had another blood test today, the one to check for antibodies so...

Hi, two weeks ago I was told I had b12 deficiency and have since had the six loa...

Hidden

•7 years ago

11 Replies

Any link to tailbone pain???

Iv had tailbone pain for 6 months. Just diagnosed with low folic acid levels. I'm also on thyroxine after having half my thyroid killed off. Does anyone...

Iv had tailbone pain for 6 months. Just diagnosed with low folic acid levels. I'...

Kimple123

•7 years ago

6 Replies

Need urgent help please!

Hi there, My blood test for B12 is showing something like 18.3 pmol/L. It should be somewhere between (25-165 pmol/L) according to report. MY GP prescribed...

Hi there, My blood test for B12 is showing something like 18.3 pmol/L. It shou...

nasiriftekhar

•7 years ago

8 Replies

I'm new to this

Hi my first week of having 6 injections ,for b .12 so I new at this so I reading what I can.

Hi my first week of having 6 injections ,for b .12 so I new at this so I reading...

Robert50

•7 years ago

6 Replies

High B12 AND High Folate aCID

b12 IS 100 POINTS FROM BEING OFF THE CHARTS. FOLATE IS OFF THE CHARTS IT'S SO HIGH. NO DOCTORS KNOW WHY. SEEN SEVERAL SPECIALITIES. ALSO I HAVE BONE PAIN IN...

b12 IS 100 POINTS FROM BEING OFF THE CHARTS. FOLATE IS OFF THE CHARTS IT'S SO H...

Lynne0762

•7 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2017

Are these neurological symptoms?

I'm concerned because I sleep so much!

When I walk, I feel like someone must feel who has palsy; my legs and torso and sometimes arms feel twisted.

I've got PA and wonder if I need any other supplements other than B12 shots.

Folic acid

Does your body become tolerant to B12 Injections?

Can taking folic acid supplements cause side effects?

Effect of Iron suppliment

Hit bottom with exhaustion at end of week when B12 cyanocobalam injection is due, wondering if it in my head, old age (59) or reality?

Overdosing with Vit B12 is it possible?

Hypothyroid with low vitamins B12 and D

Late diagnosis of B12 deficiency

During the beginning of treatment, does anyone sleep a lot?

New 'Disease Primer' on B12 deficiency in Nature

Help please - B12 deficiency?

Functional B12 deficiency/NutrEval results

Are my levels OK

Hippocratic oath

Private blood tests

Injections and supplements?

Urinary MMA testing methods and values

Do I have Pernicious Anaemia or not, conflicting results confusing Drs

Where do I go from here?

B12 loading doses

High b12

B12 loading doses no difference

Any link to tailbone pain???

Need urgent help please!

I'm new to this

High B12 AND High Folate aCID

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