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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for May 2017

Weakness in standing and shaking in hands and arms

Hi Everyone. I would like to know if weakness in standing and shaking in hands and arms are part of pernicious anemia. I started with the B12 shots about 7...

Hi Everyone. I would like to know if weakness in standing and shaking in hands ...

jpar

•7 years ago

4 Replies

Diagnosing PA

Can an enlightened soul out there tell me why doctors are only interested in using a positive antibody test for intrinsic factor to diagnose PA, when its false...

Can an enlightened soul out there tell me why doctors are only interested in usi...

Siouxiesue

•7 years ago

11 Replies

Low levels but still in range.

Having recently been diagnosed with an underactive thyroid, people on the thyroid board suggested I post on here for advice as my B12 and folate levels are in...

Having recently been diagnosed with an underactive thyroid, people on the thyroi...

DJ_1996

•7 years ago

4 Replies

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Neurologist tomorrow: anyone got any advice ?

This was a long wait and I don't want to waste my appointment, although not sure what to expect so it's a bit difficult to prepare for. What to take with me ?...

This was a long wait and I don't want to waste my appointment, although not sure...

Cherylclaire

Forum Support•7 years ago

18 Replies

Newly diagnosed B12 deficiency

Hi everyone, I'm new here and have received a diagnosis of B12 deficiency this week. Thankfully I had already done plenty of research before I was officially...

Hi everyone, I'm new here and have received a diagnosis of B12 deficiency this w...

fakeplastictwee

•7 years ago

20 Replies

Head pressure after increasing B12 dosage

About two months ago I started self-injecting hydroxocobalamin. I'm injecting 1ml weekly and on the whole I have been feeling much better though I did...

About two months ago I started self-injecting hydroxocobalamin. I'm injecting 1m...

Gaudygoat

•7 years ago

9 Replies

Remedies for awful indigestion?

I have PA and Hashimoto's and go through bouts of awful indigestion symptoms, regardless of what I eat. Normal remedies don't work, so I am guessing it is low...

I have PA and Hashimoto's and go through bouts of awful indigestion symptoms, re...

Agapanthus1

•7 years ago

16 Replies

B12d and Cortisol?

After a B12D diagnosis, mid December 2016, following a number of blood tests due to having "classic" B12 deficiency symptoms including big neurological one's,...

After a B12D diagnosis, mid December 2016, following a number of blood tests due...

Hidden

•7 years ago

4 Replies

Advice please

Hi I have had 4 b12 injections in the last month but it has now been changed from weekly to once every 3 months . As I haven't had one in the last 13 days iv...

Hi I have had 4 b12 injections in the last month but it has now been changed fro...

Andypandy30

•7 years ago

11 Replies

PA - Fatigue

Heillo can I control my injections? I had my first injection 13 days ago and the fatigue is back!! I don't have another injection until July. Please can...

Heillo can I control my injections? I had my first injection 13 days ago and the...

Debbiscott16

•7 years ago

8 Replies

So on it goes................

saw a different consultant today - feel so much better having 3 b12 each week for two weeks, and then once a week. today consultant said that after a month I...

saw a different consultant today - feel so much better having 3 b12 each week fo...

jillcur39

•7 years ago

5 Replies

Folic Acid if doing SI

I'm reading that if you want to SI frequently you need to take folic acid at a high dose. Is it necessary to take 5mg daily if you choose to inject every other...

I'm reading that if you want to SI frequently you need to take folic acid at a h...

Steap

•7 years ago

15 Replies

Newly diagnosed.... anyone want to help a newbie?

Hi, I recently tested low for Vit B12. I have started the injections which I am getting 1 every week. I have been anemic since 1998 ( birth of last child) and...

Hi, I recently tested low for Vit B12. I have started the injections which I am...

Amtanken

•7 years ago

6 Replies

b12 injections

what exactly happens to your body when you are borderline b12 deficient, low folate just below border, and then have a b12 injection. Does it increase...

what exactly happens to your body when you are borderline b12 deficient, low fol...

ninja1

•7 years ago

1 Reply

low folate

do b12 jabs still work properly if folate is below range

ninja1

•7 years ago

8 Replies

b12 jabs spiked my blood pressure

I had B12 deficiency but not PA i am aslo hypothyroid and my folate is just under range but my ferritin is ok. Doctor wont prescribe folic acid as he said it...

I had B12 deficiency but not PA i am aslo hypothyroid and my folate is just unde...

ninja1

•7 years ago

2 Replies

Survey

1. When where you diagnosed with pernicious anemia? 2. How offten do you have B12 shots? 3. Did you start feeling better at some point after starting...

1. When where you diagnosed with pernicious anemia? 2. How offten do you have ...

Cwilli

•7 years ago

21 Replies

Newbie help with blood results please

Diagnosed 10 years ago with Graves disease, 2 years ago total Thyroidectomy. I have been sent to this site from Thyroid UK regarding my B12 and folate blood...

Diagnosed 10 years ago with Graves disease, 2 years ago total Thyroidectomy. I h...

crinkle28

•7 years ago

1 Reply

Brain like a fog !

Hi all, I'm new here, I'm a mature student half way through my study course when I started to struggle with recalling stuff I'd learned and generating words...

Hi all, I'm new here, I'm a mature student half way through my study course when...

Paleone

•7 years ago

5 Replies

high ferritin - low serum iron

Morning all, spoke to GP Thursday, told her all the latest symptoms since they stopped my iron meds that I've previously had to take for some 18 years (head...

Morning all, spoke to GP Thursday, told her all the latest symptoms since they s...

catalonia13

•7 years ago

3 Replies

Acne pa

I would like to make a comment regarding acne that seems to go hand in hand with PA. I used to have beautiful skin but it changed with PA symptoms at its...

I would like to make a comment regarding acne that seems to go hand in hand with...

kmalbasich

•7 years ago

16 Replies

I don't understand...

1. Why would supplementation of b12 affect an MMA/homocysteine test. Are these measures not a reaction to b12 and wouldn't be lower if supplementing? 2. If...

1. Why would supplementation of b12 affect an MMA/homocysteine test. Are these m...

MiniMum97

•7 years ago

2 Replies

Nascobal Nasal Spray-Any users?

Hi, I have neuropathy and other symptoms including hair loss which has gotten better since I've had the injections. My neurologist says I'm B12 deficient, I...

Hi, I have neuropathy and other symptoms including hair loss which has gotten be...

Crzygirl

•7 years ago

7 Replies

B12 after loading dose

My B-12 levels were below 100 and I did one week of B12 injections. On my last day of the loading dose, I had an appt with my hematologist and he did a bunch...

My B-12 levels were below 100 and I did one week of B12 injections. On my last d...

TenilleMarie

•7 years ago

3 Replies

Different B12 injections?

Hello, My mum has B12 injections every 3 months following an ileostomy. She used to be full of energy after each one but since changing GP practice 6 or 7...

Hello, My mum has B12 injections every 3 months following an ileostomy. She use...

Babette

•7 years ago

6 Replies

Parietal Cell - negative

Hi Due to ongoing symptoms my Doctor recently ran a full blood test. This came back that I was low in total B12 (140 in a range of 160 - 900) and low active...

Hi Due to ongoing symptoms my Doctor recently ran a full blood test. This came ...

Betsy448

•7 years ago

4 Replies

New symptoms, pins and needles

Hi, I was recently told my B12, folate and iron were all low (124, 3 and 12) so I've now had the six B12 loading doses plus taking folate and iron tablets....

Hi, I was recently told my B12, folate and iron were all low (124, 3 and 12) so ...

Gissele

•7 years ago

1 Reply

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Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2017

Weakness in standing and shaking in hands and arms

Diagnosing PA

Low levels but still in range.

Neurologist tomorrow: anyone got any advice ?

Newly diagnosed B12 deficiency

Head pressure after increasing B12 dosage

Remedies for awful indigestion?

B12d and Cortisol?

Advice please

PA - Fatigue

So on it goes................

Folic Acid if doing SI

Newly diagnosed.... anyone want to help a newbie?

b12 injections

low folate

b12 jabs spiked my blood pressure

Survey

Newbie help with blood results please

Brain like a fog !

high ferritin - low serum iron

Acne pa

I don't understand...

Nascobal Nasal Spray-Any users?

B12 after loading dose

Different B12 injections?

Parietal Cell - negative

New symptoms, pins and needles

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive