In my case, a tall, thin skeleton with lots of layers of clothes, wrist warmers and often gloves or mittens (even in summer). I notice that many posts of fellow Scleroderma sufferers express anxiety about the way they are looking - or may be perceived by other people. I often feel apologetic at the supermarket checkout while I fumble for change with my crippled fingers or have difficulty bagging the goods. This is an additional source of suffering - I guess it is a sort of displaced rejection anxiety: I imagine people are thinking critical and uncharitable or impatient thoughts.
Best not to do too much negative imagining. We can never know what other people are thinking. I want to be free from unproductive anxiety, and to have the freedom to be myself without reference to what I *imagine* other people might be thinking. Let them deal with their own stuff about disability or body image. I am not going to twist myself into guilty shapes on the basis of other people's reactions to me, actual or imagined.
If anyone does ever say anything uncharitable to me - and so far no-one ever has - I'll tell them about my health problems in so much intricate detail they'll wish they never opened their mouth.