Therapist

[Sandie12]

Hi everyone I've to go and see Occupational therapist has anyone else been to see one?

[cowhide]

Not seen occupational therapist but the GP that recognised my scleroderma and then referred me onto a rheumy had an occupational health qualification so he gave me advice about keeping my hands/feet warm, special gloves, etc and how to try and stop infections in my digital ulcers (dirty farm work environment)

[Sandie12 in reply to cowhide]

Thanks xx

[LucyJean]

Hello Sandie, occupational therapists look at the everyday activities that we usually take for granted, but when you have any kind of health condition they can become extremely difficult. OTs can advise on alternative ways of doing things, provide equipment and advice about gadgets that might help you do tasks (e.g. if you have problems with hand function they can advise about alternative knives, jar openers, kettle tippers and many many more.) They may provide bigger equipment if you find using the toilet, or shower/bath difficult. They provide advice on fatigue management, and pacing of activities. They can give advice about managing at work, and the government schemes available to help you. They may teach relaxation and meditation strategies. They can help with sleep hygiene. They may also assess and provide splints if you have pain or tightness in your hands. I am an Occupational Therapist so I hope I have provided you with a rough idea, but ARUK have a leaflet on what OTs do, and if you wanted any further info just ask. When you have your appointment it can be helpful to go in with a list of the practical difficulties that you are having.

I hope that helps, and I really hope your appointment is beneficial.

All my best

Lucy x

[Sandie12 in reply to LucyJean]

Hi Lucy Jean, thanks for the reply your very helpful x

[redtree]

Hi,

I was lucky enough to be referred to an occupational therapist who know a lot about scleroderma and Reynauds. She was very helpful , suggesting techniques and gadgets that could help me do everyday tasks and protect my joints. She also made splints for my fingers that were curling up. And she was lovely to talk to.

I would certainly recommend it. Best wishes

[Sparkinside]

Hi , I was referred to an OT and I found that they didn't have clear knowledge or clarity on my scleroderma condition and I was having to provide them with information on the condition and restrictions. I would just make sure that the OT you are referred to is across the condition and restrictions it provides so they can better advise and guide you. The advice I was given focused on tools and gadgets to assist with lifestyle living.

[marie5454]

An OT appointment is a must, so helpful and they give lots of advice, easy to talk to and help you to find alternatives to doing things, go for it!