Update on decision to self inject - Pernicious Anaemi...

Pernicious Anaemia Society

31,931 members23,069 posts

Update on decision to self inject

Barry1955 profile image
8 Replies

Firstly, thanks to all replies to my last post about 7 days ago regards Gastro appointment.

I have started injecting every other day, and can feel a definite improvement in my moodswings, especially irritability ( which my poor Wife bore the brunt ) I also feel calmer and sleep better at night, although I `m not exactly ready to start marathon running yet ( or ever ).

I am taking a broad spectrum multi-vitamin with minerals to help the B12 work, and eat a banana with some orange juice in morning when `popping` my other meds.

As regards the actual deed of injecting, can anyone confirm it`s normal to sometimes hit a painful spot ( I re-site ), and have had a couple of incidents of bleeding on extraction, with one resulting in a 1" dia bruise ?

Also, as I have very little fat over my thigh muscle, would I get away with a smaller injection than the 23g x 1 " I`m using ? ( doesn`t hurt, but is more uncomfortable than when nurse injected into shoulder )

Many thanks,

Barry

Written by
Barry1955 profile image
Barry1955
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Gambit62 profile image
Gambit62Administrator

are you injecting intra-muscular or subcutaneous?

if you hit a veing then there will be some bleeding and it is quite possible to hit a small vein - particularly if doing subQ

Barry1955 profile image
Barry1955 in reply to Gambit62

I`m injecting I.M., and looking back, the 2 `bleeds` seemed to be from near the surface as could almost see a swelling ( a small vein )?

Like a lot of others, since self injecting, some symptoms feel worse and also having `new` symptoms, ie aches and pains. Probably nerves waking up and sending stronger signals me hopes !

Should I tell the Neuro that I have started to Self I nject ( because fed up of waiting since supposed diagnosis of P.A. in October 2016 and waiting for 2 G.P`s and now a Neuro, to decide if I`m going to be treated as per guidelines ) ?

Gambit62 profile image
Gambit62Administrator in reply to Barry1955

medics treating you really need to have the full picture so probably best to tell people though can't guarantee what the reaction will be.

Hope wedgewoods suggestion about thinner needle helps

tflynnhk profile image
tflynnhk in reply to Barry1955

Your doctor needs the whole picture, so tell them. Does not matter if they disagree with you, they simply need to know. My doctor strongly disagrees with my self injecting weekly, but she's learned to live with it :-)

Be careful about where you inject. There are specific areas that contain nerves. To hit a nerve can be very bad and extremely painful, I know from experience. If unsure, look it up! youtube.com/watch?v=HUFwaLw...

wedgewood profile image
wedgewood

You can use a thinner needle i.e. 25 gauge . I do , and it works very well .

fbirder profile image
fbirder

I have very little fat, so I use a purple 25G 1" needle for injections.

mardiray profile image
mardiray

I have been injecting my daughters for a few years, sometimes they bleed or a little b12 escapes and sometimes not. Sometimes it hurts quite a bit, and other times not. If you are quite thin then the needle will hit the muscle sooner, so maybe it doesn't need to go all the way in. I am quite thin and I push it most of the way in -sometimes it hurts and other times not.

As for the supplements; make sure you're taking at least 5mg folic acid if you're injecting alternate day or daily, and make sure you multi does not have more than 10mg of B6 in it,(b6 is the one that can be toxic at high levels as it is not expelled as the others are, and is stored). A good b complex would be best.

Make sure you get a good lot of potassium in your diet, not tablet form.

Galadriel1 profile image
Galadriel1

Hi I inject IM at least I think I do (that's the aim) lol. I sometimes have a really sore one and I take it out and re-site also (also change needle). I have had about 3 which have bled all over the place so assume in those cases I've hit a vein. It also bruises when this happens. I have to re-do or I would completely lose my botte! I have read on lots of the forums that it doesn't really matter if you do inject into a vein so I try not to worry about it too much.

You may also like...

Self injection update - as promised

but my first issue is the pain of the injection when in my thighs. I don't know if it's normal but...

Confusing change of decision about self injection after injections have stopped at GP surgery

Hi, I have 6 weekly injections at my doctors as I have PA. This works well for me and has done...

Update after self injecting and another blood test! B12 now >2000

since I was told my b12 was 153 and I was self injecting. I still have pins and needles in hands...

30 Injections and a Decision

After 30 injections I have still not seen any significant improvements. Although I've finally...

Self injecting methylcobalamin

am just looking for some advice with regards to self injecting. I have low B12 and fed up with...