Problem with Scleroderma lips - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,041 members5,565 posts

Problem with Scleroderma lips

sa0001 profile image
6 Replies

Hi All,

Is anybody having problem going to Dentist. I mean my lips are getting small and tight so it cannot open so wide for dentist treatment anymore. It is such a nightmare going to the dentist as it feels like my lips are about to rip apart. What should I do ?

Is there anybody having braces ? How does it feel , is it difficult with Scleroderma ? I think I soon have to get braces.

Thank you guys so much in advance and take care

Written by
sa0001 profile image
sa0001
To view profiles and participate in discussions please or .
6 Replies
MEW53 profile image
MEW53

Hi sa0001,

I have Scleroderma and have problems when going to the dentist. I had to have a tooth out in hospital about a year ago as it was difficult for the dentist to do. Try some exercises by trying to smile a lot, singing is helpful too, this is what my doctor told me and I use Vaseline before I have work done to lubricate the lips.

Strangely enough I lost part of a tooth at the weekend so I’m not looking forward to my dental appt this week.

sa0001 profile image
sa0001 in reply toMEW53

Thank you so much MEW53, I will put lots of Vaseline before going to the dentist. Good luck visiting the dentist!

Jmrose profile image
Jmrose

If you use lip balm it should help with opening you mouth without cracking your lips. Also you may want to consider Invisalign instead of conventional braces. You have more flexibility and less work in the mouth.

sa0001 profile image
sa0001 in reply toJmrose

Thank you :)

Tollie profile image
Tollie

Hi I too have smaller lips I can’t open my mouth to floss my back teeth. So I got a sonic toothbrush and they have floss attachments is how I do my teeth. The last time I went to the dentist was last year I am supposed to go back but I haven’t yet it was so painful. My scleroderma have my lips so tight that my teeth are showing because my lips are so small they can’t cover my teeth. I look like I am upset because I am trying to hold them together but when I am relaxed and not thinking about it my mouth is open I have severe dry mouth I wake up at night drinking water because my tongue and mouth is so dry.

sa0001 profile image
sa0001 in reply toTollie

Hope it gets easier for you , I understand the feeling. Take care

Not what you're looking for?

You may also like...

Scleroderma - mouth issues

Hi 👋 Over the last 6 months or so I’ve been suffering with mouth issues. Very dry mouth/tongue and...
-missymoo profile image

Blue lips and face?

My 2 year old daughter keeps going blue in the face around her lips and her lips, as well as her...
Emmejkelly profile image

Diasppearing lips?

For ages now if I open my mouth too wide then the corners of my mouth crack and split and it really...
dizzy2 profile image

Wrinkly and " Jagged looking lips"

Hello all, trust you're all keeping well and staying safe☺️! Is there anyone out there who could...
eembee1 profile image

Dry lips

My lips get very dry and tight. I’ve tried so many different moisturisers but nothing really lasts....
Fee66 profile image

Moderation team

AnnabelSRUK profile image
AnnabelSRUKAdministrator
Chicunique27 profile image
Chicunique27Administrator
SRUKadmin profile image
SRUKadminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.