Flolan

[Psg83]

Hi can anybody help With the Flolan treatment

I have just had a five day course at the local hospital as a inpatient

The Question i have ' is Does anybody have this as a outpatient . Its all pretty new to me . The first year of Crest and Raynaurds. I'm hoping that i can do this as outpatient

in the Future

Thank Pete

[Wisey]

Yes I travel daily for three quarters of an hour to and from BirminghamQE hospital to receive the 5 day treatment.

[Psg83 in reply to Wisey]

Hi Wisey

Thanks for letting me know. Could I ask you what the main benefit from Frolan is I expected to have warm hands and no swelling? I'm probably a bit stupid because that's not the Case. Your experience in this would be helpful

Thanks Pete

[Wisey in reply to Psg83]

No difference in the swelling or stiffness but although my fingers can still get painful they don't become so white . I started having treatment when I had a digital ulcer which was very painful. Try not to let your fingers get too cold. Warm your gloves and hands before you put them on.

[Psg83]

Thanks Wisey

Your advice is much appreciated. It's starting to make sense now. My fingers don't stay white half as long as they did before the flolan . So I think its probably to prevent ulcers.

Thanks again Pete