Hello all,after 36 years working as a Health Service Professional I was diagnosed with PA last October.The last year has been terrible -the fatigue and everything that goes with it to the unsteadiness or "The wobblies" as my wife calls it.
I share as with most people here the lack of support from my GP clinic who have no clue about PA - one GP asked me what did I think the problem was ! I replied MS and he told me only young people get MS !
My job is a very active job attending cardiac arrests to obstetric emergencies and I am really struggling and sometimes feel I cannot give my 100% that each patient deserves so this led me to an appointment with my Occupational Health Department.I spoke with great detail to the Health nurse about my neuropathy problems that affect my gait - walking as if I am drunk - unable to hold a pen some days,unable to draw up drugs because I cannot open the pack the syringe comes inunable to walk up or down stairs,dizziness,loss of balance and the lethargy.
Looking at my blood results the b12 level was 193 and the measurement scale starts at 190 !
The Occ Health nurse disappeared for 10 minutes to consult with the trust Occ Health physician and when we continued with our conversation she started to mention had I thought of retiring through ill health because the trust physician called PA a chronic disability and I could finish work 3 years early.
I am due my next Hydroxocobalamin in February and to be honest I was hoping my symptoms would disappear but no joy.
So it looks like I will be saying farewell to the NHS in a some what bitter sweet fashion.
Any one here recieving any benefits from DWP ?
Regards to all,