Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,441 members • 23,719 posts

All posts for July 2017

Lp-Plac test

Hi, I've been having Lp-Plac tests for 3 years with borderline results. However this year the unit of measurement have changed making it difficult to compare...

Hi, I've been having Lp-Plac tests for 3 years with borderline results. However ...

owent

•7 years ago

1 Reply

Advice please

Hi. I have recently been told that I have subclinical Hypothyroidism with high antibodies. Plus :- B12 196 (197-771) Folate 2.1 (2.0-16.7) Ferritin 60.9...

Hi. I have recently been told that I have subclinical Hypothyroidism with high a...

AngieAsh

•7 years ago

8 Replies

Symptoms getting worse

I was diagnosed as b12 deficient around a year ago, had the six injection then another injection every 12 weeks. I have neurological symptoms but the doctor...

I was diagnosed as b12 deficient around a year ago, had the six injection then a...

Alfabeta

•7 years ago

8 Replies

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Lp-PLA2 units of measurement?

Hi I've had Lp-PLA2 tests for the past 3 years with borderline results The units of measurement seem to have changed this year so I can't compare last years...

Hi I've had Lp-PLA2 tests for the past 3 years with borderline results The unit...

owent

•7 years ago

1 Reply

My first week

This forum seems to be full of stories about un-helpful and un-sympathetic GPs, so I am sure, you will be glad to hear my (totally different story). It started...

This forum seems to be full of stories about un-helpful and un-sympathetic GPs, ...

bambuko

•7 years ago

7 Replies

pernicious anemia?? but high b12

hi there I'm rather embarrassed but don't know where else to turn to but social media. I'm a registered nurse but I find myself confounded by my ongoing...

hi there I'm rather embarrassed but don't know where else to turn to but social ...

Hidden

•7 years ago

21 Replies

Could I please ask for your thoughts on this?

Hi, all... I've been at death's door for some time and had a blood test at the GP a while back. I suspected thyroid issues, but it covered various other...

Hi, all... I've been at death's door for some time and had a blood test at the ...

NWreck

•7 years ago

6 Replies

to much b12

Hi my b12 was 150 they gave me 2 injections of b12 and im way to high no well have being for 6 mounths 1000 over is this bad .

Hi my b12 was 150 they gave me 2 injections of b12 and im way to high no well ha...

pyrimid

•7 years ago

2 Replies

Folate levels?

Hi Could anyone please comment on my folate levels? I have been self treating a B12 deficiency for over a year now using methylcobalamin tablets and spray sub...

Hi Could anyone please comment on my folate levels? I have been self treating a...

seamail57

•7 years ago

4 Replies

Low iron

Hi there I posted last week for the first time about my IF pernicious anaemia and had bloods taken as I have been feeling dreadful. GP says I have low iron...

Hi there I posted last week for the first time about my IF pernicious anaemia a...

AnneCh1

•7 years ago

1 Reply

Neurological symptoms for 2.5 months, negative on all investigations and vit b12 levels 364 pg/ml

I am a 23 year old normally completely healthy women and I would appreciate some advice regarding my vitamin b12 levels. Long story short I am living in...

I am a 23 year old normally completely healthy women and I would appreciate some...

Hm1212

•7 years ago

6 Replies

B12 injections at 'beauty' clinic

Hello, I'm also new here, but found all your posts incredibly informative and inspiring. I've been having a tough time with symptoms such as fatigue, pins and...

Hello, I'm also new here, but found all your posts incredibly informative and in...

Tara-

•7 years ago

28 Replies

Could these results,symptoms indicate anaemia ?

Hi everyone , I have tested positive on anti TPO antibodies indicating Hashimotos previously ,High Ra factor. I am deficient in folate, vitamin D. Just got...

Hi everyone , I have tested positive on anti TPO antibodies indicating Hashimot...

sabre4

•7 years ago

7 Replies

Let down by GP

Hi. I'm completely new to all this. It's been quite a shock TBH. I had a B12 reading of 113. Doc is to give me three injections a week for next two weeks and...

Hi. I'm completely new to all this. It's been quite a shock TBH. I had a B12 rea...

Orpheusss

•7 years ago

14 Replies

Nitrous Oxide & B12

I am just after some clarity on the subject and I know many of you here are very knowledgeable. I'm just a newbie to B12!! I recently read some info and...

I am just after some clarity on the subject and I know many of you here are very...

brighter84

•7 years ago

11 Replies

Is this it? How I am supposed to be? Trying for something different.

I am really lost at the moment. Don't know if I can take much more feeling like this. Stated B12 sublingual and vit D sublingual alongside multivitamin. Went...

I am really lost at the moment. Don't know if I can take much more feeling like ...

Lizzie69

•7 years ago

12 Replies

Antibiotics (Erythromycin) and B12

I was feeling unwell 2 weeks before my last B12 jab, so much so I snuck in a week early without being queried this time. However I didn’t notice the usual post...

I was feeling unwell 2 weeks before my last B12 jab, so much so I snuck in a wee...

carer999

•7 years ago

3 Replies

questions on b12

Hello everyone,I just joined and my question is.what type of B12 should I take for low blood count.The Doctor told me to get some B12 or he will give me the...

Hello everyone,I just joined and my question is.what type of B12 should I take f...

fiestyblonde

•7 years ago

7 Replies

Measuring B12 levels

Hi everyone, I don't have PA, but I do have a thyroid condition which usually comes alongside low B12 levels. When I was initially diagnosed with the...

Hi everyone, I don't have PA, but I do have a thyroid condition which usually c...

foxrabbit

•7 years ago

3 Replies

Update, still no firm diagnosis

Hi folks, I haven't been on here for a while but thought I'd write an update. I have been on alternate day B12 injections (SI) since May. The only symptom that...

Hi folks, I haven't been on here for a while but thought I'd write an update. I ...

AmyG6500

•7 years ago

9 Replies

Rip off Ampule cost on NHS

Hi, I have the 3 monthly B12 injections and am getting fed up that I have to pay £8 + prescription cost for a single amplule, tried to get 4 or 5 (pack) as...

Hi, I have the 3 monthly B12 injections and am getting fed up that I have to pay...

philward

•7 years ago

33 Replies

Questions from a person new to B12 deficiency...

Hi everyone, I have been reading through lots of your posts, and you seem to give each other wonderful advice and support! I wonder if anyone can answer a...

Hi everyone, I have been reading through lots of your posts, and you seem to gi...

Hidden

•7 years ago

4 Replies

B12 ant travel

I decided to self inject at the start of the year due to doctor refusing to inject more regularly than every 3 months. After a period of experimentation I have...

I decided to self inject at the start of the year due to doctor refusing to inje...

Coachlady11

•7 years ago

6 Replies

Anyone able to help me with latest Haematology results ?

Latest results from Haematologist have arrived: Homocysteine: normal 7.2 umol/L Folate: normal 6.2 ug/L Active B12: normal >128...

Latest results from Haematologist have arrived: Homocysteine: normal 7.2 umo...

Cherylclaire

Forum Support•7 years ago

17 Replies

Throwing an absolute fit at Haematologist!

Son now 19, Gastritis diagnosed Nov last yr, family history of PA. Haemo appt today confirmed low B12 MMA 216 (Holo 31 Dropped since last tested,) symptoms,...

Son now 19, Gastritis diagnosed Nov last yr, family history of PA. Haemo appt to...

SarahFerguson

•7 years ago

3 Replies

New to self-injecting - subcut vs IM advice, please?

Hello everyone, I'm new on here. As appears to be many people's experience, my GP is withdrawing my B12 injections, despite ongoing neurological symptoms. I'm...

Hello everyone, I'm new on here. As appears to be many people's experience, my G...

Jennylind

•7 years ago

8 Replies

B12 blood tests after supplementing?

About 18 months ago after developing neurological symptoms and other symptoms (such as breathlessness) and being told that my serum B12 level was "in range"...

About 18 months ago after developing neurological symptoms and other symptoms (s...

seamail57

•7 years ago

6 Replies

B12 and rapid feeling better, and then not....

Sorry - asking more questions and a discovery. I am getting B12 injections weekly (from 2x a week) and I feel much better for a day or so, and then symptoms...

Sorry - asking more questions and a discovery. I am getting B12 injections week...

Lorilee60

•7 years ago

9 Replies

Self Injection

Hi Everyone, As requested by my GP I have just let the practice nurse watch me do my first self injection, I was in and out in the shake of a lambs tail with...

Hi Everyone, As requested by my GP I have just let the practice nurse watch me ...

pitney

•7 years ago

4 Replies

B12 injections stopped... HELP!

Okay Hi i have been having b12 injections for 9 years. After being diagnosed with PA at 17. Was told i was on them for life and after around 3/4 years then...

Okay Hi i have been having b12 injections for 9 years. After being diagnosed wit...

Frankiebee26

•7 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2017

Lp-Plac test

Advice please

Symptoms getting worse

Lp-PLA2 units of measurement?

My first week

pernicious anemia?? but high b12

Could I please ask for your thoughts on this?

to much b12

Folate levels?

Low iron

Neurological symptoms for 2.5 months, negative on all investigations and vit b12 levels 364 pg/ml

B12 injections at 'beauty' clinic

Could these results,symptoms indicate anaemia ?

Let down by GP

Nitrous Oxide & B12

Is this it? How I am supposed to be? Trying for something different.

Antibiotics (Erythromycin) and B12

questions on b12

Measuring B12 levels

Update, still no firm diagnosis

Rip off Ampule cost on NHS

Questions from a person new to B12 deficiency...

B12 ant travel

Anyone able to help me with latest Haematology results ?

Throwing an absolute fit at Haematologist!

New to self-injecting - subcut vs IM advice, please?

B12 blood tests after supplementing?

B12 and rapid feeling better, and then not....

Self Injection

B12 injections stopped... HELP!

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