I am 56 yr old female. In last two years diagnosed with Hypothyroid, Severe OSA, COPD. On CPAP a year and thyroxine 2 years.
Other drugs too numerous to list but Omeprazole and Lansoprazole are included. 4 years on immunotherapy/chemotherapy and steroids for Uveitis ending 2015.
This month had SVT for 9 hours with heart rate of 200 throughout, into casualty and treated with drug that stopped it.
I am completely wiped out all the time, have mobility issues with very painful joints now and genuinely think I am going crazy. Strange dreams, hallucinations, paranoia etc etc etc. Stomach issues long term. Severe sleep apnoea with 63 events per hour! COPD - on loads of drugs for this.
Frankly I am sick to death of it all now and want a life.
Recently seen by rheumatologist prior to starting anti TNF for uveitis. HIs letter to GP said I had a low B12 of 249. I asked him when this result was from. Response that it was September 2016!! and was 149 , not the 249 stated in his letter. I knew nothing about this result but when I researched low B12 I was shocked by the range of thus far unexplained symptoms that I have had for some time. SO I rang GP to ask whether I should come in for a retest after finding out that GP did this test and had this result that they didn't share with me. Rang GP again today to push someone to decide on me coming in for a retest and treatment plan. 7:45 pm - several calls from GP to landline and mobile (I was napping).message went on about how level was borderline ( not according to research and guidelines I have seen today) and that other blood results didn't ring any alarm bells so not a big issue........but ring in If I want to discuss. Yeah I want to discuss ! I get the impression that I am going to have an uphill battle from the off given the GPs dismissive tomes - which I understand is common for patients with B12 issues.
When you see the damage low B12 can do and the ignorance of the medics we rely on It is a worry. I wonder how hard I will have to fight to get correct tests and treatment and whether I have the strength for the potential conflict.