Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2024

New to this world

I was diagnosed with GCA in August of 2023 after suspecting that I was experiencing some level of gluten intolerance, rashes, digestive irregularities, anemia,...

I was diagnosed with GCA in August of 2023 after suspecting that I was experienc...

BartsDad

•3 months ago

10 Replies

Eyesight and Steroids

I'll be posting this across two sites. Last summer I went for a check up with the optician - I have worn glasses for reading for about 20 years, but this...

I'll be posting this across two sites. Last summer I went for a check up with t...

Hopeful66

•3 months ago

12 Replies

Medicines and dementia risk

Hello. I'm 64 years old with a painful back problem (lumbar spinal stenosis, spondylosis and spondylolisthesis). While I wait for an appointment at the Pain...

Hello. I'm 64 years old with a painful back problem (lumbar spinal stenosis, spo...

AliDeJ

•3 months ago

12 Replies

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Coming off prednisolone

Hi all, I gave tapered so so slowly and after almost 3 years I am off the prednisolone for about 3 weeks. I was on half mg every other day then half Mondays...

Hi all, I gave tapered so so slowly and after almost 3 years I am off the predni...

Karendeena

•3 months ago

14 Replies

1mg Pred

been on pred since 2016 had various flare ups have over the years now got down to 1mg daily after taking Lansoprazole for a few months I want to come of pred...

been on pred since 2016 had various flare ups have over the years now got down ...

villa1950

•3 months ago

17 Replies

I know I’m asking on the wrong page maybe….

this is a new topic to ask - other than PMR related - but I’m just feeling a tad concerned (well, v.concerned tbh) about something else & just want some kind...

this is a new topic to ask - other than PMR related - but I’m just feeling a tad...

Doraflora

•3 months ago

62 Replies

adrenal crisis?

i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage...

i have been on pred for almost 3 years trying to wean myself off. i never seem t...

Reclus

•3 months ago

9 Replies

Could be some positivity for frequent UTI sufferers.

Good morning folks. Just entering the fourth year since my GCA diagnosis and having suffered around 17 UTI's in that time (hospitalised with two) along with...

Good morning folks. Just entering the fourth year since my GCA diagnosis and hav...

strawclutching

•3 months ago

32 Replies

tooth extraction - Pred increase?

I am having a large molar extracted on Friday next. I have tapered down from 20mg per day beginning of May 2023 to 7mg for last week. This is my first tooth...

I am having a large molar extracted on Friday next. I have tapered down from 20m...

Thiago1396

•3 months ago

6 Replies

Pneumonia

It turns out that I thought my extreme fatigue was due to having tapered to 4 mg, that I have pneumonia. So I have been on an antibiotic for two days and am...

It turns out that I thought my extreme fatigue was due to having tapered to 4 mg...

Paulagcl

•3 months ago

23 Replies

Interesting Information Regarding Scientific Papers

I know this is not directly related to PMR/GCA, but I know that forum users sometimes post "new" information from scientific papers and this can sometimes be...

I know this is not directly related to PMR/GCA, but I know that forum users some...

Bcol

•3 months ago

3 Replies

Introduction and Thanks

First of all I would like to introduce myself. My name is Roy and I am 78 and although I am English I now live in Adelaide, Australia.. Up until the last year...

First of all I would like to introduce myself. My name is Roy and I am 78 and al...

Willpower1945

•3 months ago

22 Replies

Sudden anxiety attacks and mood swing on first Prednisone taper

Hi there I’m 44 and was put on Prednisone, 20mg, 3.5 weeks ago for suspected PMR. My mum also had PMR at a young age of 42. I’m still waiting for my...

Hi there I’m 44 and was put on Prednisone, 20mg, 3.5 weeks ago for suspected ...

Jaybird22

•3 months ago

15 Replies

Hiccups along the way!

WELL so much for a successful taper. The best laid plans of mice and men..... Just got the back right and developed acute pain in the groin, Dr suspects stress...

WELL so much for a successful taper. The best laid plans of mice and men..... Ju...

Kiwisufferer2019

•3 months ago

19 Replies

Pred night time dose and 4am inflammation shedding time..

sorry to get back to this, but when travelling does this 4am time change according to country time/solar or is it in relation to when you go to bed? is it...

sorry to get back to this, but when travelling does this 4am time change accordi...

howtotaperdown

•3 months ago

2 Replies

Helpful forum

Last week I posted about receiving a PMR diagnosis in December and had ongoing low level headaches and fevers along with my rheumatologist recommending a drop...

Last week I posted about receiving a PMR diagnosis in December and had ongoing ...

Bummed24

•3 months ago

3 Replies

Worried about how to taper split dose

I am getting a little ahead of myself here, have been on steroids 2 weeks, advised to split dose one week ago with very good results - almost pain-free,...

I am getting a little ahead of myself here, have been on steroids 2 weeks, advis...

Tribie

•3 months ago

24 Replies

Ablation have any effect on PMR?

I first started having the PMR symptoms 2 days before having an ablation for my lower back and leg pain (coming from a slipped vertabrae) When I had the...

I first started having the PMR symptoms 2 days before having an ablation for my ...

Aqua47

•3 months ago

9 Replies

Totally Floored

I’ve been trying to reduce from 7 to 6.5 for weeks now, using DSAS method, after six days on 6.5, thought I’d nailed it. When I got up today, I had pains...

I’ve been trying to reduce from 7 to 6.5 for weeks now, using DSAS method, after...

Carathedog

•3 months ago

11 Replies

Plant sterols for cholesterol and continuous glucose monitor for blood sugar - good results

Hi I was diagnosed prediabetic (43) and high cholesterol (6.20 non HDL) last July. I went lowish carb until Nov/Dec when shifted to Christmas eating. From...

Hi I was diagnosed prediabetic (43) and high cholesterol (6.20 non HDL) last J...

Viveka

•3 months ago

38 Replies

PMR after GCA

Hi I’m in need of some advice. I’ve been diagnosed with PMR after being off Prednisone for one year. I started on 15mg of Pred but symptoms not covered. My GP...

Hi I’m in need of some advice. I’ve been diagnosed with PMR after being off Pre...

GCAVictim

•3 months ago

3 Replies

PMR vs Fibromyalgia - getting my story straight for doc's appointment.

I need to ask you wise and lovely folks for some input before I go to see the doctor, as soon as I can get an appointment. Every time I have an appointment...

I need to ask you wise and lovely folks for some input before I go to see the do...

Gimme

•3 months ago

69 Replies

Name Change If You Know You Know

:) Still can't swim shhhhh

discoballs

•3 months ago

13 Replies

Long Haul Flight and Pred

Morning, I’m looking for some advice please about taking my prednisolone after a long haul flight as we will be away for two months. I usually take my...

Morning, I’m looking for some advice please about taking my prednisolone after a...

GreatGranny4

•3 months ago

22 Replies

which diuretic with prednisolone?

I posted a while ago about diuretics - thanks for the responses. Mum was put on furosemide which worked for the odema, but within a week had diarrhoea which...

I posted a while ago about diuretics - thanks for the responses. Mum was put on...

RT18

•3 months ago

5 Replies

Boston US rheumies

Anybody know of some good rheumies in the Boston area. I'd like someone who has experience with PMR, GCA and large-vessel vasculitis. Thanks!

Anybody know of some good rheumies in the Boston area. I'd like someone who has...

winfong

•3 months ago

1 Reply

Why autoimmune diseases are more common in women.

You may find this interesting. https://www.nature.com/articles/d41586-024-00267-6

You may find this interesting. https://www.nature.com/articles/d41586-024-00267-...

RachelJDH

•3 months ago

6 Replies

RSV vaccine?

Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid...

Hi all! Is there any reason that I might want to avoid the RSV vaccine with my P...

Spartans1

•3 months ago

7 Replies

Pain management and antidepressants/anxiolitics

I vaguely recall reading about how some members experienced some pain relief from particular antidepressants and/or anxiolics. Can anyone tell me if there are...

I vaguely recall reading about how some members experienced some pain relief fro...

PEC2

•3 months ago

61 Replies

Travel Insurance

Greetings! Which travel insurance would you recommend for ailments such as ours? I am having a problem with Barclay's insurance due to PMR/GCA & pre - Type 2...

Greetings! Which travel insurance would you recommend for ailments such as ours...

discoballs

•3 months ago

104 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2024

New to this world

Eyesight and Steroids

Medicines and dementia risk

Coming off prednisolone

1mg Pred

I know I’m asking on the wrong page maybe….

adrenal crisis?

Could be some positivity for frequent UTI sufferers.

tooth extraction - Pred increase?

Pneumonia

Interesting Information Regarding Scientific Papers

Introduction and Thanks

Sudden anxiety attacks and mood swing on first Prednisone taper

Hiccups along the way!

Pred night time dose and 4am inflammation shedding time..

Helpful forum

Worried about how to taper split dose

Ablation have any effect on PMR?

Totally Floored

Plant sterols for cholesterol and continuous glucose monitor for blood sugar - good results

PMR after GCA

PMR vs Fibromyalgia - getting my story straight for doc's appointment.

Name Change If You Know You Know

Long Haul Flight and Pred

which diuretic with prednisolone?

Boston US rheumies

Why autoimmune diseases are more common in women.

RSV vaccine?

Pain management and antidepressants/anxiolitics

Travel Insurance

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