results

[bluefaith]

hi im new here and dont know if my test results are normal or not ,come back at 433 ,but having symptoms ,my dr says normal results. i have low ferritin was 9 ,now 25 ,taken 4 years to get to 25. and low in vitamin d. what is your thoughts ,thanks for any advice please.

[Sleepybunny]

Have a look at this document. Has your GP read it?

ukneqas-haematinics.org.uk/...

Look particularly at page 29 of this next document.

bcshguidelines.com/.../BCSH......

It is possible to have severe B12 deficiency with normal serum levels but some medics don't know or understand this.

I found the book"Could It Be B12" by Sally Pacholok useful.

[bluefaith in reply to Sleepybunny]

thankyou.

[bluefaith in reply to bluefaith]

i could not see the second one?said it was an error.

[Sleepybunny]

Whoops sorry, I'm not good at links.

If you google "updated BCSH cobalamin and folate guidelines" you should find the document.

[bluefaith]

ok thank you very much .

[Polaris]

In many other European countries and Japan, Bluefaith, your B12 would be considered low and "deficiencies begin to appear in the cerebral spinal fluid below 550 pg/ml." "For brain and nervous system health and prevention of disease in older adults, serum B12 levels should be maintained near or above 1000 pg/ml." - "Could it be B12" by Sally Pacholok.

You do not say what your symptoms are but severe fatigue, numbness and tingling, etc. are neurological symptoms of B12 deficiency and should be treated without delay, as "there is a critical window of opportunity before permanent cognitive changes or injury result".

With your low ferritin and vitamin D, it may be that you are not absorbing nutrients and these links give lots of information and advice on writing to your GP for more reliable tests:

b12deficiency.info/signs-an...

cmim.org/pdf2014/funcion.ph...

Cmim/BMJ document. " Summary:

* Vitamin B12 deficiency is a common but serious condition

* Clinical presentation may not be obvious thus leading to complex issues around diagnosis and treatment.

* There is no ideal test to define deficiency and therefore the clinical condition of the patient is of utmost importance."

* There is evidence that new techniques, such as measurement of holotranscobalamin and methylmalonic acid levels seem useful in more accurately defining deficiency.

* If clinical features suggest deficiency, then it is important to treat patients to avoid neurological impairment even if there may be discordance between test results and clinical features.

Severe deficiency shows evidence of bone marrow suppression, clear evidence of neurological features and risk of cardiomyopathy.

It is important to recognise that clinical features of deficiency can manifest without anaemia and also without low serum vitamin B12 levels. In these cases, treatment should still be given without delay".

Best wishes for a good outcome,

[bluefaith in reply to Polaris]

thanks for the info. i suffer from ibs ,but controlled at the mo ,with low fodmap diet and glutin free dairy free. my d levals have come up from 50 to 150 mn0l/L by taking 10,000 d3 ,k2 ,and magnesium ,belong to a good group. taken 12 weeks to go up to 150. still suplementing to get to 250. my low ferritin ,is 25 ,ug/L,was 12 ,12 weeks ago ,still on iron.i suffer with very heavy periods.im just very tierd at the point of wanting to go to bed ,ok when im busy when i stop im like in a day dream. my bottom of my spine lumber is hurting due to a disc that came out ,and now have osteoarthritus set in there ,and i have neak pain in the left hand side ,my thumb joints hurt where they meet the hands ,i get cold hands and feet ,very easy ,bruise easy ,accasional pins and needles in my hands if iv layed on them in the night.not often. i get heart palps,and thinning hair ,bad scalp ,itchy. had that all my life,the bad scalp. but got worse. and just starting menopause.i do feel a lot less depressed and brighter in myself since my D 3 is higher.

[bluefaith in reply to Polaris]

my b 12 is 433ng/L what is this in pm/ml?

[Polaris in reply to bluefaith]

Marre gives info here:

healthunlocked.com/pasoc/po...

[bluefaith in reply to Polaris]

thanks il look at that .

[Polaris]

The B12def. link above gives the neurological symptoms and it looks as if you have them with the tingling etc.

I'm glad you feel better on D3. You're certainly on the right track with avoiding gluten etc., which should help IBS but you would need to make sure you're having nutrient dense animal foods but I'm still wondering whether you are actually able to absorb the B12 . Your symptoms rather remind me of Torri - whose story is at the very end of this film on B12 def.

b12deficiency.info/films/

[bluefaith]

i will look at that later thanks ,its only accasionally i get pins and needles in the night ,just put it down to laying on my hands ,it goes when i wake and move them about. i do get the accasional high pitch sound in either ear ,lasts a few seconds at any time. and wake often with cramp pain in my knees and left hip. also ,pee myself quite often ,not a lot ,but sometimes i dont even want to go and i laugh sneeze bend over or run after the dog ,i leak every day ,also hard to hang on to the other ,have to go asap . i put it down to giving birth to 5 children and big babies,and having endomyosis ,enlarged womb ,also and slight prolapse.

[Polaris]

This link might also be useful:

b12deficiency.info/assets/p...

[bluefaith in reply to Polaris]

thanks.