I'm a 24 year old girl that just got diagnosed in November (I'm also coeliac and have autoimmune hypothyroidism, so an autoimmune hat trick!). I've had basically no support at all from my GP, in fact I had to look up the guidelines myself to tell her the treatment I need over the phone (luckily I'm a med student myself). I haven't even seen my doctor in person about it, just saw the nurse once for my first injection then began just picking up prescriptions and needles and injecting myself.
Basically guidelines say that I need B12 injections every 3 months for the rest of my life, however, I've been finding that I've been getting symptoms a lot earlier than that, between 2 months and 10 weeks. I get sores in the corners of my mouth (angular cheilitis), I get that exhaustion that's so paralysing and start to feel faint, especially in the morning. Literally a couple of days after I inject myself the sores have healed and I feel more like myself again.
Does anyone else have this problem? Is it ok to inject myself more regularly? Should my doctor be following up my B12 levels or should I just go by the symptoms I'm having? I have to say the sores at the corners of my lips is the worst part, looking in the mirror and seeing such a visible sign of a disease is pretty psychologically painful to me, as stupid as that might sound.
Thank you in advance for any advice you might have x