Strange feeling in throat?

Hi everyone - this is my first post even though I've been in this group for about 3 years or so! Was diagnosed with LcSSc in 2012 after repeated attacks of Raynauds and one of my fingers eventually turning a purple/grey colour permanently and I was unable to bend it. Have had a digital sympathectomy and a few courses of Iloprost over the past 3 years along with medication. Have recently started to notice a strange feeling in my throat - a bit like when you are choked up/upset over something and feels like something is stuck there I.e. I need to swallow to try and make it feel better? Just wondered if anyone else had experienced anything similar. I know CREST include esophogeal problems but this doesn't feel like heartburn or acid reflux. Appreciate any comments, thanks x.

3 Replies

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  • I have the same symptoms in my throat as if I am choking. Horrible. I asked to be referred to the ENT clinic. I was seen by the consultant who referred me the Swallow Therapist and to have a laryngeal screening. I was given advice to have plenty of fluid (gravy, drinks etc.) when I am eating, sugarless sweets to stimulate the saliva. I was also told that when the choking happens to sniff, i.e. hold your breath whilst counting to 3 and breath out slowly. It works every time for me.

  • I have spells of this too. I actually feel as if there's a sticky substance right where I swallow. It's not like a sore throat at all - just a feeling of constriction or blockage. Mine comes and goes. I am diagnosed with primary Sjogren's with Raynaud's and bloods that point to Scleroderma. I find sipping at water with all food, including soup, has become essential now. Otherwise my oesophagus seems to lock when food is even slightly dry. I need water all the time to help it pass through my oesophagus. I know there is much overlap with these two connective tissue diseases but I certainly think this is due to Sjogren's dryness with me.

  • Thank you both for your replies - very much appreciated 😊 I find it so hard to try and explain how I am feeling sometimes. When I try to describe to my husband the actual sensation in my throat he seems to look at me blankly which makes me think I've not explained properly. The tightness in my throat gets worse if I'm feeling stressed and also can make me feel queasy. Am due to go to the Royal Free for Iloprost in October so will mention it then. Thank you again for taking the time and trouble to share your experiences. Wishing you all the best xx

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