Pain in feet

[Caulkhead63]

Do any of you get pain in your feet? I've just got it in the left side of my right foot. Pretty sure I haven't stepped on a large stone as I wear thick boots. Anyone else?

[SnazzyD]

Where on your foot?

[Caulkhead63 in reply to SnazzyD]

Right foot left side

[SnazzyD in reply to Caulkhead63]

Sorry, more questions. underside or side of foot? Under a joint? Along the foot? What does the pain feel like? Pulling? Standing on stones? Any tingling in toes or elsewhere? Any swelling? What makes it worse or better?

Some people might recognise your problem or it might be worth trying to see a podiatrist. I did that and it was the best £60 I spent to avert rapidly worsening arthritis in my big toe joint due to a Morten’s foot.

[Caulkhead63 in reply to SnazzyD]

It's along the side of my foot no swelling. It aches no tingling.

[SnazzyD in reply to Caulkhead63]

Do any of these ring a bell? I like the pictures on this site

foot-pain-explored.com/foot...

[PMRpro Ambassador in reply to SnazzyD]

It's brilliant!

[SnazzyD in reply to PMRpro]

Not sure why trench foot was included.

[Caulkhead63 in reply to SnazzyD]

Yes! Thank you for for that! I'm going to ring my Doc's and try and get through the receptionist! I really need to talk to my doctor anyway

[Rachmaninov2 in reply to SnazzyD]

Thank you for the link SnazzyD, this led me to the explanation which I had suspected. Pain in the feet due to spinal stenosis.

[Abcd123455 in reply to SnazzyD]

fantastic explanations on this link, thanks

[Bleakley1 in reply to SnazzyD]

interested in your problem. Like you I have developed pain in both big toes and have been wondering what to do about it. Ok when at home and wearing slippers but not so good with outdoor shoes on. What did the podiatrist do?

[Caulkhead63 in reply to Bleakley1]

Haven't seen one. I've had problems seeing or even speaking to my doctor! I've now requested a phone call so am now just waiting!

[SnazzyD in reply to Bleakley1]

They checked my gait, foot structure, assessed my hip and leg strength and flexibility. After diagnosis I was given orthotics and exercises to make sure everything else upstream of the foot wasn’t interfering or being interfered by my feet. Most of it is from the way I’m made and age bringing the chickens home to roost but also the last 5 years of Pred/ill health.

[Bleakley1 in reply to SnazzyD]

Thank you for reply. Might think about Podiatry then

[SheffieldJane]

I suspect that foot pain is part of these conditions. I occasionally get deep bone pain or burning heels. I have not separately mentioned it to my Rheumatologist. Perhaps I should?

[Rachmaninov2 in reply to SheffieldJane]

My GP examined my feet and suggested the pain may be due to arthritis.

[Caulkhead63 in reply to Rachmaninov2]

Thanks x

[Caulkhead63 in reply to SheffieldJane]

Thanks for your reply. Yes maybe mention it to your rheumatologist. I don't have one yet myself

[SheffieldJane in reply to Caulkhead63]

It is quite usual to be treated for PMR by your primary care doctor. However, if things start to get complicated or atypical a referral to a “ good” Rheumatologist is helpful. I have had quick access to many investigations, scans etc through mine who is excellent.

[Caulkhead63 in reply to SheffieldJane]

I have a job seeing my doctor let alone anyone else! Not had a face to face since Oct not a phone call since mid November. No blood tests since the first ones end of summer. Really feel I've been let down. At the last phone call she wasn't really listening it only lasted a few minutes!

[SheffieldJane in reply to Caulkhead63]

That is not good enough. My GP is not much better but does seem to respond if my Rheumatologist discovers something. Try to get a referral to a Rheumatologist at least. You have basically, nobody supervising your condition.

[Caulkhead63 in reply to SheffieldJane]

No nobody I'm about to request a call. I've been holding on expecting someone to ring me as the paperwork THEY gave me at the beginning said I would have regular talks but that hasn't happened so I'm going to have to kick up I think!

[Seablue22 in reply to SheffieldJane]

Just wondering from your comment if you have atypical PMR? I was diagnosed with it in October 2022 but don't know of anyone else with this diagnosis. Like you I get deep bone pain and burning under my left heel, particularly in the evening, and wondered if this is part of PMR.

[readingbooks in reply to SheffieldJane]

Mine is excellent too , Sheffield Jane, here in Canada and has been since day one which was nearly 6 years ago.

[PMRpro Ambassador]

I'm struggling to understand where you mean "left side of right foot"? That's the arch of my foot. Do you mean the ball or the heel?

[Caulkhead63 in reply to PMRpro]

Yes the arch bit and my daughter said my toes do look swollen

[SheffieldJane in reply to Caulkhead63]

Do you have psoriasis at all? This made me think of the sausage toes of psoriatic arthritis.

[Caulkhead63 in reply to SheffieldJane]

Sorry to be daft but what's psoriatic

[SheffieldJane in reply to Caulkhead63]

A condition where arthritis and other symptoms appear alongside psoriasis. If you Google it you will find lots of information.

[PMRpro Ambassador in reply to Caulkhead63]

Plantar fasciitis?

[piglette]

Yes I do. I have pain along the left hand side of my left foot, mainly under the foot. It is not just at a joint. I have general pain generally over my feet too. I find it painful to walk and also have pain in bed.

[PMRpro Ambassador in reply to piglette]

I have pain there - it is the peroneal tendon.

nhslanarkshire.scot.nhs.uk/...

[piglette in reply to PMRpro]

Thanks, I had not thought of that. Arthritis was the first thought but it was not really joint pain. I saw my chiropodist this morning and she did not have a clue, but said that foot was hot and slightly inflamed.

[PMRpro Ambassador in reply to piglette]

I had achilles tendonitis in the right ankle and it was just going when the left foot peroneal tendon started so for a while BOTH feet were agony when walking!

[piglette in reply to PMRpro]

It is really painful in the swimming pool, cold hard tiles while walking around.

[Seekingasolution]

I went to see a podiatrist as I could barely walk at one point. Couldn’t bend at the joint, pain in the centre of the foot and down the outside. He thought it was part of the PMR condition but stopped me wearing ‘bendy ‘ shoes. I got some firmer shoes that supported the foot, upped my pred a bit and it went !

[craighead72]

Right foot, inside left area around ankle bone to just under heel ? Been there, It was tendonitis. Time, rest and Pernaton Green Lipped Mussel Extract ointment. Like many otherwise unexplained pains that occur I put it down to PMR.

[Iamfedup in reply to craighead72]

Hi I to have tendinitis in my foot, but also problems with tendons in my elbow and knee. all on the same side My physio says it’s tendon damage due to long term steroids

[Sew_And_Sew]

Yes I've had pain in my feet, stabbing and difficult to do anything about it. Get numbness and pins and needles in my toes and fingers too. It's a very weired condition this PMR!

[Cliford37]

Yes my mum at 92 has started with a lot of pain in both her feet the nurse said its her age and nothing can be done upsetting to see her so uncumfortable x

[Arniestal]

Been having pain in sole of foot for ages. Sometimes i cant put all of foot down and have to walk on side of foot until pain eases. Nothing to see, no reason. Im sure i have arthritis in toes but thats different. I have extremely flat feet too. I just put up with it, pointless trying to ring my drs

[Earthangel59]

oh thank goodness for this group!

I actually cheered when I read your question because this is me!

When I wake up and get out of bed in the morning, the pain in my feet is so bad I actually hobble. Particularly my left foot from the ankle to the underside of the heel and sometimes in the right foot too. Once I’m up and get going it seems to ease a lot but if I sit or rest it starts hurting again. It started just a few months ago. I’ve always been very active and walking is my thing but this whole rotten illness has completely changed me and my life.

You start thinking all sorts so your mental health suffers too.

I mentioned it to my rheumatologist in September and she said it was all part and parcel and told me to raise my steroids again to 5mg as I was almost off of them on 2mg but I’m now thinking I need to up more.

Then I started worrying about diabetes as steroids raise blood sugars and I’ve gained a lot of weight since all this started and I know feet and diabetes go hand in hand.

It’s almost impossible to get through to my surgery let alone see a Doctor and so like many…. I just carry on!

I’ll be keeping an eye on this thread. You’ve no idea how relieved I am to read others with Polymyalgia (which no one that doesn’t have it gets) suffer the same way although I’m also sad to read so many of us are suffering at all.

[PMRpro Ambassador in reply to Earthangel59]

I was exactly the same with PMR before pred.

[Caulkhead63 in reply to Earthangel59]

Yes this groups been brilliant! Don't know what I'd do without you! Get more help here then I do my GP! Thanks for all your answers guys. X

[Earthangel59]

if you do get to speak to your GP, please keep us posted on how you get on.

Best of luck 🤞🏻

[Caulkhead63 in reply to Earthangel59]

I will do x

[Zebedee44]

I have pain in the arch and left side of my right foot every morning when I first get out of bed and have to think about wearing supportive footwear all the time. Barefoot and in socks at home I am aware of pain in both feet and treat it as plantar fasciitis. I’ve struggled to find shoe inserts for the range of shoes and boots I wear but I do need to have a strong band across the instep in all footwear.

[Maudie19]

I was told I had Planter Fascitis, now being told it is Posterior Tibia. tendon Dysfunction caused by the need for a replacement knee that should have happen at start of lock down. Now under the care of Podiatry Orthotics. Awaiting supports for both shoes, if that doesn't do it the they hopefully will make a pair of shoes for me. Really painful!

[MiniSpec]

About 7 years ago I went through a period of pain in both feet for around 18 months. I thought it was plantar fasciitis, but on reflection I now believe it was a side effect of either the PMR or the Pred. It eventually faded, but not before I virtually had to stop walking, and couldn't walk at my normal pace at all, even with a walking stick, and then only with frequent stops to let the pain fade before moving on.

One good thing came out of it though. I now always wear much more comfortable shoes, i.e. ones with thick springy soles that diminish the impact of my foot hitting the floor each step I take. So now I always wear trainer types shoes, as these insulate my soles from hard surfaces.

[nissemor]

yes, I have problems with my feet too. Tingling and numbness, also severe cramp, especially along the medial longitudinal arch on the left foot at night. I take magnesium , but it doesn’t always help and I end up walking about for a few minutes until the pain has gone.

[Myfoe]

I thought it was just me but my left foot outside section feels like I have broken glass with every step when at rest it aches and is ice cold mine comes on after my weekly methotrexate injection

[Wizards]

I don't know if this will help but here goes. Prior to diagnosis I had severe pain in my big toe. I couldn't walk so saw a podiatrist who made a splint to lift it a bit so it didn't hurt but knew something more was happening so she wrote my gp.

My pmr effected my feet as well as the normal places.

I hope you find out, good luck.

[Sandyowl]

My foot pain was coming from the big toe joint mainly and has been diagnosed as Osteoarthritis. Suggested my steroids may have hidden it and now that I am on a low dose it has broken through. Definitely worth a call to the Doctors.

[Triumph650]

My PMR started in my feet and two rheumatologists said it doesn't start in the feet. Well I wish they were in my shoes.