Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2015

UK supplier of saline

Hi everyone I just stumbled across a UK supplier of saline for injections, save ordering from Germany. They have needles and other equipment as needed also....

Hi everyone I just stumbled across a UK supplier of saline for injections, save...

•9 years ago

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Oral supplements

Quick recap. I have felt awful since November and had B12 checked at start of March, 166 dropping to 142 a week later. Doc thought probably dietary even...

Quick recap. I have felt awful since November and had B12 checked at start of Ma...

•9 years ago

Trial B12 injections

Hi, I was wondering if anyone could offer advice if they have any experience of being given B12 injections even though their blood test results are normal? My...

Hi, I was wondering if anyone could offer advice if they have any experience of ...

•9 years ago

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B12 and stomach acid

Hello everyone ... I wonder if anyone is knowledgeable about hydrochloric acid and how to take, when to take, etc? I have b12 deficiency and suspect that lack...

Hello everyone ... I wonder if anyone is knowledgeable about hydrochloric acid ...

•9 years ago

Needles and Syringes?

Hi, Which needle and syringes do people use for the purpose of self injecting Methycobalamin intramuscularly? I have previously used a Terumo 5ml syringe...

Hi, Which needle and syringes do people use for the purpose of self injecting ...

AutoimmuneAnnie

•9 years ago

The B12 Conference in the UK....

http://www.b12deficiency.info/conference/ Sounds a good one - wish I could be there. If anyone is going please report back here so we can hear all about...

http://www.b12deficiency.info/conference/ Sounds a good one - wish I could be t...

•9 years ago

How to mix saline and methylcobalamine safely

I am almost at the point of ordering my own supply of methylcobalamin, needles and saline solution. Could someone please give me, or direct me to, sensible...

I am almost at the point of ordering my own supply of methylcobalamin, needles a...

•9 years ago

Self-medicating

Apparently I have the same idiot doctors you all do, I guess they all took the same classes? So I may need to supplement folate, vitamin D, B complex, iron...

Apparently I have the same idiot doctors you all do, I guess they all took the s...

•9 years ago

A diary of a B12 deficient sufferer - blog

Hi just to let you know I have started a blog. I have set up this blog mainly for myself to look back on and see if there is any progress in my health but...

Hi just to let you know I have started a blog. I have set up this blog mainly f...

•9 years ago

Vit b12 deficiency

Hi guys, So this is my second post and you were all so helpful first time round. so I know my Vit b12 is low at 154ng and whilst I am awaiting the results of...

Hi guys, So this is my second post and you were all so helpful first time round...

•9 years ago

Which B12 spray?

I've been using the "Better You" B12 oral spray, as this was the only one available locally when I looked, but I'm wondering what other people use and whether...

I've been using the "Better You" B12 oral spray, as this was the only one availa...

•9 years ago

How much sterile saline do I add to Methycobalamin powder?

Hi, I have ordered some dried Methycobalamin (from Oxford Biosciences) and sterile saline. There is 20mg of Methycobalamin in the bottle. Does anyone else...

Hi, I have ordered some dried Methycobalamin (from Oxford Biosciences) and ste...

AutoimmuneAnnie

•9 years ago

Can someone translate what tests will be done please?

I wrote recently that a nurse i opened up to about my self injecting and why i had started doing that had said that . 'you do realize that we cant give you the...

I wrote recently that a nurse i opened up to about my self injecting and why i h...

•9 years ago

Advice for next consultant visit

I was referred to an endocrinologist 5 months ago due to a range of issues including extreme tiredness and neurological symptoms. Blood tests hadn't shown...

I was referred to an endocrinologist 5 months ago due to a range of issues inclu...

•9 years ago

Are you good at internet searches?

I am trying to find the US regulations that specifically relate to injectable B12 being by prescription only. The trouble is that I can't find them. No form of...

I am trying to find the US regulations that specifically relate to injectable B1...

•9 years ago

Why do I feel better out in fresh air? and Can B12 deficiency be responsible for nasty cramps?

Hi everyone, I'm in need of further educating, please! I know everyone will say 'of course you feel better out in the fresh air' but I'm wondering if that is...

Hi everyone, I'm in need of further educating, please! I know everyone will say...

•9 years ago

Sterile Saline

Hello Everyone, I have bought some Methycobalamin powder from Oxford Biosciences today. Where do people get their Sterile Saline from? I know there is a...

Hello Everyone, I have bought some Methycobalamin powder from Oxford Bioscienc...

AutoimmuneAnnie

•9 years ago

B12 Deficiency - Evaluating Cognitive Disfunction

Helvella recently posted this very important link, which could be another vital tool in the battle for B12 treatment - reading it made me wonder why our family...

Helvella recently posted this very important link, which could be another vital ...

•9 years ago

Sharps boxes, how do you dispose of them?

How do you dispose of your sharps boxes? I am self-injecting and haven't told my GP yet (and not sure I will) so what options are there for disposal? Will...

How do you dispose of your sharps boxes? I am self-injecting and haven't told m...

•9 years ago

Acyclovir - Anti-virals? B12 interaction?

Hi all, I am investigating new routes along with B12. I have been suggested Acyclovir 400mg 3x per day for 3 months in case it is a viral illness. Does...

Hi all, I am investigating new routes along with B12. I have been suggested A...

•9 years ago

Social Get Together - Meet up!!!

Hey, I am new to this community, and have found it really helpful having other people who understand my condition and who can relate to me. Since being...

Hey, I am new to this community, and have found it really helpful having other p...

•9 years ago

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Just an update on self-injecting...

Hi everyone, just thought I'd put my recent findings on here having decided to start self-injecting from January 2015 (it might be useful to someone somewhere)...

Hi everyone, just thought I'd put my recent findings on here having decided to s...

•9 years ago

Help needed with loading doses please

Hello, I have decided to take matters into my own hands and administer my own B12 injections. My levels are 'borderline' at 215 so GP not interested. I have...

Hello, I have decided to take matters into my own hands and administer my own B1...

•9 years ago

How do I use Yuliv nasal spray? No instructions in box...

I live in the US and just received the Yuliv hydroxocobalamin nasal spray I ordered from the UK (thanks detoxpeople!). There are no instructions in the box....

I live in the US and just received the Yuliv hydroxocobalamin nasal spray I orde...

•9 years ago

Living in U.S. and recently diagnosed with PA

My husband was diagnosed with PA in mid- November. He has been on weekly b12 injections since then. He is better, but it's not consistent. He hasn't worked in...

My husband was diagnosed with PA in mid- November. He has been on weekly b12 inj...

•9 years ago

Is my Vitamin B12 reaching my cells?

Hello Everyone, I have hypothyroidism and pernicious anaemia. After much frustration with the NHS I am now practically self treating both conditions. I am...

Hello Everyone, I have hypothyroidism and pernicious anaemia. After much frus...

AutoimmuneAnnie

•9 years ago

Vitamin B 12 low

Hi all, I am after some advice. I went to the GP's a few weeks ago and asked them to run some bloods as I was finding I was having to sleep for 8-10 hours a...

Hi all, I am after some advice. I went to the GP's a few weeks ago and asked t...

•9 years ago

Memory issues

Could someone advise me whether memory issues resolve themselves or if they're permanent? I've had 3 of my initial 6 starter jabs and would like to know if...

Could someone advise me whether memory issues resolve themselves or if they're p...

•9 years ago

Bringing b12 into Britian.

Can anyone tell me if there are any restriction on bringing B12 in injectable form into the country? Or the amount you can bring. I currently live in Munich...

Can anyone tell me if there are any restriction on bringing B12 in injectable fo...

•9 years ago

b12 deficiency need advice

Hello Everyone, I am in need of some advice because my doctors seem to not know much about B12 deficiency recovery. I want to know if anyone else is going...

Hello Everyone, I am in need of some advice because my doctors seem to not know ...

•9 years ago

Search posts

Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(75)

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