Hi everyone,
I need a confirmation that I can still have PMR even if I have normal ESR and CRP levels. My rheumy is confused and now wants to put me on meloxicam, but I don't think there's a need for that.
Specifically, I have never had elevated ESR, even before the pred when I went to the emergency room in my worst pain. At that time I did have high CRP. But that's the *only* time I had high CRP. Since prednisone it has always been normal. (But I never had a blood test when I was below 25 mg.)
My understanding is that it is still quite possible that I have PMR. It really is the only thing that makes sense to me. But here is what my rheumy just wrote to me:
"I am not sure what exactly to call this. It is not a myositis, as the MRI is quite sensitive. It is not PMR because you are quite symptomatic when your labs look good. (Although rarely PMR can present with normal inflammatory markers, you are quite young for a primary diagnosis of PMR . . . and I think calling this an atypical PMR from the vaccine is a bit of a cop-out.) . . . I would like you to continue to attempt to taper the prednisone but add a dose of meloxicam with your largest meal and see if you respond to the NSAID class as a steroid sparer."
After talking to everyone here, I really think I have PMR, and that my rheumy is confused because I reported pain while my labs were normal. But I just learned from all of you how to differentiate the various types of pain, and so my pain could very well have been DOMS, or temporary pain from the pred taper, or the hamstring tendon tears, or all of the above.
In other words, it is likely not some strange, unknown disease. I think it is more likely PMR with normal labs. Can someone please confirm this for me? I want to respond to my rheumy and I want as much knowledge and info I can get first.
And to clarify for all of you... about ten days after the vaccine my shoulders, neck, hips, and thighs hurt so much I could barely walk or turn over in bed. I had to lift my leg with my arms to put my socks and shoes on. I could not lift my right arm (vaccine injection side) more than 45 degrees. My left shoulder was also bad and hurt like hell when I tried to lift it. My neck pain was in the front of my neck mostly (never experienced anything like that before.) Building up to this, the pain was increasing daily, worse in the mornings, and accompanied by stiffness. The 40 mg prednisone took away all the pain. Then I met my rheumy a week later and she had me taper fast, until I had a major flare at 15 mg and immediately went back up to 30.
Doesn't all this sound like classic PMR?
I think she's confused I because of two things. First, I had mildly elevated CK levels twice, but other things could account for that (hamstring tears, for example, shown in my MRI). And second, she thinks that because my labs are normal while I am in pain must mean it is something else. But it might be the pred is simply working and my pain is DOMS or something else.
Ok I may be repeating myself. Please tell me what you think. <3