I am happy to have found this forum. The posts today about the emotional aspects of acceptance, etc etc were very helpful. I am confused about the site -- I don't see how to reply to a post.
I was diagnosed four months ago, the first illness I've ever had, so that is very lucky. Still, it is a shock. I am 85 and now my last few years have taken a different turn than I had expected. But I am hoping to roll with it. I am new in town here, just moved from Portland, OR to LA and don't have a support system of friends outside my family. I see this seems to be a UK site but hope it's okay that I'm on it!!
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Paulagcl
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Hello and welcome! We are not fussy about where people come from. There are many from the US here.
As for replying, there should be a reply button beneath each post/reply. I noticed one post today didn’t have any. Perhaps replies have been turned off or there’s a glitch.
Welcome. You’ll find a lot of support here. The related posts on the right hand corner of the web page are a useful start as well as the links and FAQs that DL has posted.
It doesn't matter where you are in the world, this forum welcomes everyone, and during the 4yrs I've been lucky enough to benefit from the advice and support I've received from so many knowledgeable and kind people here, I've learnt so much about how to manage my condition and meds more effectively.
We support each other as best we can, 'celebrating' small triumphs as and when they occur, and 'consoling' when new or more difficult challenges emerge.
As has already been said....you will be made very welcome.
Hi and welcome, I was diagnosed 3 months ago, aged 78 and I have found this forum to be way beyond my expectations. It had helped me practically and emotionally in so many ways. Dealing with my PMR and all it foibles would certainly have been far more difficult without this forum, of that I’m certain. My best wishes for a positive journey dealing with your PMR.
T hank you. I don't think I will survive this. I am allergic to a few antibiotics and none that i can take are touching this UTI. It is worse every day.
Welcome Paulagcl!I think you will enjoy and benefit from the postings on this site.
I am from the US too, Texas.
I was diagnosed with PMR and GCA in 2018. Lost the vision in my right eye due to late diagnosis of GCA. I was on prednisone and then methotrexate for a couple of years until I changed rheumatologist and she put me on Actemra. It has been working well for me so far.
I really enjoyed the feedback from the folks on this site. It makes me feel not so alone in this journey. I hope you receive the same benefit.
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