New to this forum

[Paulagcl]

I am happy to have found this forum. The posts today about the emotional aspects of acceptance, etc etc were very helpful. I am confused about the site -- I don't see how to reply to a post.

I was diagnosed four months ago, the first illness I've ever had, so that is very lucky. Still, it is a shock. I am 85 and now my last few years have taken a different turn than I had expected. But I am hoping to roll with it. I am new in town here, just moved from Portland, OR to LA and don't have a support system of friends outside my family. I see this seems to be a UK site but hope it's okay that I'm on it!!

[SnazzyD]

Hello and welcome! We are not fussy about where people come from. There are many from the US here.

As for replying, there should be a reply button beneath each post/reply. I noticed one post today didn’t have any. Perhaps replies have been turned off or there’s a glitch.

[DorsetLady PMRGCAuk volunteer in reply to SnazzyD]

There was a glitch -but it seems to be okay now… 😊

[DorsetLady PMRGCAuk volunteer]

hi and welcome, and yes no matter where you live you are welcomed.

Couple of links which may help -

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

Do spend some time looking at the FAQs-maybe start with this one -

healthunlocked.com/pmrgcauk...

There’s always someone around to help … 🌸

[123-go]

Welcome! 💐

[Bluey-1]

Welcome. You’ll find a lot of support here. The related posts on the right hand corner of the web page are a useful start as well as the links and FAQs that DL has posted.

[Kendrew]

Hiya Paulagcl,

It doesn't matter where you are in the world, this forum welcomes everyone, and during the 4yrs I've been lucky enough to benefit from the advice and support I've received from so many knowledgeable and kind people here, I've learnt so much about how to manage my condition and meds more effectively.

We support each other as best we can, 'celebrating' small triumphs as and when they occur, and 'consoling' when new or more difficult challenges emerge.

As has already been said....you will be made very welcome.

[Paulagcl in reply to Kendrew]

Thank you! I've looked around at various groups but this is the best one so far!

[Koalajane in reply to Paulagcl]

it really is!

Welcome to the forum and ask anything you want and the helpful, knowledgeable people in here will normally be able to answer

[PMRpro Ambassador]

Hi and welcome - we are a totally international group though the majority are in the UK.

[Gimme]

Hello and welcome, lots of old hands on here with masses of knowledge and experience.

[Thiago1396]

Hi and welcome, I was diagnosed 3 months ago, aged 78 and I have found this forum to be way beyond my expectations. It had helped me practically and emotionally in so many ways. Dealing with my PMR and all it foibles would certainly have been far more difficult without this forum, of that I’m certain. My best wishes for a positive journey dealing with your PMR.

[Paulagcl in reply to Thiago1396]

T hank you. I don't think I will survive this. I am allergic to a few antibiotics and none that i can take are touching this UTI. It is worse every day.

[Thiago1396 in reply to Paulagcl]

A positive approach and good medical care is important for you, very best wishes.

[Miacaro45]

You have come to the best, knowledgeable and informative place, by far. Welcome!

[SheffieldJane]

Welcome! 🌹

[brenda1207]

Welcome Paulagcl!I think you will enjoy and benefit from the postings on this site.

I am from the US too, Texas.

I was diagnosed with PMR and GCA in 2018. Lost the vision in my right eye due to late diagnosis of GCA. I was on prednisone and then methotrexate for a couple of years until I changed rheumatologist and she put me on Actemra. It has been working well for me so far.

I really enjoyed the feedback from the folks on this site. It makes me feel not so alone in this journey. I hope you receive the same benefit.

[Paulagcl in reply to brenda1207]

Yes, the feedback is great! It helps!

[sidra1968]

Welcome! I am from the US, also

[Karenjaninaz]

Paula, I live in NJ. Welcome; we all speak the same language with minor differences in some terms.

I am 81.