Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,094 members • 23,248 posts

All posts for July 2017

New Tests...need help deciphering

Hi everyone, So after my horrible relapse in June/July i saw my GP and he prescribed B12 every other day. I feel so much better. Unbelievable. Thank God I...

Hi everyone, So after my horrible relapse in June/July i saw my GP and he presc...

•7 years ago

Robert 50

I have finished my six B 12 injections now, I have to have one more injection in 12 weeks time, can anyone recommend what I should take with in the next 12...

I have finished my six B 12 injections now, I have to have one more injection in...

•7 years ago

B12 deficiency?

Ive recently been having neurological symptoms (numb cold feet) and have started researching b12 deficiency and realized I have a lot of the symptoms. I've had...

Ive recently been having neurological symptoms (numb cold feet) and have started...

•7 years ago

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Not feeling good after last injection

Hi I had my loading doses which finished in April . Next regime was 3 monthly . I felt the best I have in years as my b12 went from 250 to 2000 . My bloods...

Hi I had my loading doses which finished in April . Next regime was 3 monthly . ...

•7 years ago

Oh Dear I think have rattled my GP with request for action on low B12 discovered by chance 10 months after test

I am 56 yr old female. In last two years diagnosed with Hypothyroid, Severe OSA, COPD. On CPAP a year and thyroxine 2 years. Other drugs too numerous to list...

I am 56 yr old female. In last two years diagnosed with Hypothyroid, Severe OSA,...

•7 years ago

Follow up - loading doses done but now being told it's dietary?

I posted a few days back after my doctor put me on b12 shots due to it being low. Initially I was told I had low b12 back in September '16. I then had a...

I posted a few days back after my doctor put me on b12 shots due to it being low...

•7 years ago

It just seems new things are always popping up....

And I don't know if part of it is related to my b12 deficiency recovery. I have been on injections since May 4th, - started with that one, then one 3 weeks...

And I don't know if part of it is related to my b12 deficiency recovery. I have...

•7 years ago

One day On, another day off while on B12 injections

Hi everyone, I desperately need your help here, Please..? A month ago, one day (8th June 2017- Black day of my life), I woke up with heavy head and dizziness,...

Hi everyone, I desperately need your help here, Please..? A month ago, one day ...

•7 years ago

Is there a difference between US guidelines and U.K. Guidelines for treatment of PA? Also iron treatment question...

This may be a stupid question but here goes! Do doctors in United States abide by or refer to the U.K. guidelines since this is where treatment for Pernicious...

This may be a stupid question but here goes! Do doctors in United States abide b...

•7 years ago

Dosage

What is the daily dosage recommnded for Vit B please?

What is the daily dosage recommnded for Vit B please?

•7 years ago

Lophakomp B12 injection

Dear All, is anyone else having trouble ordering Hydroxocobalamin on line ? i normally buy Lophakomp from Germany and as im just begining to understand what my...

Dear All, is anyone else having trouble ordering Hydroxocobalamin on line ? i no...

•7 years ago

My Experience

I wanted to share this, as this is my journey and I feel better than I have for years. I am confirmed as B12 deficient and now take daily Methylcobalamin (2...

I wanted to share this, as this is my journey and I feel better than I have for ...

•7 years ago

Vitiamin

I take b12 injections, is it ok to take a mutivitamin. My iron level is low and I find taking a iron pill gives me a lot of heart burn.

I take b12 injections, is it ok to take a mutivitamin. My iron level is low and...

•7 years ago

Nerve Damage & B12 Deficiency

About 12 months ago, after a series of falls, I was tested and advised borderline B12 deficiency, and advised a retest in 3 months and an appointment in the...

About 12 months ago, after a series of falls, I was tested and advised borderlin...

•7 years ago

Parietal cell autoantibodies

Can anyone advise? My 20 year old daughter had a full blood test done as she had various symptoms including bloating, headaches, neck pain hand tremor which...

Can anyone advise? My 20 year old daughter had a full blood test done as she had...

•7 years ago

Extra B12 injection for Fatigue?

I SI B12 on a regular basis (1 injection every 2 weeks) and take 400ug tablet daily. (Have been doing so for more than the last 6 months). I was feeling...

I SI B12 on a regular basis (1 injection every 2 weeks) and take 400ug tablet da...

•7 years ago

PA-How did you know you had this?

I have had thyroid disease for 20 years. I'm only in my 30's so for most of my life. I have always had IBS but totally unresolved with medication. Recently...

I have had thyroid disease for 20 years. I'm only in my 30's so for most of my l...

•7 years ago

What is the best diet for PA?

What do some of you eat for meals; a certain diet?

What do some of you eat for meals; a certain diet?

•7 years ago

Active B12 test St Thomas

Hi Everyone, Just wondering if someone could please tell me how I can order an Active B12 test from St Thomas's London. I have been on the website but can't...

Hi Everyone, Just wondering if someone could please tell me how I can order an A...

•7 years ago

Parietal cell antibodies and ifa testing questions

I recently received the book "what you need to know about pernicious anemia and vitamin B12 deficiency". I have managed to read through chapter 4 which...

I recently received the book "what you need to know about pernicious anemia and ...

•7 years ago

Starting to self inject! All advice appreciated! :)

Hi, After a long, disastrous road, my mum is now at the stage of beginning to self inject. Obviously she feels horrendous so we are looking for some advice of...

Hi, After a long, disastrous road, my mum is now at the stage of beginning to s...

•7 years ago

Folate supplementation

Hello all, Have been reading about the importance of folate with B12. I take a standard multivit/mineral supplement which contains folic acid, should I...

Hello all, Have been reading about the importance of folate with B12. I take a s...

•7 years ago

Seeking advice prior to GP visit (low B12 test)

Hi, Only recently found this forum but it looks like a very useful resource so I can see I'll be spending some time reading! I will try to keep this post...

Hi, Only recently found this forum but it looks like a very useful resource so...

•7 years ago

What happens when a parent suspects child has PA?

Another post on Martyn Hooper's blog that had me shouting at the computer screen.......

Another post on Martyn Hooper's blog that had me shouting at the computer screen...

•7 years ago

B12 and Folic Acid

After completing a course of 6 B12 injections. My GP then decided put me on Folic acid. Will i still require further B12 injections at some time.

After completing a course of 6 B12 injections. My GP then decided put me on Foli...

•7 years ago

Got my legs back and feeling much better since I found a new doctor

After being found to have B12 deficiency (206) and fighting with my doctor who only wanted to give me one shot, I found another doctor who was up on the...

After being found to have B12 deficiency (206) and fighting with my doctor who ...

•7 years ago

Will intrinsic antibodies show up even if b12 normal due to taking b12 tablets?

Hi all, I just wanted to get some advice if possible. I have hashimotos for the last ten years but never felt right despite my thyroxine apparently correcting...

Hi all, I just wanted to get some advice if possible. I have hashimotos for the...

•7 years ago

Latest bloods what do you think

OK got my results will put ranges in brackets, medication at the moment b12 jabs every 8 wks, folate 1 a day ferrous sulphate 1 a day fultium (vit d 800g)...

OK got my results will put ranges in brackets, medication at the moment b12 jabs...

•7 years ago

Just had my first B12 injection

After complaining about fatigue for nearly 15 years, I had the TATT blood tests done last year. The results (verbal) all came back normal. A couple of weeks...

After complaining about fatigue for nearly 15 years, I had the TATT blood tests ...

•7 years ago

New here and desperate for advice on B12 deficiency

Hello I'm new here and desperately looking for some advice. My Mum has recently been diagnosed with B12, vitamin D and potassium deficiency although a...

Hello I'm new here and desperately looking for some advice. My Mum has recently ...

•7 years ago

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