Ablation have any effect on PMR?: I first started... - PMRGCAuk

PMRGCAuk

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Ablation have any effect on PMR?

Aqua47 profile image
9 Replies

I first started having the PMR symptoms 2 days before having an ablation for my lower back and leg pain (coming from a slipped vertabrae) When I had the ablation, all the pain went away for 2 weeks, including shoulders. Then all the shoulder, hip and back pain came back. What relation could the ablation have to PMR? I can’t figure that out.

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Aqua47 profile image
Aqua47
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9 Replies
PMRpro profile image
PMRproAmbassador

I can't think of any reason either - other than the immune system was distracted and stopped attacking the body!!

Grammy80 profile image
Grammy80

I can't explain what you have experienced, but looking at your bio it sounds like PMR is a new thing for you. I have GCA, not PMR, but also had an ablation like yours....I hope the procedure target was as successful as mine was. Your bio said you were reducing 5 mg a day which maybe should be reviewed. How much are you on now? Sorry I'm not more help.💞

Aqua47 profile image
Aqua47 in reply toGrammy80

Thanks for replying. I think the ablation helped. To be specific, it was a bilateral L-4-5, L5-S1 of the facet joints. That’s what my doctor notes said. The PMR is new for me. It started the day before I was to get the ablation , on 12/18/23.

It’s really hard for me to tell where the pain that I still have in my back is coming from.

I’m taking 10 mg of prednisone, but this morning I took 12.5 because I was having some hip pain when I got up.

Grammy80 profile image
Grammy80 in reply toAqua47

It may take a bit of time to sort it out since the PMR started just before your ablation. From my history with GCA after the diagnosis I was on a much higher dosage than you are and I'm sure you'll get some input and suggestions from those with PMR. I'm about six months into my fifth year and presently in single digits of pred but also take Actemra injections weekly....so it takes a while and the dosage has its ups and downs in both diseases. But, here you will find hope, support and reassurance that eventually it gets better. This forum was my saving grace and still is, so hang in there. 💞

Aqua47 profile image
Aqua47 in reply toGrammy80

Thanks for your input. Sounds like from your bio you have many health problems. Hope you’re better soon!

Grammy80 profile image
Grammy80 in reply toAqua47

I will; some of the issues are 'history', and some are just part of me. I've started getting out and around people a few times a week...that has been the best medicine. I guess I've accepted what I cannot change and use my energy for enjoyment.💞

sidra1968 profile image
sidra1968

Distraction, my doc said it is a real thing..the body was "concentrating" and busy with the other parts of your body.

Aqua47 profile image
Aqua47 in reply tosidra1968

That makes sense. Hadn’t thought about it that way.

sidra1968 profile image
sidra1968 in reply toAqua47

I also think that maybe the brain can only receive so many pain signals at once, just food for thought.

I also experienced a very odd "distraction" that again my Dr said is a thing...when my husband was rushed into the ER and had a 3 night hospital stay with ended up being an "eye stroke" (actually called Central Retinal Vein Occlusion, CRVO, at the age of 43 a few years ago)..well, I literally had NO pains during those days at the hospital bedside. It was bizarre, but obviously my body was SO focused on his problem, that my body felt oddly fine..once he was cleared, it all came back This was all before my diagnosis.

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