Hi everyone, I had an appointment with my Gp just this past Tuesday, following my session with the rudest, uncaring, unhelpful haematologist. She actually used the words 'sighs, oh well, i sigh all the time, it means nothing', 'it'll either get better and we'll never know what it was, or it'll get worse and manifest itself', 'we all get bad days', and then when my wife tried to point something out she put her hand up, in a 'talk to the hand' gesture and said 'i don't want to hear it from you'!!!!! She obviously couldn't give a rats backside but although my wife says I should complain, I just don't feel robust enough. Anyway, I talked it over with GP, who recommended complaining too, and i asked him for further advice. He couldn't think of any other tests to do, but did say he was happy to refer me to the Benenden Friendly Society for a second opinion. Wife and I have been members for years, they at least won't be so nasty because they're PAID to be polite! They can also give us more expensive tests that might be more accurate. He also accepted a bundle of articles i had printed off, all recommended at one time or another by this forum, and a copy of Martins book,' PA the forgotten disease' and says he will read them 'when he gets a chance'. We also told him that whilst we don't want to skew any results now, we will go down the self med route if all else fails, at which he looked distinctly threatened! However, we got the 'i'm only a lowly GP, I am only licensed to do a jag every 8 weeks, not allowed to do more' line. Meanwhile, I still have parasthesia, i feel like my right arm is no longer part of me, i have lost almost all sense of taste, and feel 'fluttery' in my tummy all the time. But wife and I know that we will only have to hang in there for as long as it takes to see this new consultant, after that we'll either get what we need off NHS or we'll get it for ourselves. BTW, are you all aware of how dire everything is with B12d.org? Please help them if you can.
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