Hi, my name is Kennedy, I am 21 years old but I feel like I'm 90. It all started at the end of May/ beginning of June 2016 with nausea, vomitting and heartburn no matter what I ate. My GP thought it was a virus, walking pneumoia ans then GERD. Things started to ease up a bit in August as I headed back ro school when my anxiety took me out forcing me to drop my classes and a few days later my symptoms returned and intensified, bringing new ones with them. I was referred to a GI specialist who after a few tests including a HIDA scan showed my gallbladder wasn't functioning and on Nov. 16th 2016 it was removed. I ended up in the ER that night with what they claimed was an allergic reaction to pain meds, but seeing as it has happened since then I think it was peripheral neuropathy, I had intense tingling pins and needles all over my body, couldn't walk without assistance and my hands were stuck in constant spasm. I was sent home hours later both times and told to follow up with my GP. A few days later my symptoms returned again bringing even more with them and was sent back to the GI who without doing a physical exam or any blood work told me I had IBS but my symptoms didn't match. He refused to treat or listen to any symptoms he deemed not to be a GI problem (upper abdomen pain he said was muscular, pins and needles in my constantly cold hands and feet, fatigue, significant weight loss, and shortness of breath). He told me to come back in 3 months and I knew I couldn't wait so I did some independent research as I got my CNA my junior year of high school. After using the medication to no prevail it was back to my GP after discussing all the new symptoms my Dr. ordered some tests all of which looked normal. By this point I'm not eating much, not going to school, unable to work and progressively getting worse with no answers and a Dr. who was not listening and didn't seem to care. After a friend suggested having my vitamin B12 levels checked I did some research and had to beg my Dr. to test it at my next appointment it was low at 240 and I am vitamin D deficient as well. I again did some research and was directed to a page about pernicious anemia and all of the symptoms fit like nothing else I had discovered. She tested intrinsic factor and when it came up normal she stopped put me on some supplements and told me we would recheck in 3 months! 3 months, what was I supposed to do sit around and keep getting worse?! I decided to switch GPs and my new one is pretty receptive. Because of symptoms involving my eyes and head she ordered an MRI of my brain which showed a brain lesion. At a neurologist appointment she said she couldn't take MS off the table but didn't necessarily think it was that either. To me this lesion points even more toward PA as I read a study that stated low B12 is associated with increased severity of white matter brain lesions, in my case I think it may have caused the lesion. But the B12 and parietal cell tests came back "normal" B12 was around 500 but I'm taking supplements. This broke my spirits because after a year of hell I just want the answers and this is only making it harder as doctors think it rules out PA but I have read people can be negative for parietal cells and intrinsic factor and still have PA. To make things worse my CBC has been normal no signs of anemia but I read 50% of people present without anemia.
My symptoms include: nausea, vomitting, heartburn, epigastric pain, headaches, pins and needles in hands and feet, cold hands and feet, fatigue, lightheadedness and weakness, bloating, diarrhea, loss of appetite, weight loss, mood changes, chills, shortness of breath, brittle nails, unsteadiness and balance problems, fast/ irregular heartrate, eye pressure and pain, floaters in eyes, pale/ yellowish skin, easy bruising, ringing in ears and low grade fever.
Autoimmune conditions seem to run in my family on my dad's side (lupus, crohn's, and hoshimoto's) and my sisters have lupus and down syndrome respectively. I was just in urgent care today and they want to send me back to my GP (who tried to pass me off) to do a colonoscopy possibly. This has been going on for a whole year now, I have lost 100 pounds, had to miss my grandfather's 75th birthday party as I was in ER, I can't work, I can't eat much and I just feel like I have reached my breaking point. I just want my life back. I would appreciate any advice.
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