Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,815 members • 6,819 posts

All posts for February 2013

Anyone got Sjogrens and Vasculitis? if so how are you doing?

mg15

•11 years ago

4 Replies

Has anyone experienced the following

diagnosed with WG in 2010 it affected my kidneys. been in remission however now my creatinine levels are rising although no other signs of WG. any one else...

diagnosed with WG in 2010 it affected my kidneys. been in remission however now ...

moira

•11 years ago

8 Replies

New East Midlands Vasculitis Support Group Meeting Saturday April 20th 2pm

NOVOTEL... Bostock Lane LONG EATON 2pm - 4pm Derbyshire... Nottingam...Leicester Everyone welcome... bring family and friends ...have a chat...

NOVOTEL... Bostock Lane LONG EATON 2pm - 4pm Derbyshire... Nottingam...

John_Mills

Volunteer•11 years ago

2 Replies

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Dan Hampton plays cricket for Gerrards Cross Dan has Wegeners Granulomatosis

http://www.buckinghamshireexaminer.co.uk/south-bucks-sport/top-sport/2013/02/14/stumped-not-dan-hampton-82398-32811773/

http://www.buckinghamshireexaminer.co.uk/south-bucks-sport/top-sport/2013/02/14/...

John_Mills

Volunteer•11 years ago

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The Lass of Richmond Hill

Emma will start and finish the Richmond Half Marathon in the old Deer Park. The Old Deer Park is bounded by the Thames river and Kew Gardens as well as two...

Emma will start and finish the Richmond Half Marathon in the old Deer Park. The ...

Jann

•11 years ago

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Am about to take rituximab, any info on how I will feel afterwards?

I am finally having my first Rituximab on Thursday and trying to forward plan as I have no help? Does anyone have any info or advice on how quickly you can...

I am finally having my first Rituximab on Thursday and trying to forward plan as...

milliewin

•11 years ago

17 Replies

channel 4 18/0213 8pm dla & benefits CANCELLED now a horse meat special. should now be aired on 25th Feb 2013 at 20.00 hrs

8channel 4 18/0213 8pm dla & benefits

hamble99b

Volunteer•11 years ago

4 Replies

Simvastatin warning

I have received a letter today from my GP informing me that the MHRA have issued a statement cautioning the use of simvastatin with Amlodipine as it has a...

I have received a letter today from my GP informing me that the MHRA have issue...

ARFalk

•11 years ago

2 Replies

I'm scheduled for tomorrow at Addenbrookes for a confirmation of CSS. Does anybody know what happens there,might I be admitted on the spot?

since my GP raised the suspicion of CSS 3 weeks ago I have felt worse and worse with pain,tingling and a burning sensation in my limbs and now frozen fingers...

since my GP raised the suspicion of CSS 3 weeks ago I have felt worse and worse ...

goranianosev

•11 years ago

5 Replies

Does anyone take antihistamines

I have become sensitive to all sorts of things. Mainly perfumes and believe it or not Toothpaste. I am going to the theatre on Weds. and wondered if it would...

I have become sensitive to all sorts of things. Mainly perfumes and believe it o...

LynneJ

Vasculitis UK•11 years ago

10 Replies

Still unconfirmed Vasculitis, ANCA 12

I lost 50% of the sight in my left eye on the 02 Jan and previous to this have had left earache since middle of December. I'm under Addenbrooke's and am going...

I lost 50% of the sight in my left eye on the 02 Jan and previous to this have h...

Sima1952

•11 years ago

8 Replies

A new classified type of Vasculitis on the VUK website this weekend.. Anti-GBM - Goodpastures Disease

Thanks to Jann and Pat working over the weekend....a new extremely rare type of Vasculitis is now on the VUK website. Also thank you to Prof Charles Pusey...

Thanks to Jann and Pat working over the weekend....a new extremely rare type of ...

John_Mills

Volunteer•11 years ago

1 Reply

is this a side effect of ritux

i had my infusion of treatment at the begining of january but the last two weeks have felt unwell with swollen gland in my kneck which is making my throat sore...

i had my infusion of treatment at the begining of january but the last two weeks...

tracey65

•11 years ago

5 Replies

Am I having a 'Flare' ??

Having just recovered from a week of haemoptysis I then developed excruciating stabbing pains in both knees waking me up at 4am 6/02/13...which I think is the...

Having just recovered from a week of haemoptysis I then developed excruciating s...

Hidden

•11 years ago

9 Replies

even big companies have "odd" days! [real ad]

even 36 wouldn't help me sleep! read the solution to sleep. sandra.

hamble99b

Volunteer•11 years ago

1 Reply

Vasculitis Ireland - Belfast Support Group Meeting Feb 16th

Julie Powers and friends would like to welcome you to a support group meeting to be held on Saturday 16th February at the Gortland Rooms, St Dorothea's Church,...

Julie Powers and friends would like to welcome you to a support group meeting to...

John_Mills

Volunteer•11 years ago

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biomarkers in the urine that could be used to better diagnose when a person with the condition is relapsing

An interesting artical in the Irish times http://www.irishtimes.com/newspaper/sciencetoday/2013/0124/1224329221329.html

An interesting artical in the Irish times http://www.irishtimes.com/newspaper/sc...

Garyork

•11 years ago

3 Replies

David Tyzack defies rare illness to take part in Weight Loss Challenge David was Diagnosed with WG (GPA) just over a year ago...

Thought I would just share this... this article was written just over 2 months ago and David has lost another 34lbs since 22nd November 2012 :-) There is a...

Thought I would just share this... this article was written just over 2 months a...

John_Mills

Volunteer•11 years ago

1 Reply

Teen died of condition so rare medics powerless to save her.. John and I were very shocked and saddened to read this article

This should not be happening! This article was in the Belfast Telegraph at the weekend... Kelly-Lee lost her life to Wegeners Granulomatosis...

This should not be happening! This article was in the Belfast Telegraph at the ...

John_Mills

Volunteer•11 years ago

28 Replies

YORK CHARITY BALL – Saturday 16th March

Amelia Crossan is organising a Spring Ball on Saturday 16th March 2013 at the recently refurbished DeGrey Rooms in York. She will be raising funds for two...

Amelia Crossan is organising a Spring Ball on Saturday 16th March 2013 at the re...

John_Mills

Volunteer•11 years ago

Be the first to reply

I have recently been diagnosed with CSS. Where can I find the best specialists for this desease in the UK? thank you

goranianosev

•11 years ago

9 Replies

Could long flights, a chest infection and stress cause a flare up of vasculitis after a 7 month period of it being gone?

joybelle

•11 years ago

10 Replies

24 Year old man dies of Infection whilst suffering from Wergeners Granulamatosis

Bolton Evening News 8:48am Friday 1st February 2013 in Local A FAMILY has paid tribute to a 24-year-old with a “zest for life”. Adam Kelly, from...

Bolton Evening News 8:48am Friday 1st February 2013 in Local A FAMILY ha...

Dave_Buzzey_B

•11 years ago

19 Replies

Feeling dreadful, is this normal?

I have vasculitis in my lungs and have had my 7th Cyclophospamide just over ten days ago. I feel really weak and no energy at all. I have been ok up until...

I have vasculitis in my lungs and have had my 7th Cyclophospamide just over ten ...

dizzy49

•11 years ago

19 Replies

Would Jane Austin wear Trainers? Bath Half 3rd March 2013

Jane would have had problems with her skirts if she had to keep up with Georgia and Abbie. They are running the Bath Half Marathon on March 3rd. The Bath...

Jane would have had problems with her skirts if she had to keep up with Georgia ...

Jann

•11 years ago

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...and if Methotrexate doesn't do anything useful??

When we returned to the UK, my husband was treated at Addenbrookes for his WG. Up till this time, he had just been on steriods but Addenbrookes put him on...

When we returned to the UK, my husband was treated at Addenbrookes for his WG. U...

Nadine99

•11 years ago

10 Replies

Any Young Adults with WG who want to talk i am 21 years old not coping to well feel like the only person in Devon with this.

bigdaveT117

•11 years ago

25 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for February 2013

Anyone got Sjogrens and Vasculitis? if so how are you doing?

Has anyone experienced the following

New East Midlands Vasculitis Support Group Meeting Saturday April 20th 2pm

Dan Hampton plays cricket for Gerrards Cross Dan has Wegeners Granulomatosis

The Lass of Richmond Hill

Am about to take rituximab, any info on how I will feel afterwards?

channel 4 18/0213 8pm dla & benefits CANCELLED now a horse meat special. should now be aired on 25th Feb 2013 at 20.00 hrs

Simvastatin warning

I'm scheduled for tomorrow at Addenbrookes for a confirmation of CSS. Does anybody know what happens there,might I be admitted on the spot?

Does anyone take antihistamines

Still unconfirmed Vasculitis, ANCA 12

A new classified type of Vasculitis on the VUK website this weekend.. Anti-GBM - Goodpastures Disease

is this a side effect of ritux

Am I having a 'Flare' ??

even big companies have "odd" days! [real ad]

Vasculitis Ireland - Belfast Support Group Meeting Feb 16th

biomarkers in the urine that could be used to better diagnose when a person with the condition is relapsing

David Tyzack defies rare illness to take part in Weight Loss Challenge David was Diagnosed with WG (GPA) just over a year ago...

Teen died of condition so rare medics powerless to save her.. John and I were very shocked and saddened to read this article

YORK CHARITY BALL – Saturday 16th March

I have recently been diagnosed with CSS. Where can I find the best specialists for this desease in the UK? thank you

Could long flights, a chest infection and stress cause a flare up of vasculitis after a 7 month period of it being gone?

24 Year old man dies of Infection whilst suffering from Wergeners Granulamatosis

Feeling dreadful, is this normal?

Would Jane Austin wear Trainers? Bath Half 3rd March 2013

...and if Methotrexate doesn't do anything useful??

Any Young Adults with WG who want to talk i am 21 years old not coping to well feel like the only person in Devon with this.

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