Scleroderma and RLS

[holmes5501]

Hi my name is Tina and I wanted to get more information on Scleroderma and if any one has had restless leg syndrome as well? I have had some symptoms of Scleroderma come out lately and I am dealing with RLS for many years, and now it is worse.

[MissusTee]

Hi,

I have scleroderma, and I did get RLS for a while which was horrible. It stopped however when I discovered that it was the phenergan that I was taking that was causing the agitation, so it might be worth checking your meds.

[Halfwayuphill]

Hi Tina, I have UCTD with signs of limited systemic sclerosis and Lupus. I’ve had restless legs for some years now and it started to get worse. It was sugggested at the Royal free I took Gabapentin but I wanted to try to see if I could do without. I descovered my restless legs were better when I was on holiday and realised this was because I was walking in the evenings. I now walk around my garden briskly as possible every night before bed & when my legs are really bad several times an evening. As long as I get to sleep fairly quickly, this usually works. I resort to half a sleeping pill about once or twice a week & aspirin if I can’t get to sleep, but there are usually other physical reasons why I can’t, along with the restless legs. If my restless legs got worse and were regularly keeping me awake and painful, I wouldn’t hesitate to take Gabapentin though.

Hope this helps

Sue