What to ask.....?: Hi guys, I have a... - Pernicious Anaemi...

Pernicious Anaemia Society

32,669 members24,064 posts

What to ask.....?

Natty91 profile image
2 Replies

Hi guys,

I have a doctors appt booked for tomorrow regarding my B12 levels.

As you can probably see from my previous posts I had a blood test done in October last year and my level was just 120 (range 200-900). I had my loading injections and a follow up blood test in May. I rang the surgery to get my results was was told no further action was required as I was now within range (my levels had increased to just 208)!! So i bookedbthe appt as i personally thought my levels would have increased more after 5 injections. My folte level also dropped from 9.2 which was october and now only 4.9. I am taking follic acid tablets now and a B12 mouth spray. I still feel fatigued and get heart palpitations occaasionlly and the odd tummy upset here and there but other than these things i feel fine.

What questions should i be asking my doctor tomorrow?

Thanks 😊

Written by
Natty91 profile image
Natty91
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Gambit62 profile image
Gambit62Administrator

main q would be what they think caused you to become deficient in the first place. If it wasn't diet then it has to have been an absorption problem.

As B12 is absorbed in the ileum it will have been a problem there. whilst the body may store b12 in the liver it is released in bile into the ileum for reabsorption so this will at best be very inefficient and stores in the liver will be quickly depleted - so you will become deficient again.

BCSH guidelines (unless the absorption problem is treatable (eg h pylori infection) is treatment with maintenance doses. They do not support maintenance treatment on the basis of serum B12 results - further testing is deemed unnecessary unless there is reason to believe there is non-compliance with treatment.

Natty91 profile image
Natty91 in reply toGambit62

Thank you

Not what you're looking for?

You may also like...

Confused and frustrated

Hi, I'm new to the forum and desperate for advice so please bear with me if you can! I have been...

Help please!!

I am desperately trying to get some advice for my son who is 30 this week and was diagnosed with ME...
Belleblue profile image

What tests do I need to ask my GP for to rule out/diagnose PA?

Hello everyone, I apologise in advance as this post will be quite long but I want to give as much...

B12 results-please can someone advise?

B12/folate level  Serum vitamin B12 level > 2000 pg/mL [191.0 - 663.0]; Above high reference......
Milsean profile image

What to ask hematologist?

Hi everyone! I am finally getting in with a hematologist next week. I feel like this is my chance...
ElizabethL profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.