B12 lozenges : Hi who takes these and... - Pernicious Anaemi...

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B12 lozenges

Ndobins profile image
15 Replies

Hi who takes these and is deficient and finds they help as well as injections, instead of or top up? Curious as they get really good reviews from people have a low B12 reading , thanks guys :)

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Ndobins
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15 Replies
spacey1 profile image
spacey1

Hi, I know some people find these great, but I've used a couple of bottles of the solgar ones and they don't seem to make any difference at all. For me, only the injections help

Ndobins profile image
Ndobins in reply tospacey1

How often do u inject? And how long have u been?

spacey1 profile image
spacey1 in reply toNdobins

Two or three times a week. I've not been injecting that long, so I'm trying to feel 'stable' then I can spread out the doses as much as possible. My GP only agreed to one every eight weeks and it's nowhere near enough x

Ndobins profile image
Ndobins in reply tospacey1

I thought I was making progress until yesterday , I feel very weak, shame your gp won't offer more , mine only offered me 3 once a month. She doesn't know I've been injecting every other for 2 months. It's not easy all this is it, hope I continue to improve xx

spacey1 profile image
spacey1 in reply toNdobins

Not easy at all. My GP thinks that because my serum b12 is high, 8-weekly injections are a bit of a luxury. I guess I could say I'm self-injecting but it seems a bit of a waste of time. I'll just quietly get on with it!

Hope you carry on feeling better x

Ndobins profile image
Ndobins in reply tospacey1

Hope u see more progress too, I get worried when I see others buying different brands, or injecting more frequent , I wonder if I'm doing the right thing. God knows what mine will look like, I'll let you know!!

Have a good week xx

Singoutloud profile image
Singoutloud

I prefer the solgar version as they are smaller and dissolve more quickly. I take about 4 per day to top up between injections. I also self inject once a week but find that the Hydrox from the injections and the methyl from the sublinguals target slightly different symptoms

Ndobins profile image
Ndobins in reply toSingoutloud

Ahh ok well I'm injecting every other day and feeling tired and low mood. So would the methyl help that more? I'm feeling the Hydrox isn't working anymore :)

Singoutloud profile image
Singoutloud in reply toNdobins

Are you keeping up with your other B vits and Folate. I've been a bit remiss with my folate lately as I was just over range on my last blood test so will start that again to see if it helps. I think B12 in all its forms affects people differently so what works for one may not work for another.

I don't feel any difference when I have my 2 monthly Hydroxo injections from the GP but the methylcobalimin sublinguals help a little on a daily basis. When the fatigue comes on it tends to affect the muscles in my face, my tongue swells and speech is difficult. The urge to sleep at this point is overwhelming and I find that a couple of solgar sublinguals helps with this a little so I can get going again but I've noticed that if I don't have at least 4x5000mcg daily it has a knock on effect and the symptoms escalate.

Sorry can't be more helpful but to find out what works best for you itau be a case of trial and error.

Ndobins profile image
Ndobins in reply toSingoutloud

You have been a massive help, finally someone with this face muscle feeling of fatigue. I've been trying to explain it to my husband . Ok well I'll see how results look this week then I think I'll try the methyl lozenges. Thanks u x

Singoutloud profile image
Singoutloud in reply toNdobins

I know the face thing is hard to explain but it's nice to know someone understands. Just a thought but have you also had your thyroid checked as some symptoms are shared.

Ndobins profile image
Ndobins in reply toSingoutloud

Ha yes I'm under active have been for 4 years, I think I'm under medicated right now which would explain a few things. And have raised antibodies . Do u have thyroid issues too?

Singoutloud profile image
Singoutloud in reply toNdobins

Yes diagnosed with hashimotos about the same time as you but could trace symptoms back at least 25 years. Was on levo but bit the bullet and started adding T3 with it early last year. Have now been on T3 only for about 6 months. (doctor doesn't know yet and will prob have kittens when I tell him) It has done wonders for my brain fog and physically much better. This time last year when I got my diagnosis of Pernicious anaemia, i couldn't even get round the supermarket without the support of a shopping trolley. I lost my part time job as an accounts clerk in September due to illness and had to take on a cleaning job to pay the mortgage. I've been amazed that I've actually been able to do that amount of physical work, although muscles and joints are quite painful right now. II don't feel great but I'm doing way better than I was. Even with the major increase in physical exercise I still haven't lost any weight though unfortunately.

Ndobins profile image
Ndobins in reply toSingoutloud

Wow you've really been through it. I'm feeling pretty awful at the moment , I really thought the B12 injections every other day were going to do more, but I'm feeling as bad as I was this weekend. I'm hoping it's the thyroid then I can move forward . It's all very draining . X

Ndobins profile image
Ndobins in reply toSingoutloud

And I'm taking jarrow b complex with 400 mcg folate in it. It's all being tested this week so I'll know where I am x

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