In November I was diagnosed with MTHFR mutation (homozygous) and very low B12 at 128. I started doing methylcobalamin sublinguals immediately, and hydroxycobalimin shots a month later. My levels are now very high, which is fine for B12. At first the symptoms were disappearing like crazy; shooting pains, confusion, abdominal pain/bloating and some other ones went away or improved dramatically.
I still have pain everywhere, fatigue, and it seems like the weakness is getting worse, especially in my legs. I wonder if this is because I'm attempting to move more, and/or because the other symptoms are gone/improved I'm just noticing it more. Or maybe it is getting worse? They're like jelly after moving for just 5 minutes, and useless for days after. I miss walking.
I'm awaiting results of a CPK test, lyme, lupus, arthritis, etc.; wondering if the perceived worsening of weakness is normal though and this could still just be B12.
Has anyone else experienced this with B12 recovery? How long have others' recovery taken? I'd appreciate hearing any stories (especially encouraging ones)!
Thank you, wishing you much health!