I am new to this community, and have found it really helpful having other people who understand my condition and who can relate to me. Since being diagnosed with PA, I have lost a lot of friends and I now find it hard to socialise because of it.
I have given up all of my hobbies, due to my fatigue and low energy levels, so I no longer see my friends at dance school. No one really understands. They think I am just being unreliable, constanting making excuses and letting the team down.
I thought it would be nice to be able to meet others, who also have the same condition.
Maybe there are already meet up events going on which I do not know about, but I thought I would create a post to find out if there are any upcoming get togethers happening in or nearby London any time soon.
If not, it would be nice to see if anyone else is interested in a little social gathering one day?