Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,469 members • 38,426 posts

All posts for April 2023

What if I have normal ESR and CRP?

Hi everyone, I need a confirmation that I can still have PMR even if I have normal ESR and CRP levels. My rheumy is confused and now wants to put me on...

Hi everyone, I need a confirmation that I can still have PMR even if I have nor...

sferios

•1 year ago

23 Replies

Judywalks

To those who replied to my post last week here is an update re my visit to the Rheumatologist today which I wasn’t looking forward to. I was seen initially by...

To those who replied to my post last week here is an update re my visit to the R...

Judywalks

•1 year ago

5 Replies

Synacthen test results- any advice?

Hi everyone, I'm not posting specifically about PMRGCA so my apologies but I have been trying to find a forum where people have experience of cortisol...

Hi everyone, I'm not posting specifically about PMRGCA so my apologies but I h...

Hidden

•1 year ago

6 Replies

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Methotrexate and Shingrix Vaccine

Could someone please advise whether I should stop my Methotrexate injection before I receive the shingles vaccine, my Pred reduction seems to be going well...

Could someone please advise whether I should stop my Methotrexate injection befo...

Hollybee21

•1 year ago

8 Replies

Does parathyroid hormone worsen osteoporosis?

I have just had a blood test and learn that my parathyroid hormone level is high/abnormal. (I learned from Google that the parathyroid gland is actaully...

I have just had a blood test and learn that my parathyroid hormone level is high...

Purple-Owl

•1 year ago

12 Replies

can’t tolerate prednisolone side effects . I am weaning off down to 1 mg but all my pains have come back . Any ideas what to do .

been on Steroids since last April having a bad time with weight gain and anxiety. Started on 15mg now down to 1mg . Dr wants me to take methotrexate but I...

been on Steroids since last April having a bad time with weight gain and anxiety...

Buster1610

•1 year ago

20 Replies

How do you know if you have adrenal insufficiency?

I have PMR since December 2021, started on 30mg now down to 12 reducing 1mg every two weeks. I have felt very tired for some weeks now and still can only...

I have PMR since December 2021, started on 30mg now down to 12 reducing 1mg ever...

Bonsaigirl

•1 year ago

19 Replies

Prednisone and cataract surgery

Will Prednisone affect the success of my healing from cataract surgery? I am currently taking 5 mg/day but just started the slow taper with a goal of 4 1/2. My...

Will Prednisone affect the success of my healing from cataract surgery? I am cur...

christi48

•1 year ago

14 Replies

Do I need to take Alendronate?

Hi everyone, I Got the results of my DEXA bone scan, and I'm not sure if I need to be on Alendronate. (My rheumy prescribed it to me before these results came...

Hi everyone, I Got the results of my DEXA bone scan, and I'm not sure if I need...

sferios

•1 year ago

36 Replies

Flare advice

I was down to .5 mg of Prednisolone and my brother died 4 days ago. I’ve had severely tender headache since. I know I can increase from advice given on this...

I was down to .5 mg of Prednisolone and my brother died 4 days ago. I’ve had sev...

Tahiri

•1 year ago

25 Replies

New pain between the shoulder blades and in other places.

hello all, I posted a few days ago about having a lot of new pain that is affecting my sleep, when I’m lying down the pain is much worse. Also I have a...

hello all, I posted a few days ago about having a lot of new pain that is ...

Mstiles

•1 year ago

7 Replies

weight gain after stopping prednisone?

I’m a 68 yo man diagnosed with PMR late 2021. Started on 15 mg prednisone but had to come off quickly because the mood swings and rage were intolerable. Did 5...

I’m a 68 yo man diagnosed with PMR late 2021. Started on 15 mg prednisone but ha...

mppk

•1 year ago

4 Replies

Reducing prednisone to zero

I have been on Prednisone for over two years. I am currently taking 1 and a half Mg. I believe the reason I have been able to reduce so low is due to the...

I have been on Prednisone for over two years. I am currently taking 1 and a half...

Plains

•1 year ago

30 Replies

Vasculitis

I have very painful arthritis in my shoulder and spine, I'm told vasculitis causes this has anyone else had this please?

I have very painful arthritis in my shoulder and spine, I'm told vasculitis ca...

Westley

•1 year ago

11 Replies

Welcome to new members April 2023

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•1 year ago

1 Reply

Trapped nerve in my back and PMR

I am presently on 6mg of pred and have had back problems since January. My trapped nerve problem gradually improved for a few weeks but then I developed Covid...

I am presently on 6mg of pred and have had back problems since January. My trap...

Washingup

•1 year ago

21 Replies

Lack of understanding of PMR and prescribing Prednisolone

I’m posting this link (written by a PMR patient in the USA) mainly in response to JMT_hiker’s recent post. It is a story of mismanagement of PMR and medication...

I’m posting this link (written by a PMR patient in the USA) mainly in response t...

123-go

•1 year ago

24 Replies

Diet problems

Hi I am on Prednisolone for Temporal Arteritis. Down to 5mg. My problem is I have just had a colostomy because of a perforated bowel.I am coming to terms with...

Hi I am on Prednisolone for Temporal Arteritis. Down to 5mg. My problem is I hav...

Raewynne

•1 year ago

15 Replies

bruising but only around knees

Hi, morning everyone. Just wondered if anyone has experienced bruising but only in a particular place? I have been getting quite bad bruising to both knees,...

Hi, morning everyone. Just wondered if anyone has experienced bruising but only ...

Abcd123455

•1 year ago

6 Replies

Loss of strength

Been on pred for a little over 12 months. Tapered quickly from 20 mg to 10 and then slowly to where I'm at now 3mg. Feeling very weak, can't lift hardly...

Been on pred for a little over 12 months. Tapered quickly from 20 mg to 10 and t...

JMT_hiker

•1 year ago

22 Replies

Prednisone and injury

Why are people who are taking Prednisone more prone to injury?

christi48

•1 year ago

8 Replies

Differentiating PMR pain from Prednisone myalgia pain?

Hi everyone, I'm having a hard time with this. My thighs ache, but not in the morning. It's usually in the evening, long after I took my dose of prednisone,...

Hi everyone, I'm having a hard time with this. My thighs ache, but not in the m...

sferios

•1 year ago

16 Replies

does anyone else with giant cell arteritis have vertigo?

Having been diagnosed with both polymyalgia rheumatica and giant cell arteritis and put on high dose prednisolone I have been suffering from vertigo. This is...

Having been diagnosed with both polymyalgia rheumatica and giant cell arteritis ...

musicalJ

•1 year ago

10 Replies

Shimmering patches in the eyes

Is this a known symptom of GCA/PMR, or the sign of something else? Occasionally I get a narrow crescent, usually towards the periphery of vision, which looks...

Is this a known symptom of GCA/PMR, or the sign of something else? Occasionally ...

Lutra2

•1 year ago

16 Replies

Another year on, dealing with PMR after nine years.

I am posting a copy of a reply I made to another poster's thread this morning, after having received a request to do so. Easy enough to cut, paste and edit...

I am posting a copy of a reply I made to another poster's thread this morning, a...

DAN38655

•1 year ago

10 Replies

Relationship of PMR and Prednisone

I have a question about the PMR desease as it relates to prednisone. I’ve always understand that prednisone is not a cure for PMR, but only masks the...

I have a question about the PMR desease as it relates to prednisone. I’ve alway...

golferman

•1 year ago

18 Replies

Tiny Purple Veins in Feet and Legs - Swelling

I've developed many tiny veins in my feet and calves. They are quite visible at this point, but wondering if it's fluid retention or thin skin (so I can now...

I've developed many tiny veins in my feet and calves. They are quite visible at ...

Missus835

•1 year ago

10 Replies

Update on 2mg taper/neck pain etc.

Finally made a GP appointment almost 3 weeks ago as I was still getting neck pains, resulting in a blood test, the first since diagnosis in September 2020...

Finally made a GP appointment almost 3 weeks ago as I was still getting neck pai...

Tarym

•1 year ago

16 Replies

Metformin

My husband is nearly 86. He is on 12mg of Prednisolone. Now he has been diagnosed with a blood sugar level of 7.9. He has been prescribed Metformin, and is...

My husband is nearly 86. He is on 12mg of Prednisolone. Now he has been diagno...

Daffodil256

•1 year ago

17 Replies

I was nearly there......

Diagnosed with PMR in Oct 2020 and after a couple of flare ups I eventually got down to 1mg every other day....This was 4 weeks ago. I went downhill fast and...

Diagnosed with PMR in Oct 2020 and after a couple of flare ups I eventually got ...

Deneez99

•1 year ago

53 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2023

What if I have normal ESR and CRP?

Judywalks

Synacthen test results- any advice?

Methotrexate and Shingrix Vaccine

Does parathyroid hormone worsen osteoporosis?

can’t tolerate prednisolone side effects . I am weaning off down to 1 mg but all my pains have come back . Any ideas what to do .

How do you know if you have adrenal insufficiency?

Prednisone and cataract surgery

Do I need to take Alendronate?

Flare advice

New pain between the shoulder blades and in other places.

weight gain after stopping prednisone?

Reducing prednisone to zero

Vasculitis

Welcome to new members April 2023

Trapped nerve in my back and PMR

Lack of understanding of PMR and prescribing Prednisolone

Diet problems

bruising but only around knees

Loss of strength

Prednisone and injury

Differentiating PMR pain from Prednisone myalgia pain?

does anyone else with giant cell arteritis have vertigo?

Shimmering patches in the eyes

Another year on, dealing with PMR after nine years.

Relationship of PMR and Prednisone

Tiny Purple Veins in Feet and Legs - Swelling

Update on 2mg taper/neck pain etc.

Metformin

I was nearly there......

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