Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for April 2018

Problem with Scleroderma lips

Hi All, Is anybody having problem going to Dentist. I mean my lips are getting small and tight so it cannot open so wide for dentist treatment anymore. It is...

Hi All, Is anybody having problem going to Dentist. I mean my lips are getting...

sa0001

•6 years ago

6 Replies

Reflux

Specialist has increased my omeprazole from 40mg to 80mg and also given me Erythromycin 250mg per day for my reflux/aperistactic osoephagus. Has any one else...

Specialist has increased my omeprazole from 40mg to 80mg and also given me Eryth...

galaxie

•6 years ago

4 Replies

Trouble with breathing out of nose

Does anyone experience the feeling of their nasal passage feeling narrow ? Like something is there blocking and when I blow my nose it still doesn’t help !? I...

Does anyone experience the feeling of their nasal passage feeling narrow ? Like ...

Emfrenette

•6 years ago

4 Replies

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App update

Hi guys, little update.. was seen today by a lovely doctor, that actually sat listened asked questions, and gave advice and support.. All my blood where...

Hi guys, little update.. was seen today by a lovely doctor, that actually sat li...

Rebecca1993Foster

•6 years ago

4 Replies

Surgery for severe Raynaud's

I have seen my Rheumatologist this morning to discuss how the Illoprost Infusion I had at the end of last year has helped me. I feel it did help me in some...

I have seen my Rheumatologist this morning to discuss how the Illoprost Infusion...

Seaside88

•6 years ago

13 Replies

Feeling overwhelmed

Hi All, Not having a good couple of days.... Just wanted to ask if anyone else has hot feet and discomfort on the balls of their feet ? Its so uncomfortable...

Hi All, Not having a good couple of days.... Just wanted to ask if anyone else...

catkar

•6 years ago

22 Replies

Claiming disability

Guys, has anyone on this group been on disability for their scleroderma condition? I feel as if everyday tasks are becoming such a struggle at this point, all...

Guys, has anyone on this group been on disability for their scleroderma conditio...

Rebecca1993Foster

•6 years ago

12 Replies

Any advice greatly recieved

Hi All I am now experiencing amy 3 episode of acute blue finger over the last 8 months. My GP finally diagnosed Reynaulds but is confused as to the episodes I...

Hi All I am now experiencing amy 3 episode of acute blue finger over the last 8 ...

L03Davies

•6 years ago

18 Replies

Dentist - anaesthetic not numbing (EM sufferers)

I hated going to the dentist because I couldn't seem to numb up with the anaesthetic. The dentist would argue telling me that after 3 injections if the...

I hated going to the dentist because I couldn't seem to numb up with the anaesth...

X-Woman

•6 years ago

10 Replies

Medication

Hi guys, I suffer with Raynaud's (30 yrs) and Erythromelalgia (9 yrs) I had an infection in a tooth recently and my dentist gave me METRONIDAZOLE tablets. For...

Hi guys, I suffer with Raynaud's (30 yrs) and Erythromelalgia (9 yrs) I had an i...

X-Woman

•6 years ago

5 Replies

Pain in kidneys

Hallo I have scleroderma for last 2 years, from about 6 months I have pain in my right kidney which recently got stronger. Did anyone have a similar...

Hallo I have scleroderma for last 2 years, from about 6 months I have pain in my...

Ela1

•6 years ago

4 Replies

Diagnosis

Hi all! I was just wondering, is it always years before you get a diagnosis? And how bad does it need to get before they officially diagnose me? Any advice...

Hi all! I was just wondering, is it always years before you get a diagnosis? And...

Dani_7

•6 years ago

8 Replies

LAST DAY ILOPROST

Hi everybody, well finished the Iloprost! although they have been long days,it will be worth it. I am tired but at least it was only 3 days this time not 5!!...

Hi everybody, well finished the Iloprost! although they have been long days,it ...

fairy56

•6 years ago

3 Replies

PREDNISONE!!! whats the alternative in the UK?

Hi everyone, at the moment living in France but returning later this year to live back in the UK. I have lots of Autoimmunes including Scleroderma, sjorgrens,...

Hi everyone, at the moment living in France but returning later this year to liv...

livingnotexisting

•6 years ago

13 Replies

Oh no my

I am so so sorry I did not know had no done that I was watching the news and I had Josephine And was the shady pic that I took an so sorry l

I am so so sorry I did not know had no done that I was watching the news and I...

miramda

•6 years ago

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Scleroderma and RLS

Hi my name is Tina and I wanted to get more information on Scleroderma and if any one has had restless leg syndrome as well? I have had some symptoms of...

Hi my name is Tina and I wanted to get more information on Scleroderma and if an...

holmes5501

•6 years ago

2 Replies

Blood test

I've just had my blood done... so hopefully I will find out on Friday if they pick up anything .. I'm hoping theu don't find anything but at the same time I...

I've just had my blood done... so hopefully I will find out on Friday if they pi...

Rebecca1993Foster

•6 years ago

1 Reply

Bristol?

Anyone on here from Bristol? Would love to meet up for coffee to talk about scleroderma.. xx

Anyone on here from Bristol? Would love to meet up for coffee to talk about scle...

Rebecca1993Foster

•6 years ago

2 Replies

Aches

Hi all Just another quick question, as per my previous post I have recently been put under a specialist for onset Scleroderma, Sjögrens and secondary Raynauds....

Hi all Just another quick question, as per my previous post I have recently been...

Dani_7

•6 years ago

15 Replies

ILOPROST

Hello everybody, Day 1 of 3. so newspapers and a good book! Oh and a pen mustn"t forget the pen! Arrived and rearing to go, cannula in, after a little...

Hello everybody, Day 1 of 3. so newspapers and a good book! Oh and a pen mustn"...

fairy56

•6 years ago

2 Replies

Alcohol

I need a bloody drink to chill out

Helpabrother85

•6 years ago

3 Replies

Me again 🤣

Hey guys, has anyone experiance they're skin colour change really pale.. I look as pale as a vampire with really dark bagged eyes.. I'm so tired all the time.....

Hey guys, has anyone experiance they're skin colour change really pale.. I look ...

Rebecca1993Foster

•6 years ago

3 Replies

Dry lips

My lips get very dry and tight. I’ve tried so many different moisturisers but nothing really lasts. Has anyone found a good product to recommend.

My lips get very dry and tight. I’ve tried so many different moisturisers but no...

Fee66

•6 years ago

13 Replies

ILOPROST

I am due to start Iloprost Treatment in 2 weeks time. I suffer from severe Primary Raynaud's. I have tried several medications, from calcium channel blockers...

I am due to start Iloprost Treatment in 2 weeks time. I suffer from severe Prima...

BertieB_280616

•6 years ago

14 Replies

Lumps on forehead

Someone help please! I have painful lumps on my forehead which ooze pus sometimes but not all the time. They won’t pop. And just very painful when I rise my...

Someone help please! I have painful lumps on my forehead which ooze pus sometime...

Helpabrother85

•6 years ago

8 Replies

Can scleroderma get worse

I have localised scleroderma and it’s attacking my skin. What I would like to know is if there’s any way it could get worse and starting on the organs too?

I have localised scleroderma and it’s attacking my skin. What I would like to kn...

Helpabrother85

•6 years ago

16 Replies

Diet

Is there any particular foods that are bad or should be avoided or does it make no difference?

Is there any particular foods that are bad or should be avoided or does it make ...

Helpabrother85

•6 years ago

8 Replies

New diagnosis

Hey there folks I’ve recently been diagnosed with with localised scleroderma. I’ve been having lots and lots of problems with my skin. You name it I’ve had it....

Hey there folks I’ve recently been diagnosed with with localised scleroderma. I’...

Helpabrother85

•6 years ago

10 Replies

Systemic sclerosis and colds

Hey guys ! Quick question. I have cold nothing unusual but it's the first cold I have had in a couple of years. I feel like it's totally wiping me out ! Just...

Hey guys ! Quick question. I have cold nothing unusual but it's the first cold I...

Sylviaherring

•6 years ago

5 Replies

Recently Diagnosed with CREST syndrome

I have recently been seen by a rheumatologist, and was told I needed bunch a blood work they first told me I potentially have lupus /scleroderma , then test...

I have recently been seen by a rheumatologist, and was told I needed bunch a blo...

Emfrenette

•6 years ago

6 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2018

Problem with Scleroderma lips

Reflux

Trouble with breathing out of nose

App update

Surgery for severe Raynaud's

Feeling overwhelmed

Claiming disability

Any advice greatly recieved

Dentist - anaesthetic not numbing (EM sufferers)

Medication

Pain in kidneys

Diagnosis

LAST DAY ILOPROST

PREDNISONE!!! whats the alternative in the UK?

Oh no my

Scleroderma and RLS

Blood test

Bristol?

Aches

ILOPROST

Alcohol

Me again 🤣

Dry lips

ILOPROST

Lumps on forehead

Can scleroderma get worse

Diet

New diagnosis

Systemic sclerosis and colds

Recently Diagnosed with CREST syndrome

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