Any link? : Hi I am wondering if there... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Any link?

Immunewolf21 profile image
5 Replies

Hi I am wondering if there maybe any link between UCTD and Friedrichs Ataxia which my niece has. Does anyone with scleroderma or similar have a relative with ataxia?

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Immunewolf21
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5 Replies
Sandie12 profile image
Sandie12

Sorry don't know what that is never heard of that before

Alice1956 profile image
Alice1956

I have diffuse systemic sclerosis after initial suspected diagnosis of UCTD. My niece has developed cerebellar ataxia - not Friedrich 's though. Not sure if there is any connection although my condition is autoimmune and some forms of cerebellar ataxia can also be autoimmune.

in reply toAlice1956

Both scleroderma and ataxia can be linked to gluten intolerance. Friedricks ataxia is a genetically inherited condition so may not have this gluten link. I assume your niece has had genetic testing to confirm friedrichs rather than cerebellar ataxia that could be related to gluten and is sometimes termed gluten ataxia. If not, it could be gluten related. I'm not sure if gluten could worsen friedrichs ataxia or not. Use google to find out more information. Xx

Immunewolf21 profile image
Immunewolf21

Thank you LizzyCee

Immunewolf21 profile image
Immunewolf21

Sorry to hear about your diagnosis Alice1956 thank you for the reply I just have a gut feeling it's related.

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