Only recently found this forum but it looks like a very useful resource so I can see I'll be spending some time reading!
I will try to keep this post short, but I'd be grateful for any advice so that I can be more informed when I see my GP this week (I'm in the UK)
I have recently had a blood test (arranged by a neurologist). I haven't seen the full results yet, but have been copied in on a letter to my GP noting that my Vitamin B12 (118ng/L) and Vitamin D (41mmol/l) levels are low and that she should arrange the 'appropriate supplements"
I was referred to the neurologist from an orthopaedic consultant, who sent me for an MRI and EMG for potential cubital tunnel (These suggested nothing that could be treated by surgery).
The initial symptom that led to that referral for me was pins and needles in fingers, and loss of feeling (something I notice since I am an electrician and work with tools) to the extent I would occasionally drop screwdrivers when gripping them.
The neurologist has referred me for a brain MRI and SSEP, but in the meantime requested some bloods, which appear to have picked up the serious deficiency in B12.
It is of course easy to read a list of symptoms for anything and feel that they fit you, but having now read the ones for B12 deficiency / PA, they seem to match very closely with issues I have been noticing or have lived with - specifically:
noticeable decline in spatial awareness in the last 12 months
Loss of memory - specifically forgetting names/words on occasion
tingling/pain in fingers
depression (Was on anti depressants for approx 10 years - stopped last year)
The only medication I currently take is a fairly low dose sleeping pill for insomnia (Something I had put the lethargy possibly down to as it often hits in the morning for me)
I am not vegan or vegetarian, so should be getting enough B12 in my diet I think. I eat a lot of chicken and love Marmite! I do not always eat as healthily as I should, but have improved following a high cholesterol test a year ago. I limited my egg and cheese input from then on, but still have some.
When I rang my doctors to follow up on the consultants letter they had not processed it yet so I made an appointment. I am quite happy with my GP and she seems very thorough, but clearly I will only have a limited time with her, so I am wondering what the best areas of discussion will be with her...
I am not clear yet whether the bloods that were taken included an IF test - if not I gather this would be a way forward to check for PA? Is the Schilling test something that is commonly used in the UK too? Should I expect to see a test for Folate levels if not already taken too?
I've read the NICE guidelines linked from another post which do seem quite clear that the treatment is likely to be injections. regularly at first and then occasionally. Once I got the letter I have been taking some high dosage B12 supplements (2mg daily) but if the issue is PA I gather the body uptake can be much lower.
In one sense it is nice to potentially find a 'cause' for some of the symptoms that I've been experiencing, but of course it also adds new things to feel anxious about!
Apologies for the length, but any advice gratefully received.