Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2023

Thank you!

I’m unsure who posted about the NHS App holding information about appointments , test results etc but - thank you. After reading the post I checked out my App...

I’m unsure who posted about the NHS App holding information about appointments ,...

BigEric

•1 year ago

6 Replies

Temp flare or back for good

Hello all. I was diagnosed in August 2021 & gradually reduced from 20mg to 3.5mg pred over the year. I'd been ok on this dose since July 22 though couldn't go...

Hello all. I was diagnosed in August 2021 & gradually reduced from 20mg to 3.5mg...

Sanekate

•1 year ago

11 Replies

Adrenal fatigue symptoms?

Hi. I have seeing an endocrinologist for about 4 years who is trying to wean me off steroids. She switched me to hydrocortisone a while ago from Prednisolone...

Hi. I have seeing an endocrinologist for about 4 years who is trying to wean me...

Diddy61

•1 year ago

16 Replies

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Dr Ala S Al-Hussaini

I was diagnosed end of 2020. I have been on 7mg pred since beginning of 2022, my pains have increased over the past six months, and an attempt to taper further...

I was diagnosed end of 2020. I have been on 7mg pred since beginning of 2022, my...

Angel_doll

•1 year ago

6 Replies

Rheumatology Appointment

After 4 attempts my GP has got me a Rheumatology Appoint because I am ‘struggling to get below 2mg Pred’ after 5 years. I am not struggling. I believe it...

After 4 attempts my GP has got me a Rheumatology Appoint because I am ‘strugglin...

Suffererc

•1 year ago

25 Replies

Two weeks off pred …

Hello Everyone, I have been off prednisolone for two weeks now, with my 3 weekly jabs of TCZ continuing. I took PMRpro’s advice and remained on one mg once a...

Hello Everyone, I have been off prednisolone for two weeks now, with my 3 weekly...

LemonZest11

•1 year ago

33 Replies

Advice on tapering

I started 15mg of pred on 15 Feb and felt 95% better by 20 Feb. Saw the doctor on 21 Feb who offered to drop the dose to 12.5. As I still had very slight...

I started 15mg of pred on 15 Feb and felt 95% better by 20 Feb. Saw the doctor o...

Lclmlbls

•1 year ago

4 Replies

massages and facials

Good morning all, I am currently on 22 1/2mg for GCA, having tapered from 30mg at the beginning of Dec, I am doing ok now I have accepted the condition and...

Good morning all, I am currently on 22 1/2mg for GCA, having tapered from 30mg a...

Mumdadlove

•1 year ago

12 Replies

rocking alan

PMRGCA Is anybody on RoA ctamara I’ve been on it seven weeks am dropping down on steroids with no flare ups but having some nasty side affects. Anyone out...

PMRGCA Is anybody on RoA ctamara I’ve been on it seven weeks am dropping down o...

Sainsburys123

•1 year ago

7 Replies

Medic Alert bracelet/PMR card

How does one go about getting those?

christi48

•1 year ago

18 Replies

Discouraged

I started taking 5mg of Pred last June after my dx of PMR. I did well and was feeling great - almost like normal, and my inflammatory markers were in the...

I started taking 5mg of Pred last June after my dx of PMR. I did well and was fe...

christi48

•1 year ago

7 Replies

Thanks Everyone

Many Thanks to all those we have replied to my recent post.Im feeling more comfortable with 2 mg joint pains more bearable.Ive been into the surgery regarding...

Many Thanks to all those we have replied to my recent post.Im feeling more comfo...

Brears

•1 year ago

18 Replies

Synacthen test

Goid afternoon Having a Synacthen test next week and have to stop my 7mg Prednisolone 48 hours prior to the test at 9am , so basically miss one whole day as...

Goid afternoon Having a Synacthen test next week and have to stop my 7mg Predn...

5goFlotilla

•1 year ago

34 Replies

Part 2- ongoing frustration re obtaining blood test results

I’ve just had a call from rheumy secretary (thankfully I wasn’t in the loo or up a ladder). She has spoken to my doctor who said blood tests markers are all...

I’ve just had a call from rheumy secretary (thankfully I wasn’t in the loo or u...

123-go

•1 year ago

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Just Started Pred. Am I Expecting Too Much Too Soon?

Hi all. New member here. I saw my Rheumatologist last Thursday after GP referral with hip , knee stiffness and particularly shoulder pain . He’s treating it as...

Hi all. New member here. I saw my Rheumatologist last Thursday after GP referral...

Blue_Spaniel

•1 year ago

33 Replies

Ongoing frustration re obtaining my blood test results

I’ve just caught up with a recent post in which a member has the same problem. I’ve been haggling with my GP surgery for some time regarding this but they are...

I’ve just caught up with a recent post in which a member has the same problem. I...

123-go

•1 year ago

18 Replies

How should I Feel

Hi, I’m currently on 7.5 mg, have been for three weeks now, and intending to stay for another few weeks. I take my pred at 2am. I sleep well, as I’m also on...

Hi, I’m currently on 7.5 mg, have been for three weeks now, and intending to st...

Carathedog

•1 year ago

9 Replies

Worse after 2 years

I had the first symptoms of PMR in the spring of 2021, was diagnosed that fall and started on steroids in October, 15 mg. My symptoms improved, but never...

I had the first symptoms of PMR in the spring of 2021, was diagnosed that fall ...

Greytree

•1 year ago

15 Replies

Inflammatory markers ESR CRT

I have been on prednisone for just over 2 years, I started on a dose of 20mg and have reduced to 6.5mg a day with no pain or issues other than fatigue. I...

I have been on prednisone for just over 2 years, I started on a dose of 20mg and...

Hankb

•1 year ago

24 Replies

Increasing steroids for dental treatment

Hi all - I have previously seen posts about increasing preds for dental treatment, is this all treatment or specific things? and does it still apply at low...

Hi all - I have previously seen posts about increasing preds for dental treatmen...

MDT1

•1 year ago

4 Replies

2.5mg enteric coated or 2mg + cutting a half of uncoated?

I'm wondering if this can make a difference in how one feels overall and if anyone has tried this? I know the coated take much longer to start to work. I ran...

I'm wondering if this can make a difference in how one feels overall and if anyo...

diana1998

•1 year ago

7 Replies

Severe Cold, to Bronchitis; PMR has not returned

Had gotten a cold that became tenacious, as after 1 week of a head cold it progressed to my chest. A week later I had Bronchitis for the first time in my life...

Had gotten a cold that became tenacious, as after 1 week of a head cold it progr...

Boss302Fan

•1 year ago

10 Replies

Have just tested positive for Covid. Currently on 7.5mg prednisolone. Is it OK to take Snip twice a day or should I increase my dosage?

What I thought were standard cold symptoms - sore throat, runny nose and congestion - have turned out to be Covid. This is Day 2 and I don't feel too bad. I...

What I thought were standard cold symptoms - sore throat, runny nose and congest...

Pr0jection

•1 year ago

6 Replies

Stopping Actemra

What happens if you decide to stop taking Actemra?? Do you have flares and them have to take more prednisone?? I have to have a hip replacement and my surgeon...

What happens if you decide to stop taking Actemra?? Do you have flares and them ...

calicojoy41

•1 year ago

8 Replies

Not sure of what is going on

I am down to 14mg with a very slow taper. I notice when I try to go down to 13 mg. pains in my shoulders, arms and hips really hurt. I also get nauseous. So, I...

I am down to 14mg with a very slow taper. I notice when I try to go down to 13 m...

Miacaro45

•1 year ago

8 Replies

Tapering advice

I have been tapering down from 10mg Pred ( reducing 1mg each month) I’m now at 6mg. Went to see consultant who seemed content for me to continue this despite...

I have been tapering down from 10mg Pred ( reducing 1mg each month) I’m now at...

Rebsy

•1 year ago

8 Replies

Increase in prednisolone dose????

I am in a quandary as to what to do. I had a telephone consultation with a GP (one I've never seen before) regarding blood test results. She said that my...

I am in a quandary as to what to do. I had a telephone consultation with a G...

ipsidipsy

•1 year ago

7 Replies

Just found this article interesting

https://onlinelibrary.wiley.com/share/8VHKDCXCXECB9PUJY8BZ?target=10.1002/imed.1010

https://onlinelibrary.wiley.com/share/8VHKDCXCXECB9PUJY8BZ?target=10.1002/imed.1...

Fiellma

•1 year ago

4 Replies

Flare up

I am on holiday and was on 6 1/2 mils of pred And the pain in my shoulders and hips and backs of my legs has come on so Increased to 10 mils. This did not...

I am on holiday and was on 6 1/2 mils of pred And the pain in my shoulders and ...

DJmusic

•1 year ago

4 Replies

Should I start again

Hi, After several months on zero dose I've started to have occasional twinges/stiffness in my arms/shoulders. These are nothing like as bad as when I first...

Hi, After several months on zero dose I've started to have occasional twinges/st...

Bncc

•1 year ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2023

Thank you!

Temp flare or back for good

Adrenal fatigue symptoms?

Dr Ala S Al-Hussaini

Rheumatology Appointment

Two weeks off pred …

Advice on tapering

massages and facials

rocking alan

Medic Alert bracelet/PMR card

Discouraged

Thanks Everyone

Synacthen test

Part 2- ongoing frustration re obtaining blood test results

Just Started Pred. Am I Expecting Too Much Too Soon?

Ongoing frustration re obtaining my blood test results

How should I Feel

Worse after 2 years

Inflammatory markers ESR CRT

Increasing steroids for dental treatment

2.5mg enteric coated or 2mg + cutting a half of uncoated?

Severe Cold, to Bronchitis; PMR has not returned

Have just tested positive for Covid. Currently on 7.5mg prednisolone. Is it OK to take Snip twice a day or should I increase my dosage?

Stopping Actemra

Not sure of what is going on

Tapering advice

Increase in prednisolone dose????

Just found this article interesting

Flare up

Should I start again

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