Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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A little horse 🐴

I know, I mean hoarse but I'm being silly 🥴it breaks the monotony.Seriously, has anyone been troubled with a hoarse voice with this condition? I am and...

I know, I mean hoarse but I'm being silly 🥴it breaks the monotony.Seriously, ha...

LittleJane

•10 hours ago

8 Replies

Second morning cortisol test results still not up to scratch at 313.

To recap, I finished Prednisolone in January this year. Tiredness and irritability 😖led me to mention these symptoms to my consultant at my routine hospital...

To recap, I finished Prednisolone in January this year. Tiredness and irritabili...

123-go

•15 hours ago

20 Replies

Leflunomide to reduce pred

Saw rheumy yesterday, he scanned my temple to check the artery that had originally confirmed GCA diagnosis. (I told him that I'd heard about Prof Dasgupta...

Saw rheumy yesterday, he scanned my temple to check the artery that had original...

Sammo47

•16 hours ago

18 Replies

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PMR pain continues

I am now nearly three months into my journey with PMR. At the beginning of July I started on 15mg Prednisolone, reducing to 12.5mg in mid-August. Blood tests...

I am now nearly three months into my journey with PMR. At the beginning of July ...

Notimeforpain

•17 hours ago

4 Replies

Should I be feeling this exhausted just tapering down from 3mg pred to 2.5 mg pred?

I'm in week 2 of the slow taper. I feel like sleeping all day . I don't recall feeling this way at higher doses when I tapered a ,5 mg dose I also spent two...

I'm in week 2 of the slow taper. I feel like sleeping all day . I don't recall ...

Paperroses

•1 day ago

9 Replies

Coming down my steroids

hi , haven’t posted for a while. I have now after 2 years come down to 2 and a half milligrams per day having slowly reduced from 50 milligrams per day and I...

hi , haven’t posted for a while. I have now after 2 years come down to 2 and a h...

Shaza123

•1 day ago

4 Replies

GCA or neck

Good evening all I am in Majorca at the moment, I have just had a 4night girlfriends break in Palma which was fun but very full on, lots of walking, late...

Good evening all I am in Majorca at the moment, I have just had a 4night girlfr...

Mumdadlove

•1 day ago

16 Replies

2nd time around

I have just been diagnosed with PMR for the second time I came off Pred in February but have never felt comfortable. I also have had a carpal tunnel...

I have just been diagnosed with PMR for the second time I came off Pred in Febr...

Suffererc

•1 day ago

6 Replies

GCA and MRI scan

After recurring UTIs and traces of blood in urine, a cystoscopy, an ultrasound on bladder and kidneys, I had an MRI scan yesterday. My last experience of the...

After recurring UTIs and traces of blood in urine, a cystoscopy, an ultrasound o...

random901

•1 day ago

10 Replies

10mg prednisolone seems to be the way forward - for now

Had long discussion with GP this morning, weighing up all recent and previous issues. There is the matter of the fact that I suffer from sciatica as well as...

Had long discussion with GP this morning, weighing up all recent and previous is...

gillsky8

•2 days ago

6 Replies

Low dose of prednisolone

On August 20th I reduced my prednisolone from 2mg to 1mg. Around September 16th had bad pain in my back and joints. Bending my knees is very painful....

On August 20th I reduced my prednisolone from 2mg to 1mg. Around September 16th...

bluepuddy1

•2 days ago

21 Replies

Increasing dose

I contacted the surgery earlier because I am not doing too well. My doctor advised me to return to my starting dose of 15mg while I am away from my normal...

I contacted the surgery earlier because I am not doing too well. My doctor advis...

LittleJane

•2 days ago

5 Replies

Covid? Adrenals? When to take Pred if possible vomiting

hello everyone. I feel awful. Started with sore throat yesterday, been up most of night with nausea but haven’t brought much up. Very dry. If it’s Covid...

hello everyone. I feel awful. Started with sore throat yesterday, been up mos...

Scaredofpred

•2 days ago

8 Replies

New to this and lots of questions!

Hello everyone I was diagnosed with PMR in late June this year. I went to the Dr's because I was aching for no reason and about to go on holiday. Saw a...

Hello everyone I was diagnosed with PMR in late June this year. I went to the ...

CJDLSR

•2 days ago

19 Replies

adrenal stuttering

hi everyone, been reducing my pref by 1/2 a week , and going great .currently at 7.5 mg I had what was supposed to be a relaxing oil massage , that ended up...

hi everyone, been reducing my pref by 1/2 a week , and going great .currently at...

Elvied

•2 days ago

10 Replies

PMR or Rheumatoid Arthritis?

I have been treated for PMR and been on prednisone since July 2021. I have had 13 infusions of Actemra over the past year. I have had many ups and downs,...

I have been treated for PMR and been on prednisone since July 2021. I have had...

A77bruin

•2 days ago

2 Replies

An Update and General Moan

It's some time since I posted. I've been silent and friends who know me would say that's a blessing. You are a good bunch on here so it's about time I chimed...

It's some time since I posted. I've been silent and friends who know me would sa...

cycli

•2 days ago

19 Replies

Finally, weaning off prednisone after 15 years.

I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it...

I have not posted in a while. About 5 years ago my blood pressure went up (180/...

phebamom

•2 days ago

10 Replies

Cold face

Hi - back up to 40 pred and getting a symptom I had when I was first diagnosed with GCA a year ago. My face is very cold. It isn't painful, just a bit weird...

Hi - back up to 40 pred and getting a symptom I had when I was first diagnosed w...

Gladys911

•2 days ago

7 Replies

struggling with negative thoughts

Hi everyone, I hope you are all doing okay. I need to ask the advice of the forum again, and l hope some of you kind folk can help me. I have been taking...

Hi everyone, I hope you are all doing okay. I need to ask the advice of the for...

Legsandmore

•2 days ago

22 Replies

Norwich PMRGCA. Is anyone interested in joining a local support group in Norwich, with the assistance of PMRGCAUK?

I am suggesting a face2face support group in Norwich. I have been in touch with PMRGCAUK. The administrator has sent some pr material for my gp surgery....

I am suggesting a face2face support group in Norwich. I have been in touch with ...

Palgeo

•2 days ago

7 Replies

Flare on 15mgs prednisolone?Swollen Eye rears it's ugly eye ball.

Last 2 days not feeling so well, woke with the symptoms which were present prior to the 'swollen eye (uveitis) in the other eye, as well as headache, face ache...

Last 2 days not feeling so well, woke with the symptoms which were present prior...

Fatsiajaponica

•2 days ago

18 Replies

A learning curve

Crumbs this thing is unforgiving isn't it?😥A three hour hot and busy car journey was no picnic did not leave me at my best. When we got to our daughter's I...

Crumbs this thing is unforgiving isn't it?😥A three hour hot and busy car journe...

LittleJane

•2 days ago

9 Replies

alcohol!

I am going to Sicily beginning of October .. … hooray I have got over Covid and am hoping blood test done today shows all ok. Has anyone had the odd glass of...

I am going to Sicily beginning of October .. … hooray I have got over Covid and ...

Havanahula

•2 days ago

51 Replies

Paulsnow

I have been on pred for 19 months. Have reduced (instructed by rheumatologist) from 10 to 9 to 8 in the last month. I have been taking 8x2.5gr methotrexate for...

I have been on pred for 19 months. Have reduced (instructed by rheumatologist) f...

Andrea2727

•2 days ago

4 Replies

Lightbulb moment

So PMR is triggered by inflammation at cellular level, yes? After I had Covid at the start of the year it took me 6 months to recover. The doctor has started...

So PMR is triggered by inflammation at cellular level, yes? After I had Covid at...

LittleJane

•3 days ago

15 Replies

Time of day for steroids

Hello all I started taking methylprednisolone almost 3 years ago for PMR. In order to control weight gain I implemented intermittent fasting and skipped...

Hello all I started taking methylprednisolone almost 3 years ago for PMR. In o...

Italybound62

•3 days ago

2 Replies

Trochanteric bursitis and hip pain

I should add to my post bloods show esr 31 and cpr 37.

811Yoga

•3 days ago

1 Reply

Trochanteric bursitis and front groin pain

I was diagnosed May 2023 and have previously posted that I saw a rheumy privately and last time July 2024 he diagnosed pain as age related. I am 72. I...

I was diagnosed May 2023 and have previously posted that I saw a rheumy privatel...

811Yoga

•3 days ago

15 Replies

Bye for now

We are off soon for our holiday 🚗 If I can get a signal I will try to keep in touch but won't be online much for the next two weeks. Take care everyone and...

We are off soon for our holiday 🚗 If I can get a signal I will try to keep in t...

LittleJane

•3 days ago

8 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

A little horse 🐴

Second morning cortisol test results still not up to scratch at 313.

Leflunomide to reduce pred

PMR pain continues

Should I be feeling this exhausted just tapering down from 3mg pred to 2.5 mg pred?

Coming down my steroids

GCA or neck

2nd time around

GCA and MRI scan

10mg prednisolone seems to be the way forward - for now

Low dose of prednisolone

Increasing dose

Covid? Adrenals? When to take Pred if possible vomiting

New to this and lots of questions!

adrenal stuttering

PMR or Rheumatoid Arthritis?

An Update and General Moan

Finally, weaning off prednisone after 15 years.

Cold face

struggling with negative thoughts

Norwich PMRGCA. Is anyone interested in joining a local support group in Norwich, with the assistance of PMRGCAUK?

Flare on 15mgs prednisolone?Swollen Eye rears it's ugly eye ball.

A learning curve

alcohol!

Paulsnow

Lightbulb moment

Time of day for steroids

Trochanteric bursitis and hip pain

Trochanteric bursitis and front groin pain

Bye for now

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