Fire lit!: Well had my GP appointment... - Pernicious Anaemi...

Pernicious Anaemia Society

32,318 members23,534 posts

Fire lit!

HypoF3XXY profile image
5 Replies

Well had my GP appointment today and what a difference my haematologist has made. My Levo has been upped to 100mg,with a view that it will be upped again I have been started on 400mg Iron (200mg twice a day) and I start 2 weeks of B12 injections on Monday then to 1-2 every 3 months. My GP apologised and said she will get me as near to 0.25 on my TSH as she can now that my Hematologist has confirmed without a shadow of doubt I have Hashis. So I am happy for now.

Written by
HypoF3XXY profile image
HypoF3XXY
To view profiles and participate in discussions please or .
Read more about...
5 Replies
HypoF3XXY profile image
HypoF3XXY

I love my Haematologist, my GP was good with my initial diagnosis then went to pot quickly, let my B12 get to 121 ( 198-771). He saw me last week and saw my blood result and sent her a letter immediately telling her exactly what he wanted done , a week later here we are. I expect many more fights but I have a good specialist on my side.

clivealive profile image
clivealiveForum Support

Hi HypoF3XXY keep an eye on your Folate level as this and B12 help iron to produce red blood cells.

HypoF3XXY profile image
HypoF3XXY

Thank you clivealive.

jpar profile image
jpar

Please be careful going up with thyroid meds. Go very slowly. Only adjust after several months. Thyroid meds build up in the liver and cells and you can go hyper very quickly. And trust me when I tell you that hyper symptoms are far worse than hypo. The level .25 is very low to the hyper side. 1-3 is optimal and for some people like me getting under 2 gives me hyper symptoms. If you start sweating a lot, having heart palpitations, migraine, lights in vision, new insomnia, especially from hot flashes, then your going hyper and need to back down the thyroid meds. I just don't want to see anyone go through what I've gone through with too much thyroid. You're going to be raising thyroid, b12 and iron at the same time, so you're system is going to ramp up quickly.

Ryaan profile image
Ryaan

"Thyroid meds build up in the liver and cells and you can go hyper very quickly. And trust me when I tell you that hyper symptoms are far worse than hypo"

Hi, advice needed please.

My wife was diagnosed as hypo last year, then put on meds by GP.

She's recently been referred to hospital specialist and he said she's hyper and put her on different meds!

Does this mean that u can be hypo but if meds are too strong u can turn hyper due to them and if ur hyper and meds f too strong u can turn hypo ?

My wife has bad symptoms now as she's hyper, but I'm confused as how the meds work and how they should treat her, as specialist said GP's been giving u wrong meds, ur not hypo, u r hyper ??

I'm a bit confused as to what's going on. She feels terrible.

I feel I can't do nothing to help with all this confusion.

Please advise.

Thankyou.

Not what you're looking for?

You may also like...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...

Bittersweet Bonds - Pernicious Anemia and the Doctor-Patient Dance

Not sure if this is any good but as I was hating my doctors it occurred to me how much I need them....

Am I wrong?,

My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct...