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Pernicious Anaemia Society
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Addisons anyone?

Hello All,

I haven't posted for a while as I've been so unwell. Some of you may recall that I was having really bad gastric symptoms which I put down to my PA. Things haven't improved, B12 levels are good getting regular injections, and I get iron infusions every three months. I should be good, right? But I'm eating less and less because I can't tolerate a lot of foods I'm now down to fish and a few vegetables. I get really bad pain across my shoulder blades, tingling in my hands, headaches, insomnia, constipation, diarrhea,dizziness, extreme fatigue, muscle weakness and last but not least depression. I asked my doctor for some tests to rule out Addisons I think she said yes to get rid of me; I sound like a mad woman to most doctors now. I did have hyperpigmentation on my face some years ago but not today, I do have patches of white spots on my arms and legs. As I've had some relief from steroids (it didn't last) I'm wondering if Addisons is the culprit. Does this ring any bells with anyone? any thoughts? Getting desperate!

5 Replies

Perhaps I should add that I'll get the results in a few days.


Come back here expatkerry when you have them please

1 like

I have every single thing going on like u I'm in bed at moment my hubby taken boy to school as I'm breathless dizzy my whole body aches I asked doc to do addisons test he refused me .im getting doc out now as I feel so ill my whole body aches could it be my iron low .


Sorry I've taken so long to reply but I was so unwell, then it's been a round of doctors visits. My Addisons test came back negative which is good news but still no answers. A doctor tried to give me PPIs this week (I've already had them and can't tolerate them) the next step is an endoscope procedure this time to see if I have eosinophilic esophagitis. At least things are moving. You need to insist that your doctor do some tests.


"I do have patches of white spots"

Has GP ruled out vitiligo? This can be associated with b12 deficiency.


Next link includes hyper and hypopigmentation of skin as possible symptoms of b12 deficiency.


Vitiligo is also mentioned on PAS Symptoms Checklist


Link about vitiligo


I am not a medic just a person who has struggled to get a diagnosis.


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