Hello everyone, I have been advised by people on the Thyroid Forum to ask on here if anyone can give me advice.
I was suffering from extreme fatigue and painful feet/ankles/lower legs. I went to my GP and was diagnosed 6 weeks ago as being hypothyroid and deficient in both vitamins B12 and D. I am taking Levothyroxine 50mcg daily and vitamin D supplements. I was given 6 x 1mg injections of B12 over a 2 week period and then told to take 500mcg supplements daily. I began these straight away (Methylcobalamin) but within a week my leg/foot pain returned. I therefore began taking 1000mcg daily sub-lingually but my symptoms have not improved.
I am due to have my thyroid levels checked in 2 weeks but my GP wants me to take B12 supplements for 3 months before re-checking my B12 level.
I honestly don't know whether these pains are related to anything that I am being treated for but would really appreciate your thoughts and/or advice.
Thanks.
Written by
SheNew
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could you clarify what country you are in - treatment regimes vary from country to country - the ones most frequently mentioned on this forum relate to the UK.
oral can be effective for some people but doesn't necessarily work for everyone. People also respond differently to different forms of B12 so some people do find that methyl really does nothing for them.
So, you could try finding a high dose oral that is either cyano or hydroxocobalamin. You could also try adding an adenosyl sublingual/oral to the methyl.
The treatment protocol in the UK recommended by NICE is different if you have neurological involvement from the protocol which has been followed in your case - ie if neurological involvement then loading shots should continue until improvement stops - ie 3x weekly until improvement stops (with a review at 3 weeks) - followed by maintenance every 8 weeks - though even that is a long way from being adequate for some of us.
The doses you mention aren't licensed for treatment in the UK but I believe they are licensed in the US.
Suggest you make a list of all symptoms that could be related to B12 deficiency (no guarantee that they all are because of overlap with vitD and thyroid problems) and monitor how these change with time
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