Was sent appointment for follow up ap... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Was sent appointment for follow up appointment with Rheumatologist while I was on holiday although they had been told 3 times the dates I

bealepup profile image
9 Replies

was away! Now been given date in October. Am seeing Gp on monday so am going to adk if he can arrange a private appointment or refer me to a different hospital. Stillhave no results of blood tests, lung function tests and echo cardiogramwhich were done in March/April.Getting depressed and anxious waiting for answers and possible treatment as my symptoms are becoming worse. Trying to keep busy to take my mind off it all. Soory fot the moan needed to get it off my chest !

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bealepup
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9 Replies

Get it off your chest! Sorry I can't help with appointment dates. I'm in the same boat. Had my PFT at the end of May, Echo cardiogram next week and dear only knows when my appointment in rheumatology will be. Consoling myself that I am still able to go to the gym and I'm jogging but I've found some more white, waxy skin on my face. It's hard to throw yourself into something an totally unwind with this on your mind. (I've also just been told I'm getting a great tan. Irony...)

domayh profile image
domayh in reply to

I was having a little moan to myself too about the time between appointments and them having to be reminded about repeat tests. I spoke to my G.P , rang the consultant's secretary with two simple requests and went away for two weeks to enjoy the sunny weather in Scotland. I came back to a batch of appointments and a reduced waiting time for the Consultant. The system can work, eventually. Good Luck!

trunchalobesity profile image
trunchalobesity

please phone the consultants secretary they can often get you in after clinic. good luck and stay positive xx

zenabb profile image
zenabb

Telephone your hospital on the number on the letter and calmly explain what happened and ask for a quick appointment.

bealepup profile image
bealepup in reply tozenabb

Had no joy with this approach, there is a shortage of rheumatologists in this region and one is on long term sick leave.

happydays1 profile image
happydays1

Hi is there an email facility for changing appointments it sometimes works better and the hospital has a record of the changes you wish to make. If you ask for a referral to the Royal Free hospital (I don't know where you live?) The GP can refer you, they can sort you out and the service is free. Just a suggestion.

titanicus profile image
titanicus

I have found that ringing the Hospital/rheumatologist Secretary yields the best outcome for appointments.

PaleIndian2 profile image
PaleIndian2

I have always found that if you contact the hospital and speak to the appointments clerk, they can usually find you a more suitable appointment.

bealepup profile image
bealepup in reply toPaleIndian2

Have tried this with no joy. Appointment in October is earliest they can give me and that is with locum, unable to see original consultant until December! Gp has also tried to get me an earlier appointment with no success. Reluctant to go privately due to cost, living on pension so may be a problem.

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