I was 2 weeks overdue for my recent B12 injection and I saw a new nurse. She spoke to a doctor and advised me that they would not give me the injection without checking my B12. The B12 level has come back as 'normal' so they have decided to cease my treatment. I have asked to speak to the doctor and have an appointment tomorrow morning. I have been told by previous doctors that I have pernicious anemia and will need the injections for life. Why would they now change this diagnosis? Could I have been misdiagnosed? What information would you suggest asking for?
More info/brief (hah) history:
I am a 28 year old woman. In 2006 I was tested for glandular fever and it showed my Hb was low and was prescribed iron tablets. Whilst on iron tablets my symptoms (dizziness/fogginess, shortness of breath, being soooo tired) continued to worsen until I ended up in A&E. My Hb had gone to 74 and I was given a blood transfusion (3 pints).
GP continued iron tablets. In 2008 I was referred back to hospital with severe lower abdominal pains and 'recurrent iron deficiency anemia'. Endoscopy, colonoscopy etc all clear. Sent back to GP with 'malabsorbtion'.
Lowest level ferritin was 2 and began having B12 injections. Whilst on these my Hb, B12 and ferritin are on the lower side of normal but symptoms such as headaches, lethargy, cramps in legs and hands and being really sensitive to the cold only occur a week or two before injections are due.
Any help more than welcome. Quite happy not to have the stingy injections ever again but don't want to leave and go back to how I have felt in the past (literally like a zombie forcing myself through life!) xx