Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for March 2016

Great news! I can have 2 weeks of loading doses, but can I ask your opion please on spacing these with Easter please?

Hi, firstly once again thank you so much for all of your help. I have been told I can have 2 weeks of loading doses followed by monthly injections and see how...

Hi, firstly once again thank you so much for all of your help. I have been told ...

•8 years ago

Hormones

Hi, for the last 3 weeks I have felt good (two injections per week), back at the gym but a couple of days befor my period my fatigue comes back. Should I...

Hi, for the last 3 weeks I have felt good (two injections per week), back at the...

•8 years ago

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Need Advise

Hi there I've recently been diagnosed with pernicious anaemia I have finished my loading doses and I was wondering if there's any vitamin supplement that I...

Hi there I've recently been diagnosed with pernicious anaemia I have finished m...

•8 years ago

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Supplement

Hi everyone, I was supplementing 6000iu B12 sublingually, but within two weeks of starting my skin broke out in acne and although my bloods are showing 1411...

Hi everyone, I was supplementing 6000iu B12 sublingually, but within two weeks o...

•8 years ago

B12 injections

Hi just started b12 injections and feel even worse terrible muscle aches fatigue no energy full stop, is this normal had 3 of 6 injections

Hi just started b12 injections and feel even worse terrible muscle aches fatigue...

•8 years ago

Paul Daniels PA

Hi, I read on Martyn Hooper's blog that Paul Daniels, the magician who died recently, had PA. http://www.martynhooper.com/2016/03/20/paul-daniels/

Hi, I read on Martyn Hooper's blog that Paul Daniels, the magician who died rec...

•8 years ago

Numbness/pins and needles comes and goes - Is this normal

I have numbnness and smetimes pins and needles in my fingers but not all the time. As it is variable does this mean it is not related to being b12 deficient...

I have numbnness and smetimes pins and needles in my fingers but not all the tim...

•8 years ago

Ice!!!

I constantly crave eating ice cubes .I have to make sure I have a tray of ice in my fridge and when I am at work (in a pub ) I have to have a huge glass next...

I constantly crave eating ice cubes .I have to make sure I have a tray of ice in...

kerri161074odonnell

•8 years ago

Three Questions re: PA/B12

Hi everyone, I have been experiencing blood spots under the skin on the tops of my arms near my wrists for months now- it seems that they coincide when I need...

Hi everyone, I have been experiencing blood spots under the skin on the tops of...

•8 years ago

B12 result 100

Hi I've just posted my husband private blood results on thyroid uk and they have advised me to post them on this site for advice regarding PA I've made an...

Hi I've just posted my husband private blood results on thyroid uk and they have...

•8 years ago

Sore feet

Am currently on loading shots, and have noticed that the balls of my feet (right foot inparticular) are really sore. I did suffer numbness in my feet and toes...

Am currently on loading shots, and have noticed that the balls of my feet (right...

•8 years ago

Regular symptoms

Hi everyone, I'm a 24 year old girl that just got diagnosed in November (I'm also coeliac and have autoimmune hypothyroidism, so an autoimmune hat trick!)....

Hi everyone, I'm a 24 year old girl that just got diagnosed in November (I'm al...

•8 years ago

Changing symptoms

I've been having B12 shots several times a week since mid November, many of my original symptoms have improved, tremors, muscle spasms, pins and needles etc....

I've been having B12 shots several times a week since mid November, many of my o...

•8 years ago

Bleeding Gums

Hi, Just wondered if any of you have had improvement of bleeding gums when you started B12 treatment? My gums have bled for many years when I brushed my...

Hi, Just wondered if any of you have had improvement of bleeding gums when you ...

•8 years ago

Thanks for sharing

Just a note to thank everyone for their time and effort on this forum. Since I have found you all I have learned so much about how to look after myself. For...

Just a note to thank everyone for their time and effort on this forum. Since I ...

•8 years ago

B12 Patches

Hi I am using the high dose B12 patches it says on the packaging that they should stay on for 24hrs.My question is does it matter if I keep them on longer than...

Hi I am using the high dose B12 patches it says on the packaging that they shoul...

•8 years ago

Can't tolerate Methylcobalamin, should I not take Methylfolate??

Hi, So I was diagnosed B12 deficient two months ago, I had the loading doses and now self inject Hydroxcobalamin every 3 days. I had tried Methylcobalamin...

Hi, So I was diagnosed B12 deficient two months ago, I had the loading doses an...

•8 years ago

Your thoughts on my results please

Hi all Please could u have a look at my blue horizon results and provide your thoughts? I've been over on the thyroid UK Forum and someone there suggested...

Hi all Please could u have a look at my blue horizon results and provide yo...

•8 years ago

Hypochloridia

As an awful lot of the folks on these forums seem to suffer from low stomach acid, I thought I'd post the following article that I read today dealing which...

As an awful lot of the folks on these forums seem to suffer from low stomach aci...

•8 years ago

Diagnosed years ago PA . Does any one else aching muscles and fatigued all the time ?

Hi , Wondering if anyone else feels fatigued all the time ?. I was diagnosed with PA in 30's and now 50 , prior to PA diagnoses I was diagnosed ME . It...

Hi , Wondering if anyone else feels fatigued all the time ?. I was diagnosed wi...

•8 years ago

Self Injecting.

Hi all. I just wanted to pop on here quickly to thank everyone for their continued support. Without you. I would not be writing this today. Today was a...

Hi all. I just wanted to pop on here quickly to thank everyone for their continu...

•8 years ago

Nerve pain low ferritin and low b12 but no treatment 😪

Hi all new to this website hopefully someone can help! I have been suffering from heart palpitations, integration, extreme exhaustion, ridges in nails etc for...

Hi all new to this website hopefully someone can help! I have been suffering fro...

•8 years ago

Very low B12, what other tests should be asked for?

Hi, My partner has just got blood test results B12 is 187 (180 -1000). Also his iron is fairly low 62 (25 - 350). Folate lowish too 4.5 (> 4.0) Back...

Hi, My partner has just got blood test results B12 is 187 (180 -1000). Als...

•8 years ago

Downton Abbey PA Story

Hi I don't watch this but any coverage of PA/B12 is good: http://m.huffpost.com/us/entry/downton-abbey-finale-a-nu_b_9417898.html It is just a pity that this...

Hi I don't watch this but any coverage of PA/B12 is good: http://m.huffpost.com/...

•8 years ago

Any suggestions as to whether I need a B multivit with RDI or higher please ( if I get the go ahead for injections!)

Hi, have really appreciated all your help this week with my Active B12/MMA results. I'm just waiting to hear back and keeping everything crossed! Have read...

Hi, have really appreciated all your help this week with my Active B12/MMA resul...

•8 years ago

B12 Recovery

Hello all, In November I was diagnosed with MTHFR mutation (homozygous) and very low B12 at 128. I started doing methylcobalamin sublinguals immediately, and...

Hello all, In November I was diagnosed with MTHFR mutation (homozygous) and ver...

•8 years ago

Hate doctors!

Just got back from the latest appointment with my youngest daughter and feel like spitting blood! Her last blood test results showed that her ferritin had...

Just got back from the latest appointment with my youngest daughter and feel lik...

•8 years ago

Query on B12 infusion

After a slightly rough few weeks fighting a parotid infection, my private doctor advised a second PIN infusion as well as the B12 methyl infusion which I...

After a slightly rough few weeks fighting a parotid infection, my private doctor...

•8 years ago

Summary of key facts in some important articles

When I was preparing for my visit with the haematologist I spent quite a while sorting out the important snippets of info in four different articles. In the...

When I was preparing for my visit with the haematologist I spent quite a while s...

•8 years ago

Nutrition measurement

Can someone please explain the difference between mg and ug in the nutrition measurements for example in those of Marmite in the picture. I'm confused with...

Can someone please explain the difference between mg and ug in the nutrition mea...

Forum Support•8 years ago

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