Hi everybody. I'm nearing the end of my loading dose of B12 now and I am beginning to notice a slight improvement. I am less desperately exhausted, although I still need a lot of sleep and I do tire easily. Looking at how long it takes the body to build red blood cells back up to full strength, there is still some way to go. Blood donors, for example, are not allowed to donate more frequently than approx. 14 weeks.
What interests me is a really specific change in mood. I'm a successful career woman and not given to flights of fancy, but in the weeks leading up to me really pushing for a diagnosis (and then receiving it, and treatment) I had a strong, specific feeling that I was dying. I wasn't depressed (still enjoying, though being exhausted by, social life for example) but I felt as if something was telling me I was dying. That sensation has now gone.
It was so specific, that I think this could become a proper clinical diagnostic pointer, so I would be really interested to hear if anyone else has experienced something similar.
Good luck to you all in managing your long-term blood damage disorder.