Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for September 2011

Is everyone aware of the Lauren Currie twilight foundation website ?

this is a very informative website in memory of Lauren who died of WG Aged just 15years of age. It has a very interesting Webinar from 30/08 with Dr Jayne and...

this is a very informative website in memory of Lauren who died of WG Aged just...

•13 years ago

Flu vaccines and whether to get them

Normally flu vaccines are recommended for people on immunosupressive drugs. I've had many annual flu vaccines since being diagnosed with cerebral vasculitis in...

Normally flu vaccines are recommended for people on immunosupressive drugs. I've...

Volunteer•13 years ago

Stopping Prednisolone

In June of this year John finally stopped taking predisolone after a lengthy reduction programme. (7.5mg of predisolone is the equivalent of what the body...

In June of this year John finally stopped taking predisolone after a lengthy red...

Volunteer•13 years ago

Want to take advantage of all our features? Just log in!

or

West Midlands Support Group Meeting

West Midlands Support Group Meeting 23rdOctober Hilton Birmingham Bromsgrove Hotel Speakers Dr David Carruthers- topic TBA and Dr Andrew MacClean...

West Midlands Support Group Meeting 23rdOctober Hilton Birmingham Broms...

Volunteer•13 years ago

Be the first to reply

West Country Vasculitis Support Group

West Country Vasculitis Support Group meeting Wednesday 12 October - 6.30pm The Renal Seminar Room, Sid Ward RD&E Wonford Hospital Barrack Road, Exeter...

West Country Vasculitis Support Group meeting Wednesday 12 October - 6.30pm The...

Volunteer•13 years ago

Chickenpox and immunosuppressed people

If you haven't had chickenpox as a child and catch it later when on immunosuppression drugs this can be a life-threatening situation. Chickenpox can kill...

If you haven't had chickenpox as a child and catch it later when on immunosuppre...

Volunteer•13 years ago

Losing driving licence due to cerebral vasculitis

I don't know if people with other forms of vasculitis ever lose their driving licences due to their vasculitis, but this happened to me, with cerebral...

I don't know if people with other forms of vasculitis ever lose their driving li...

Volunteer•13 years ago

My experience with cerebral (CNS) vasculitis

I have cerebral vasculitis, in a somewhat progressive form, similar in day-to-day symptoms to multiple sclerosis. I have been ill since 1994, when I was just...

I have cerebral vasculitis, in a somewhat progressive form, similar in day-to-da...

Volunteer•13 years ago

Hospital survey

Please remember to complete the hospital survey...it is easy.... http://vasculitis-uk.healthunlocked.com/hospitals

Please remember to complete the hospital survey...it is easy.... http://vascu...

Volunteer•13 years ago

I was dianosed with WG back in 1996, it has been in remission twice but is active again.

has anyone been through the same statistics & does anyone go back further than myself.

has anyone been through the same statistics & does anyone go back further than m...

•13 years ago

HealthUnlocked/Vasculitis-uk

If anyone has any problems completing the hospitals survey please ask us for help

If anyone has any problems completing the hospitals survey please ask us for hel...

Volunteer•13 years ago

Has anyone had to use Acitretin? Did it cause you 'headaches'?

There is one thing about Wegener's ...... you are always learning! I have been under a Dermatologist for a long time. I had significant warts / verrucae on my...

There is one thing about Wegener's ...... you are always learning! I have been u...

•13 years ago

Information Leaflets

We do have information leaflets especially prepared telling you about vasculitis-uk and also one important one called "Understanding Vasculitis" these are very...

We do have information leaflets especially prepared telling you about vasculitis...

Volunteer•13 years ago

Be the first to reply

Neuropathy.

I suffer from numbness in my feet and hands but last week I had the same problem on the right side of my face and my sight was affected. it lasted for a few...

I suffer from numbness in my feet and hands but last week I had the same problem...

•13 years ago

Fatigue and Vasculitis

Somebody told me a good analogy only today. Imagine your body has 2 batteries, a normal running battery and a reserve. Both batteries get recharged...

Somebody told me a good analogy only today. Imagine your body has 2 batteries, ...

Volunteer•13 years ago

1
2