Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2023

adrenals and cortisol

Hi diagnosed with GCA Feb 20 initial dose of pred 80mg tapered down to 5mg in first year, had cortisol blood test then synthac test May 21 which showed low...

Hi diagnosed with GCA Feb 20 initial dose of pred 80mg tapered down to 5mg in fi...

pog165g

•1 year ago

7 Replies

Update on my previous post trapped nerve and PMR.

After an MRI on my spine I do not have a trapped nerve in my back and my pain is two vertebrae bones crumbling. I have come to the conclusion that the pain in...

After an MRI on my spine I do not have a trapped nerve in my back and my pain is...

Washingup

•1 year ago

18 Replies

forgotten Pred

Have come away for 4 days and forgotten to bring my Pred. I am on 1.5mg. Should I try to get some from a chemist by showing my Prescription or will it be ok...

Have come away for 4 days and forgotten to bring my Pred. I am on 1.5mg. Shoul...

Suffererc

•1 year ago

11 Replies

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Hair thinning on steroids

Any thoughts on hair thinning on steroids? I have been on treatment since early December 2022, and am held at 10mgs Prednisone for three months now as my...

Any thoughts on hair thinning on steroids? I have been on treatment since early ...

YogaJM

•1 year ago

6 Replies

15mg to 12.5mg taper advice please

After starting my PMR journey on 12.5mg of Prenisolone I had to move up to 15mg because of a flare where I have stayed on and off for 17 days (I attempted...

After starting my PMR journey on 12.5mg of Prenisolone I had to move up to 15mg ...

Oh-my

•1 year ago

7 Replies

Major GCA Headache with 1/2mg taper

Hello, diagnosed late July 2022. I'm on TCZ (Actemra) and Prednisone. I've been tapering from 55mg August 2022 to 9mg currently. I was trying to go down 1mg...

Hello, diagnosed late July 2022. I'm on TCZ (Actemra) and Prednisone. I've been ...

potterylady

•1 year ago

37 Replies

Not sure if I have a flare or withdrawal

Diagnosed with GCA in 10/2020 and put on 80 mg of Prenisone ( which saved my eye sight).Following my rheumatologists orders, I tapered down to 10 mg by 10/22....

Diagnosed with GCA in 10/2020 and put on 80 mg of Prenisone ( which saved my eye...

Miacaro45

•1 year ago

3 Replies

face book

has anyone else who may be on face book seen all the posts that are suddenly turning up on PMR I think it’s a scam ,any thoughts

has anyone else who may be on face book seen all the posts that are suddenly tur...

Shaza123

•1 year ago

28 Replies

Prednisone - Halfing the pills

Someone posted earlier how they halved the prednisone and took them twice daily. Recommendations on the best time to take the two halved prednisone pills. We...

Someone posted earlier how they halved the prednisone and took them twice daily....

Andymegv

•1 year ago

16 Replies

Reduced pred and shoulder pains

Hi, I started on 20mg of Prednisilone in early March 22 which immediately gave me an improvement. I have continued to taper and was reducing by 1 mg per month...

Hi, I started on 20mg of Prednisilone in early March 22 which immediately gave m...

Animalover65

•1 year ago

13 Replies

Understanding the source of my pain.

Hi everyone, I'm having difficulty assessing the source of my pain and am seeking clarification from anyone who can help. First, the good news: As of...

Hi everyone, I'm having difficulty assessing the source of my pain and am seeki...

sferios

•1 year ago

26 Replies

pmr flare

Hi again I wrote about 2 weeks ago. Was at 4.5 mg of prednisone started to stiffen up. Had reduced from 10 mg by doing .5 mg per month. As per flare...

Hi again I wrote about 2 weeks ago. Was at 4.5 mg of prednisone started to stiff...

Skier321

•1 year ago

11 Replies

My cup runneth over

Perhaps that should read bucket. Been feeling pretty smug getting from 25mg to 5 over two years without pain - PMR pain anyway - and without a flare so I've...

Perhaps that should read bucket. Been feeling pretty smug getting from 25mg to 5...

Flivoless

•1 year ago

7 Replies

Temporal artery biopsy

Bilateral temporal artery biopsy is scheduled to evaluate for GCA. Have any of you had this done and any tips or recommendations? Thanks.

Bilateral temporal artery biopsy is scheduled to evaluate for GCA. Have any of y...

Badpmr

•1 year ago

31 Replies

Tapering strategy

I guess this depends somewhat on how long you’ve been on steroids and how they are affecting your overall health. Is it better to allow some mild symptoms to...

I guess this depends somewhat on how long you’ve been on steroids and how they a...

Body_bonkers

•1 year ago

23 Replies

Hi all. I have PMR and the steroids have made me diabetic and high BP.

MY GP GAVE ME CANDESARTIN FOR HIGH BP. WITHIN A THREE WEEK PERIOD I NOW HAVE STAGE TWO KIDNEY DAMAGE. I AM NOW TAKING DOXIZOSIN 2MG . ANYONE ELSE HAD...

MY GP GAVE ME CANDESARTIN FOR HIGH BP. WITHIN A THREE WEEK PERIOD I NOW HAVE ST...

eyeBRing

•1 year ago

7 Replies

Melt Method?

A well-meaning friend of mine who is a Pilates teacher sent me information about something new called Melt Method. A friend of hers, another Pilates teacher,...

A well-meaning friend of mine who is a Pilates teacher sent me information about...

SusyTe

•1 year ago

39 Replies

eye problems with gca

does anyone know the percentage of one or both eye blindness with gca?

Antschi

•1 year ago

40 Replies

RA now linked to oral bacterial health.

Apparently gum disease, bacteria can enter the bloodstream and or create 'citrullinated proteins', that go to joints and initiate an auto immune reaction. The...

Apparently gum disease, bacteria can enter the bloodstream and or create 'citrul...

sdowney717

•1 year ago

8 Replies

Taper advice

I was diagnosed in December and started at 20mg prednisone, which did the job. After 6 weeks I went to 17.5, then to 15, then to 10, waiting about 3 weeks each...

I was diagnosed in December and started at 20mg prednisone, which did the job. A...

papadapadoo

•1 year ago

22 Replies

Is this because of change of meds?

I am on 12.5 mg Pred & due to go down to 10mg next week. It seems to me that whatever distance I walk my knees stiffen up later in the day. Does anyone else...

I am on 12.5 mg Pred & due to go down to 10mg next week. It seems to me that wha...

Claremont2023

•1 year ago

10 Replies

GCA - tapering & symptoms

I've been on Pred since my diagnosis end of Jan. Think they reduced my doseage to quickly & when I dropped from 30 to 20 mg symptoms started coming back so...

I've been on Pred since my diagnosis end of Jan. Think they reduced my doseage t...

Janeval

•1 year ago

31 Replies

ESR and CRP results, adjustment for age?

I have just seen my results for my annual general health GP review. I was disappointed that my ESR and CRP results were higher than last year. Then I thought...

I have just seen my results for my annual general health GP review. I was disapp...

PMRnewbie2017

•1 year ago

3 Replies

Pred and exercise

Without taking too much of the wonderful advisors here. I'm currently tapering from 4.5mm pred to 4mm, in a few weeks down to 3.5mm. So far I'm experiencing a...

Without taking too much of the wonderful advisors here. I'm currently tapering f...

Southmead

•1 year ago

27 Replies

Need help and advice, again

Last week PMRpro very kindly helped me with my predicament (flare) whereby it was suggested that I continue with my pred at 10mg for aprox a week and then...

Last week PMRpro very kindly helped me with my predicament (flare) whereby it wa...

Bobbury

•1 year ago

11 Replies

NOT PMR or GCA ??

Well I have posted here before on the ups and downs of my diagnosis and things have may have changed for the worst I guess. Looks like I possibly have...

Well I have posted here before on the ups and downs of my diagnosis and things h...

Triumph650

•1 year ago

10 Replies

Has my PMR changed?

Hi All Have been treated for PMR by Dr Hughes -have had op on right knee meniscus tear repair and removal of bone spur and consultant said there was def...

Hi All Have been treated for PMR by Dr Hughes -have had op on right knee menis...

bakingD

•1 year ago

7 Replies

Gastro resistant prednisolone.

I am tapering prednisolone, once again, after a roller coaster journey trying to deal with GCA/PMR for over 4 years.I am down to 41/2 prednisolone. from today...

I am tapering prednisolone, once again, after a roller coaster journey trying to...

passerdomesticus

•1 year ago

15 Replies

Weight Loss!

Without really trying I have lost 15lbs since the beginning of December. :) I didn't think much about it until January. I am on 7mg of Pred and seem to be...

Without really trying I have lost 15lbs since the beginning of December. :) I ...

discoballs

•1 year ago

18 Replies

awful cough since starting suflasalazine alongside methotrexate

my husband was diagnosed with PMR over 3 years ago after a year of tapering steroids and also starting methotrexate he was still getting aches and pains and...

my husband was diagnosed with PMR over 3 years ago after a year of tapering ster...

alysonkerry-

•1 year ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2023

adrenals and cortisol

Update on my previous post trapped nerve and PMR.

forgotten Pred

Hair thinning on steroids

15mg to 12.5mg taper advice please

Major GCA Headache with 1/2mg taper

Not sure if I have a flare or withdrawal

face book

Prednisone - Halfing the pills

Reduced pred and shoulder pains

Understanding the source of my pain.

pmr flare

My cup runneth over

Temporal artery biopsy

Tapering strategy

Hi all. I have PMR and the steroids have made me diabetic and high BP.

Melt Method?

eye problems with gca

RA now linked to oral bacterial health.

Taper advice

Is this because of change of meds?

GCA - tapering & symptoms

ESR and CRP results, adjustment for age?

Pred and exercise

Need help and advice, again

NOT PMR or GCA ??

Has my PMR changed?

Gastro resistant prednisolone.

Weight Loss!

awful cough since starting suflasalazine alongside methotrexate

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