Where do I go from here?: After a... - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,985 posts

Where do I go from here?

Beattie-75 profile image
5 Replies

After a battle GP finally agreed I could request B12 injection every 2 months instead 3 if my symptoms returned. Just had annual blood test and B12 level came back at 1500! I do take a B complex tablet daily for the other B's. Feeling fine at the moment but am terrified of what the doc will say when I request an injection in a few weeks time? Help! What is going on?

Written by
Beattie-75 profile image
Beattie-75
To view profiles and participate in discussions please or .
Read more about...
5 Replies
JMN2017 profile image
JMN2017

It's my understanding that, having B12 injections, your levels will be well up, even as much as 2,000, and this is fine. Any excess will be got rid of via kidneys as water soluble. Be pleased that your levels show your injections are getting your levels raised. Once established that injections are being sufficiently raised, there's little point to being retested.

I believe people can still require more frequent injections in spite of levels being so high.

Someone with more knowledge and experience will be along to comment soon, I'm sure.

clivealive profile image
clivealiveForum Support

If you are on regular B12 injections it is generally considered pointless testing unless it come back low.

Was your Folate level tested?

Sleepybunny profile image
Sleepybunny

"am terrified of what the doc will say when I request an injection in a few weeks time?"

I'd suggest finding quotes from UK B12 documents that indicate that checking b12 levels after treatment has started is irrelevant.

Think there is something in

1) BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

2) Summary

fbirder 's summary of B12 documents might be helpful to read. Link to summary in third pinned post .

Gambit62 profile image
Gambit62Administrator

suggest that you try not to stress too much - deal with the issue of level if and when it does become an actual issue.

Research done by the PAS reports that people with PA tend to need levels of 1000 on average to feel healthy after injections. BCSH guidelines state that there is no need to test after treatment starts unless there is reason to suspect non-compliance which is an indicator that levels should be seen as irrelevant and treatment should be based on symptoms.

There is also information on the PAS website for medical practitioners that covers this that you could draw your GPs attention to.

pernicious-anaemia-society....

My levels are always well over the top of the measurable range on the normal assay methods and that's where I need my levels to be to feel okay.

Lynne0762 profile image
Lynne0762

GP gastroparesis? Is that related to b12?

Not what you're looking for?

You may also like...

Where on Earth Do We Go From Here??

Good Evening to all who read this. My 28 year old daughter is about 28 weeks pregnant with 1st...
roddogsbody profile image

So where do I go from here?

Newest blood test shows: B12 over 2000 (I said that was because I'd just had 6 injections & you...
KTMac profile image

Where do I go to?

I am a 60 year old male, I don’t know if I have PA, B12 deficiency or other. I have a number of...
Isok profile image

Often symptomatic despite regular treatment - where to go from here?

I was diagnosed with PA in 2010 and following administration of the loading doses was commenced on...
Cymraes84 profile image

Eeek...Where do I go from here?.. totally unexpected B12 test result...

Well this is my latest news and problem... I have been suffering from symptoms of B12 deficiency...
Cybrook profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.