Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for December 2017

Chilblains

Suffering from chilblains on my feet, first time I have ever had them with Raynaud'

Suffering from chilblains on my feet, first time I have ever had them with Rayna...

•6 years ago

🎶do you want to build a snow man?🎶

No thanks I have raynauds I'll watch you all from in here 😂❄️ Hope your all staying nice and warm in this horrible snow.

No thanks I have raynauds I'll watch you all from in here 😂❄️ Hope your all st...

•6 years ago

Abnormal ECG

Feeling apprehensive- I've been struggling to get an appt with my rheumy and need a prostacyclin infusion as my raynauds is really bad. over 18 months since my...

Feeling apprehensive- I've been struggling to get an appt with my rheumy and nee...

•6 years ago

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Localised Scleroderma

Hi there, originally I was diagnosed with osteoarthritis, then after a year I was diagnosed with diffuse systemic scleroderma, the consultants have now told me...

Hi there, originally I was diagnosed with osteoarthritis, then after a year I wa...

•6 years ago

Knee pain cold temp

My husband started to experince keep cold knee pain in the slightest drop in temp... it gets so bad that he is unable to walk and knees will give out if they...

My husband started to experince keep cold knee pain in the slightest drop in tem...

•6 years ago

Suppliments

I have been advised to take vitimin suppliments which all seem to say that they support the immune system. As it is our immune system that has caused this...

I have been advised to take vitimin suppliments which all seem to say that they ...

•6 years ago

Creatine Kinase Raynaud's Syndrome

I have been to a Rheumatologist for my Raynaud's and after my blood results came back, they have noticed levels of the enzyme Creatine Kinase (CK) in my...

I have been to a Rheumatologist for my Raynaud's and after my blood results cam...

•6 years ago

Help please

Could anyone tell me what CRP 5 is please? My rheumatologist has sent me a letter and he has included the blood test results but it does not explain what this...

Could anyone tell me what CRP 5 is please? My rheumatologist has sent me a lette...

•6 years ago

Excruciating agony

Does anyone know if a Manuka honey dressing is supposed to KILL digital ulcers? By kill I mean it feels like someone has hacked my finger off Kimbalina

Does anyone know if a Manuka honey dressing is supposed to KILL digital ulcers? ...

•6 years ago

Lip fillers

Morning all... crazy question but has anyone thought of having lip fillers had them... as the effects of scleroderma shrink lips Look forward to hearing from...

Morning all... crazy question but has anyone thought of having lip fillers had t...

•6 years ago

Spontaneous finger bruising

Hi, I'm new to this forum. I have had raynaud's since I was a teenager, but don't have scleroderma. Was diagnosed by a GP and have never seen anyone else about...

Hi, I'm new to this forum. I have had raynaud's since I was a teenager, but don'...

•6 years ago

Any experiences with Scleroderma and fasting?

http://www.bbc.co.uk/programmes/b01lxyzc I watched this documentary about fasting and am getting more and more convinced that fasting is worth a try, also to...

http://www.bbc.co.uk/programmes/b01lxyzc I watched this documentary about fastin...

•6 years ago

Very painful finger tips

I have been experiencing quite a lot of pain in my hands and fingers. Sometimes they are shooting pains and other times it feels like my fingertips are...

I have been experiencing quite a lot of pain in my hands and fingers. Sometimes ...

•6 years ago

MEDICATION

Hi Everyone. Have any of you been given medication that has helped with tight skin that has had any effect? The skin on my legs and arms is so tight it is...

Hi Everyone. Have any of you been given medication that has helped with tight sk...

•6 years ago

Negative ANA?

Hello everyone! I did a blood test at my gp surgery but ANA turned out negative. Would you exclude completely autoimmune disease at this point or would you...

Hello everyone! I did a blood test at my gp surgery but ANA turned out negative....

•6 years ago

Help

Can’t get Adalat retard is any one els having a problem

Can’t get Adalat retard is any one els having a problem

•6 years ago

Not Carpol tunnel what is it then

Hi ppl i went to see a doc for suspected carpol tunnel as I was reffered to by my gp for hand pain etc ..he asked where the pain is etc asked if I have had...

Hi ppl i went to see a doc for suspected carpol tunnel as I was reffered to by...

•6 years ago

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