Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2017

Patient Opinion and Care Opinion Websites.

Just to say I have perviously posted stories on this website which at least in Scotland are shared with some NHS and Social Care agencies also interested...

Just to say I have perviously posted stories on this website which at least in S...

Panpal

•7 years ago

5 Replies

My results

Hi everyone I know my b12 low still waiting for Dr to contact me . Just wondering if anyone notices anything I should mention. Regards Sharon

Hi everyone I know my b12 low still waiting for Dr to contact me . Just wo...

shal61

•7 years ago

7 Replies

New to me

Hello! This is all a bit new to me. But my heart sinks seeing some of the problems other people have had. Also because of the difficulty I have had previously...

Hello! This is all a bit new to me. But my heart sinks seeing some of the probl...

Panpal

•7 years ago

6 Replies

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Accuracy of at home homocysteine tests

Has anyone taken the medichecks at home homocysteine test and an NHS test? Just wondering if anyone can comment on the accuracy of the at home test? ETA:...

Has anyone taken the medichecks at home homocysteine test and an NHS test? Just...

Hidden

•7 years ago

15 Replies

B12 dropping each month

Each month my B12 has lowered but my doctor told me today that she didn't want to start me on injections until I had my Endo appointment ( Hypothyroidism) in 2...

Each month my B12 has lowered but my doctor told me today that she didn't want t...

HypoF3XXY

•7 years ago

13 Replies

New PAS leaflet

Hi, Noticed that there is a new leaflet on PAS website for PAS members about PA treatment is for life....

Hi, Noticed that there is a new leaflet on PAS website for PAS members about PA...

Sleepybunny

•7 years ago

1 Reply

Itchy rash after 7th injection

My injection the day before yesterday was quite painful (7th of alternate day injections ) and went red and inflamed looking afterwards. I thought it may...

My injection the day before yesterday was quite painful (7th of alternate day in...

Jesswoozer1

•7 years ago

5 Replies

Close to tears

Hello, I hope someone may be able to advise me and I'm copying this to the Thyroid UK pages as well. I was diagnosed with Pernicious Anaemia in December 2016...

Hello, I hope someone may be able to advise me and I'm copying this to the Thyro...

janepurser

•7 years ago

26 Replies

Antidepressants and dependency

Looks like there are growing concerns about antidepressants causing dependency - ie being addictive. Just thinking about how often people get told B12 is...

Looks like there are growing concerns about antidepressants causing dependency -...

Gambit62

Administrator•7 years ago

4 Replies

Think I have been a bit dense!

I recently posted that I was not getting the benefit from my B12 injections also the tingling I had in my feet going up my legs prior to diagnosis has...

I recently posted that I was not getting the benefit from my B12 injections also...

butterflyEi

•7 years ago

2 Replies

What can we All do?

I have recently moved from Australia to England. In Aus I was diagnosed with and being treated for B12 deficiency, receiving jabs every 2-3 weeks due to my...

I have recently moved from Australia to England. In Aus I was diagnosed with an...

Ausuk

•7 years ago

30 Replies

Neurologist appointment wasn't too bad yesterday but still need help

The neurologist was nice: gentle, calm and listened to me, even though I was not at my best and ranted on a bit. Hard to get through 2 1/2 years of stuff,...

The neurologist was nice: gentle, calm and listened to me, even though I was not...

Cherylclaire

Forum Support•7 years ago

7 Replies

Consultant gastroenterologist

Hi all, I saw the consultant yesterday and he is doing blood tests for Coeliacs and an intrinsic factor, as I pointed out the last blood result was only 2ng/l...

Hi all, I saw the consultant yesterday and he is doing blood tests for Coeliacs ...

Cali25

•7 years ago

1 Reply

Drugs thought to deplete b12

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http://m.mybwmc.org/?url=http%3A%2F%2Fwww.mybwmc.org%2Flibrary%2F33%2F000717&utm...

Steap

•7 years ago

6 Replies

B12 and acne

Hi I had 6 b12 injections three months ago and my skin has gone awful as after the injections I started taking oral supplements for two months. I have never...

Hi I had 6 b12 injections three months ago and my skin has gone awful as after t...

Laurajayne123

•7 years ago

3 Replies

PLEASE HELP!

Hi, my name is Kennedy, I am 21 years old but I feel like I'm 90. It all started at the end of May/ beginning of June 2016 with nausea, vomitting and heartburn...

Hi, my name is Kennedy, I am 21 years old but I feel like I'm 90. It all started...

kennedy333

•7 years ago

19 Replies

help please readings

hello please can anyone tell me as compleltly fogged is this low doctor says normal but feel so bad, looking cannot find same readings on line. serumB12...

hello please can anyone tell me as compleltly fogged is this low doctor says nor...

shal61

•7 years ago

10 Replies

Diagnosing PA

If I have these symptoms of B12 deficiency Tinnitus Tremor Paresthesia - numbness, tingling and pain Confusion / disorientation Weakness of legs, arms, trunk...

If I have these symptoms of B12 deficiency Tinnitus Tremor Paresthesia - numbne...

Catriona1505

•7 years ago

16 Replies

Blood tests suggest anaemia but undiagnosed for over 10 years!

Hi everyone, I've recently gained access to all my past blood test results. Below are some of the details of my Full Blood Counts since 2006. I was always...

Hi everyone, I've recently gained access to all my past blood test results. Bel...

hypo_guy

•7 years ago

8 Replies

Thoughts please

Follow up b12

Natty91

•7 years ago

2 Replies

Following earlier post about B12 follow up

Blood results for 6 month follow up b12 and full blood count. Thoughts please? Should i be worried about anything? Admin Edit - Image deleted to protect...

Blood results for 6 month follow up b12 and full blood count. Thoughts please? S...

Natty91

•7 years ago

2 Replies

Homocysteine meaning ?

Hello everyone so extremely happy to find this intelligent site, so impressed, beyond❤️ I have a question about homocysteine result a nuerologist PA just gave...

Hello everyone so extremely happy to find this intelligent site, so impressed, b...

Carae

•7 years ago

8 Replies

Understanding intrinsic factor

Just wondering....my intrinsic factor was 2 last year. The test was done immediately after my injection,one the week before and loading doses 3 months...

Just wondering....my intrinsic factor was 2 last year. The test was done immedia...

Justified

•7 years ago

2 Replies

Shaking hands

hi all I've been to doctors today and told them I cant stop my hands from shaking ,she said it could be b12 playing up or it could be diabetes or thyroid .i...

hi all I've been to doctors today and told them I cant stop my hands from shakin...

kyanah

•7 years ago

4 Replies

Proton pump inhibitors and PA..

Am i right in thinking i should not worry about taking PPI's as I am having b12 jabs ??

Am i right in thinking i should not worry about taking PPI's as I am having b12 ...

xJJx

•7 years ago

2 Replies

Follow up B12 bloods

Hey, i was diagnosed with being B12 deficent in October last year, i took my 5 loading doese in two weeks and waited 6 months for a follow up blood test which...

Hey, i was diagnosed with being B12 deficent in October last year, i took my 5 l...

Natty91

•7 years ago

6 Replies

Very happy with B12 Shots

Hi Guys, I just want to let you know where I am at, I had three loading, 1 a week for a month, and onto my second in a fortnight. My Dr will review after...

Hi Guys, I just want to let you know where I am at, I had three loading, 1 a w...

Hidden

•7 years ago

4 Replies

Long standing PA -can I ask for blood tests?

I don't know if once diagnosed with PA, I can ask for any tests on N.H.S., as new symptoms have appeared. Pins and needles and concentration/ confusion issues...

I don't know if once diagnosed with PA, I can ask for any tests on N.H.S., as ne...

Doubleblank

•7 years ago

11 Replies

Very high homocysteine shown on private blood test denied by GP! Scared but vindicated 😤

So ...after many years of symptoms, a massive decline after general anaesthetic 9 weeks ago,a family history of PA, being diagnosed with numerous things....ME,...

So ...after many years of symptoms, a massive decline after general anaesthetic ...

Jesswoozer1

•7 years ago

21 Replies

Reputable labs for B12 testing?

Can anyone recommend any labs for private B12, folate, ferritin, intrinsic factor, etc testing? My daughter has all the symptoms of B12 deficiency. Has been...

Can anyone recommend any labs for private B12, folate, ferritin, intrinsic facto...

dorigen66

•7 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2017

Patient Opinion and Care Opinion Websites.

My results

New to me

Accuracy of at home homocysteine tests

B12 dropping each month

New PAS leaflet

Itchy rash after 7th injection

Close to tears

Antidepressants and dependency

Think I have been a bit dense!

What can we All do?

Neurologist appointment wasn't too bad yesterday but still need help

Consultant gastroenterologist

Drugs thought to deplete b12

B12 and acne

PLEASE HELP!

help please readings

Diagnosing PA

Blood tests suggest anaemia but undiagnosed for over 10 years!

Thoughts please

Following earlier post about B12 follow up

Homocysteine meaning ?

Understanding intrinsic factor

Shaking hands

Proton pump inhibitors and PA..

Follow up B12 bloods

Very happy with B12 Shots

Long standing PA -can I ask for blood tests?

Very high homocysteine shown on private blood test denied by GP! Scared but vindicated 😤

Reputable labs for B12 testing?

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