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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for March 2016

Loading doses

Ok, so I recieved my B12 injections yesterday and started last night. Many of my symptoms are neurological, tingling in finger tips, numbness in toes,...

Ok, so I recieved my B12 injections yesterday and started last night. Many of ...

BarefootHelen

•8 years ago

6 Replies

I can't get into the ibs .org

Hi Is anyone else having this problem.I have paid for another years support so that isn't the problem.If someone out there would let me have their phone number...

Hi Is anyone else having this problem.I have paid for another years support so t...

Chocolate41

•8 years ago

2 Replies

Active B12 results finally here 27(25-108) MMA 708 (0-280) GP said no action, so just picked up printout and found this. Any advice please?

Hi, firstly many thanks for all the help and advice I've had from these sites. I've discovered low ferritin, low vitamin d and now have the B12 results. I...

Hi, firstly many thanks for all the help and advice I've had from these sites. I...

Jo5454

•8 years ago

30 Replies

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Just wondering?

I have my B12 jab every 6weeks I was diagnosed with PA 5 yrs ago. was just wondering if anyone else suffered from mouth ulcers and/or water infections? I...

I have my B12 jab every 6weeks I was diagnosed with PA 5 yrs ago. was just wonde...

tiredjan

•8 years ago

5 Replies

anxity

I feel constantly drained of energy and really struggling to get through the day. It makes my anxiety worse because I have this fear I'll just collapse or...

I feel constantly drained of energy and really struggling to get through the d...

kowsar

•8 years ago

4 Replies

Methylation issues with faulty MTHFR gene

So I've received my genetic results from 23andme, and according to livewello, I have issues with my MTHFR gene and with methylation (amongst other things)....

So I've received my genetic results from 23andme, and according to livewello, I ...

NorfolkRose

•8 years ago

13 Replies

A lighthearted interlude: Brain fog examples

Hi All, I thought we could all do with a bit of light relief, and that some humorous examples of 'Brain Fog' might provoke a knowing smile or two. So, what...

Hi All, I thought we could all do with a bit of light relief, and that some hum...

fbirder

•8 years ago

21 Replies

Black spots in vision? Last B12 injection...

(Bit of background to anyone who hasn't read any of my posts before: I had a loading dose of B12 injections in December after experiencing extreme tiredness,...

(Bit of background to anyone who hasn't read any of my posts before: I had a loa...

KCxo

•8 years ago

15 Replies

Is it worth taking b12 tablets when diagnosed with gastric atrophy?

If you have gastric-atrophy is worth taking sublingual b12 ?

xJJx

•8 years ago

2 Replies

Constantly ill

Am posting to see if anyone can help with a query : Have been on monthly injections since December but seem to constantly feel ill! I have really itchy skin ,...

Am posting to see if anyone can help with a query : Have been on monthly injecti...

Fiona1039

•8 years ago

18 Replies

B12/PA course

I've just discovered one of the GPs at my practice has been on a B12/PA course. Does anyone in the heirarchy of the PA Society know about this or been...

I've just discovered one of the GPs at my practice has been on a B12/PA course. ...

Snookiej

•8 years ago

8 Replies

B12 and alcohol

I was diagnosed about 2 yrs ago with pernicious anaemia, before that I wasn't a massive drinker and it was a social thing, also I couldn't cope with the...

I was diagnosed about 2 yrs ago with pernicious anaemia, before that I wasn't a ...

tammy1759

•8 years ago

9 Replies

Iron tablets

Hi guys ..... This week I have been feeling absolutely exhausted Monday and Tuesday I was ok, Wednesday started feeling tired Thursday it felt like I had hit...

Hi guys ..... This week I have been feeling absolutely exhausted Monday and Tues...

Pixielula

•8 years ago

1 Reply

Unhelpful GP

Hi, I saw my GP in October 2015 as I was suffering symptom of fatigue, pins and needles, feeling generally unwell. My sister and Nan both suffer with...

Hi, I saw my GP in October 2015 as I was suffering symptom of fatigue, pins and ...

Lisam88

•8 years ago

12 Replies

Where can I get a b12 privatley

My partner has a b12 injection every month, now all of a sudden he can't get appointments then when you get one the nurse says you need to have it Reviewed by...

My partner has a b12 injection every month, now all of a sudden he can't get app...

Wendyjanebergin

•8 years ago

29 Replies

Potassium/chloride/MCH blood results

I was diagnosed with PA a year ago and have been having monthly B12 injections from the GP and also supplementing with sublingual B12 if I exercise or drink...

I was diagnosed with PA a year ago and have been having monthly B12 injections f...

JanD236

•8 years ago

7 Replies

19191919

Has anyone else had a stroke whilst b12 not diagnosed though raised parietal cells. Have read a couple of posts mentionong but not sure if an assiciation?

Has anyone else had a stroke whilst b12 not diagnosed though raised parietal cel...

19191919

•8 years ago

9 Replies

Muscle Damage from injections?

Does anyone else have problems with their muscles as a result of the injections? My surgery always give them in to my deltoid muscles, and I'm quite a small...

Does anyone else have problems with their muscles as a result of the injections?...

MALP

•8 years ago

11 Replies

Responding to subingual B12 Methylcobalamin Spray?

Since I've been using B12Boost sublingual spray for the last 3 weeks I seem to be gradually improving in many small ways from being seriously ill and...

Since I've been using B12Boost sublingual spray for the last 3 weeks I seem to b...

Sallybones

•8 years ago

3 Replies

ACTIVE B12 RAISED

What could be a reason for a raised level, 224 pmol/,l of B12 without taking supplements?

What could be a reason for a raised level, 224 pmol/,l of B12 without taking sup...

007999

•8 years ago

1 Reply

Neuro symptoms worsening rapidly

Hi I have been receiving b12 jabs for 5 and a half years, initially every 3 months. During the first 3 years or so of treatment the jabs seemed to restore my...

Hi I have been receiving b12 jabs for 5 and a half years, initially every 3 mont...

sweetnessandlight

•8 years ago

15 Replies

B12 defficency?

In April 2015 I was diagnosed with iron defficent anaemia haemoglobin was about 63 and ferritin 1. I received a blood transfusion and felt so much worse. I...

In April 2015 I was diagnosed with iron defficent anaemia haemoglobin was about...

caynsley

•8 years ago

17 Replies

B12 injection advice please

I have been receiving injections every 3 months or so for last 3 years.When diagnosed ( by myself when I told doctors to test me for PA).. Had very low B12. No...

I have been receiving injections every 3 months or so for last 3 years.When diag...

alanduke

•8 years ago

7 Replies

New member

Hi - glad to find you all. I've been frustrated trying to get diagnosed and treated for B12 deficiency. My old doc says it's primary progressive MS, which...

Hi - glad to find you all. I've been frustrated trying to get diagnosed and tr...

schism

•8 years ago

1 Reply

What happens after B12 loading injections

I am about to have my 6th and final loading injection which have been spead over 3 weeks. What happens at the end of the "loading injections. Is there another...

I am about to have my 6th and final loading injection which have been spead over...

carer999

•8 years ago

9 Replies

B12 injection & Acne - Please don't answer unless you've had acne as a reaction

Hi! So follow up to my last post, after 3 weeks of horrific acne my skin started to calm down slightly. It's still fairly calm, but my left cheek still has the...

Hi! So follow up to my last post, after 3 weeks of horrific acne my skin started...

minniemouse89

•8 years ago

66 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2016

Loading doses

I can't get into the ibs .org

Active B12 results finally here 27(25-108) MMA 708 (0-280) GP said no action, so just picked up printout and found this. Any advice please?

Just wondering?

anxity

Methylation issues with faulty MTHFR gene

A lighthearted interlude: Brain fog examples

Black spots in vision? Last B12 injection...

Is it worth taking b12 tablets when diagnosed with gastric atrophy?

Constantly ill

B12/PA course

B12 and alcohol

Iron tablets

Unhelpful GP

Where can I get a b12 privatley

Potassium/chloride/MCH blood results

19191919

Muscle Damage from injections?

Responding to subingual B12 Methylcobalamin Spray?

ACTIVE B12 RAISED

Neuro symptoms worsening rapidly

B12 defficency?

B12 injection advice please

New member

What happens after B12 loading injections

B12 injection & Acne - Please don't answer unless you've had acne as a reaction

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive