Addisons anyone?: Hello All, I haven't... - Pernicious Anaemi...

Pernicious Anaemia Society

32,627 members23,989 posts

Addisons anyone?

expatkerry profile image
5 Replies

Hello All,

I haven't posted for a while as I've been so unwell. Some of you may recall that I was having really bad gastric symptoms which I put down to my PA. Things haven't improved, B12 levels are good getting regular injections, and I get iron infusions every three months. I should be good, right? But I'm eating less and less because I can't tolerate a lot of foods I'm now down to fish and a few vegetables. I get really bad pain across my shoulder blades, tingling in my hands, headaches, insomnia, constipation, diarrhea,dizziness, extreme fatigue, muscle weakness and last but not least depression. I asked my doctor for some tests to rule out Addisons I think she said yes to get rid of me; I sound like a mad woman to most doctors now. I did have hyperpigmentation on my face some years ago but not today, I do have patches of white spots on my arms and legs. As I've had some relief from steroids (it didn't last) I'm wondering if Addisons is the culprit. Does this ring any bells with anyone? any thoughts? Getting desperate!

Written by
expatkerry profile image
expatkerry
To view profiles and participate in discussions please or .
Read more about...
5 Replies
expatkerry profile image
expatkerry

Perhaps I should add that I'll get the results in a few days.

clivealive profile image
clivealiveForum Support in reply toexpatkerry

Come back here expatkerry when you have them please

kyanah profile image
kyanah in reply toexpatkerry

I have every single thing going on like u I'm in bed at moment my hubby taken boy to school as I'm breathless dizzy my whole body aches I asked doc to do addisons test he refused me .im getting doc out now as I feel so ill my whole body aches could it be my iron low .

expatkerry profile image
expatkerry in reply tokyanah

Sorry I've taken so long to reply but I was so unwell, then it's been a round of doctors visits. My Addisons test came back negative which is good news but still no answers. A doctor tried to give me PPIs this week (I've already had them and can't tolerate them) the next step is an endoscope procedure this time to see if I have eosinophilic esophagitis. At least things are moving. You need to insist that your doctor do some tests.

Sleepybunny profile image
Sleepybunny

"I do have patches of white spots"

Has GP ruled out vitiligo? This can be associated with b12 deficiency.

vitiligosociety.org.uk/inde...

Next link includes hyper and hypopigmentation of skin as possible symptoms of b12 deficiency.

b12deficiency.info/signs-an...

Vitiligo is also mentioned on PAS Symptoms Checklist

pernicious-anaemia-society....

Link about vitiligo

patient.info/doctor/vitilig...

I am not a medic just a person who has struggled to get a diagnosis.

Not what you're looking for?

You may also like...

Addisons disease

I’ve just had my urine cortisol test results back they’ve said contact my gp ASAP as it’s...

Snakes and Ladders

I've started a new regime of 10 day injections. Sc... sc... IM. I used to get a headache after...
Nackapan profile image

Please help a confused bean

Hi, So I've been experiencing symptoms of what I think is b12 deficiency but I haven't had it...

Is anyone else suffering with numbness, Pins&Needles and electric shock type pain?

I've had problems for a while now, The Gp has been pretty useless and I'm yet to get any result...
becca85 profile image

Can anyone help me please?

I'm looking for advice as I'm getting desperate, I've been unwell for 8 months now, at Christmas I...

Moderation team

See all
Foggyme profile image
FoggymeAdministrator
Gambit62 profile image
Gambit62Administrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.